Great piece.
DecodeME the ME/CFS Study
#MyalgicEncephalomyelitis
channel4.com/news/worlds-la…

For those who think #MyalgicEncephalomyelitis is just being 'tired'. Its like having a car where every light on the dash board is lit. It's not being believed by family, friends & doctors. It's millions of lives put on hold. It's abject poverty, food & housing insecurity. #pwME

M.E is a neglected and stigmatised disease, leading to the negligent abuse of patients in UK hospitals right now.

#BringMillieHome
#MyalgicEncephalomyelitis #pwme

popsugar.com/fitness/mecfs-…

The Gloucestershire Echo, England. 13th April 1996. #mecfs #cfs me #MyalgicEncephalomyelitis #myalgice #cfs #chronicfatiguesyndrome .

They may have all the power but we have the best illustrators. Check out more of Kornelia Paulsen's work on Instagram @ illustrating_me. #MyalgicEncephalomyelitis #MECFS

Thirty-four years ago today. Harlow Star, England. 12th April 1990. #mecfs #cfs me #myalgice #MyalgicEncephalomyelitis #chronicfatiguesyndrome #cfs .

CFSME, more than just tired.
#CfsSunday
#chronicfatiguesyndrome
#MyalgicEncephalomyelitis
#CFS #CFS ME
#fibrosupportbymonica

Every voice matters. Yet too often marginalised voices go unheard. In the run up to #WorldMEDay on May 12th we are spotlighting stories that make up a #GlobalVoiceForME .

#MyalgicEncephalomyelitis is a global health crisis, requiring drastic change.

buff.ly/43ZFR2S

Thirty-five years ago today. The Gazette, Quebec, Canada. 12th April 1989. #mecfs #cfsme #MyalgicEncephalomyelitis #myalgice #chronicfatiguesyndrome .

We have an update from Karen's family. Karen is severely ill and being threatened with legal action if she doesn't move to a hospital unit with a strong psychiatric approach. Please sign and share her petition.

ow.ly/VRyH50RcpuG

#MyalgicEncephalomyelitis #VerySevereME

'A Shocking Indictment of European Research & Healthcare Policies for #MyalgicEncephalomyelitis '

The European ME Alliance have released the findings of a comprehensive survey shedding light on patients across Europe
europeanmealliance.org/emea-pan-europ…
It has 5 pages of Irish results
#MEcfs

Parliamentary Questions: ME/CFS Research and Healthcare regarding NICE Implementation

Please see the website blog with the links to the parliamentary questions here:

meassociation.org.uk/rtva

#pwME #MECFS #MyalgicE #MyalgicE ncephalomyelitis #Research #Healthcare #NICEGuideline

Eighteen years ago today. Harbour City Star, Canada. 12th April 2006. #mecfs #cfs me #MyalgicEncephalomyelitis #myalgice #chronicfatiguesyndrome #cfs .

Press-Telegram, California. 10th May 1959 #mecfs #cfs me #MyalgicEncephalomyelitis #chronicfatiguesyndrome #cfs .

Today, thirty-three years ago. The Hinckley Times, England. 11th April 1991. #MyalgicEncephalomyelitis #myalgice #cfs #chronicfatiguesyndrome #mecfs #cfs me.

This is action, educating doctors at the primary care level. Don't let Jaime's (It'sME(Jaime)) efforts go unnoticed! #ME #LC #MyalgicEncephalomyelitis #LongCovid

New:
The influence of #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome (ME/CFS) family history on patients with ME/CFS

Free fulltext:
explorationpub.com/Journals/em/Ar…

#MEcfs #CFS #PwME

Why would NHS staff think they're exempt from following NICE guidelines? 🧐 #MyalgicEncephalomyelitis #MECFS #MedTwitter NHS England Royal College of Physicians GMC

Thirty-one years ago. The Newark Advocate, US. 11th April 1993. #MyalgicEncephalomyelitis #myalgice #cfs #cfs me #mecfs #chronicfatiguesyndrome .

Est 7500 patients and growing-yet it’s been
13years ie 4745days on the rollercoaster of fighting (mostly from our beds) for specialist services for #MyalgicEncephalomyelitis patients in N. Ireland & excruciating👀progress being made for other,less lengthy health campaigns, WHY?