Anyone else? My eyelids are super swollen and red, everyday. I also have really dry eyes, itchiness, drooping and other things.

I've been to the opthalmologist numerous times.

#mecfs #pwme #longcovid

Update about Millie:

Petition
change.org/p/save-millie-…

Fundraiser
justgiving.com/crowdfunding/b…

#BringMillieHome #MilliesevereME #SevereME #pwME #saveMillie #DontLetMEDie

BBC have admitted that #DragonsDen #Accuseeds episode didn't meet editorial standards...

#pwme #ME #MyalgicEncephalomyelitis

Question for #pwme brain fog, yes, but did you notice having a lot more of déjà-vu feelings ?
I have a lot.

'Take Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), for example. Research shows that the disease burden of ME/CFS is double that of HIV/AIDS, yet ME/CFS is more underfunded relative to its disease burden than any other disease.'
#MECFS #pwME metrodora.org/AnnouncingMetX/

ME/CFS HOLDS YOU PRISONER.

New public awareness campaign from WE&ME Foundation 💙💪

#MECFS #pwME

I have never met a #pwME (or #pwLC ) that have showed resistance to considering alternative diagnoses.

They would love nothing more than to have either the totality of their symptoms (or even some part of them) to be treatable or curable. But that is often not the case.

I've posted a new update to my funding. I should have noted 'I'm literally dying' but I guess that's not appropriate. If you can help in any way, please help. Thank you all for the support, this community is all I have ❤️

#mecfs #pwme
gogetfunding.com/support-katian…

Carla’s family, and the community of #pwME are begging those with authority to #SaveCarlasLife

We are asking for NICE guidelines to be followed. That is all.

Care Quality Commission Ruth Liptrot Krishnan Guru-Murthy Ellie Fry Channel 4 News Stig Abell

#MEAwarenessHour

Pia Dijkstra’s video message for #pwme is now online in linkedin.

This. From an OP ED piece in the NY Times 2015 by Julie Rehmeyer
nytimes.com/2015/02/25/opi… #MyalgicEncephalomyelitis #pwME #MECFS #MedTwitter #neisvoid #teachmetreatme #sciencenotstigma #ChronicallyIll

Breaking news: Someone on Twitter thinks #pwME should do a groundbreaking never thought of before action to get treatments: educating your doctor and advocating for yourself ! In my 33+ years of illness I'd never think of something so smart and effective. /sarcasm

Update about Millie - 22/04/24

Petition
change.org/p/save-millie-…

#MillieSevereME #SevereME #pwME #saveMillie #BringMillieHome #DontLetMEDie #ExposeMENow

Trending worldwide!

#SaveCarlasLife #ExposeMENow
#pwME #MillionsMissing #MyalgicEncephalomyeli

Good Morning Happy Wednesday Friends ❤️🥰🩵🌻🩶🌹🩷🎀
#StrongerThanCancer
#Stage3Abreastcancer
#dysautonomia
#pwME
#HeptavaxInjury1988
#RetiredRN

#ME CFS
#pwME
Kennt ihr eine Publikation/Seite, in der das frühzeitige Umsteigen auf den #Rollstuhl bei #ME empfohlen wird?
Bekannte ringt mit Neurologen, der meint, sie fühle sich vermutlich durch eine Verordnung kränker (!!!) (obwohl sie sich schon selbst einen besorgt hat)
RT🙏

The full letter from the BBC ECU re the Acuseeds episode on #DragonsDen

Apologies I thought everyone had seen the full thing

#pwme #ME #MyalgicEncephalomyelitis #DragonsDen ConnedME

The NHS is going to kill her!! Can't they see it? in what world do we live in??? I can't believe I'm witnessing this. As a very severe patient I literally prefer dying at home than asking for help from a hospital again.

#mecfs #pwme #SaveCarlasLife

Upcoming CDC ME/CFS webinar on Monday, May 6 includes “Deep Phenotyping of Post-Infection Syndromes and the Way Forward” with Brian Walitt MD MPH & Avindra Nath MD

cdc.gov/me-cfs/program…

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME