#chronicillness #chronicillness humor #chronicillness memes #autoimmune #autoimmune meme #spooniememe #spooniehumor #fibromemes #fibromyalgia #spoonies #mecfs #longcovid #chronicillness memes

irgendetwas stimmt mit der energieproduktion in den mitochondrien nicht...

#jederTagMECFS #MECFS #LongCovid #MEAwarenessHour

#MECFS is a severe illness that affects tens of millions of people. To date, there is no cure and no understanding of the pathology. This challenge can be solved, if we put our minds to it and provide funding for research. In the meantime, patients need support. #MEAwarenessHour

bis ich nicht mehr laufen konnte, hieß es, ich hätte nichts.

#jederTagMECFS #MECFS #LongCovid #MEAwarenessHour

#MECFS

Carlas oxygen is at 71%. Instead of treating her, staff removed the machine. They want to get rid of evidence of their mistreatment. She is at risk of death in their hands. This is how #MECFS patients are treated under the NHS in 2024. #SaveCarlasLife #MEAwarenessHour

Patients with #MECFS cannot reproduce their parameters in repeated CPET tests, but did you know that there is other objective evidence for post-exertional malaise? The gene expression, for example, shows a significantly different response than in controls. #MEAwarenessHour

Returning to UK #MECFS 🇬🇧👀

Our #DearMinister postcard campaign is upcoming for #MEAwarenessDay ✉️

But if you use Moonpig, you can write it *today* & have it delivered on 12th May!

Template & addresses to send to here 👇

crunchme.notion.site/ME-Awareness-D…

I was trying to create an AI-generated image to depict a severe case of #MECFS for a specific use case. The image creation was rejected because it could be viewed as too sensitive or potentially distressing.

This tells you a lot about the neglect and stigmatization, as well as

💜 #Fibromyalgia #MECFS #Spoonies #ChronicPain #MentalHealth #Disability #InvisibleIllness 💜
How true 💯

Things I have tried so far for my beast, Sjogren's.
- Steroids
- IVIG
- Plasmapheresis
- Cellcept/MMF
- Rituximab
- Belimumab or Daratumumab?
Just because I have a treatable autoimmune disease, don't assume I'm lucky not to have MECFS. Sjögren's causes far more systemic organ

Plakat im Landkreis Osnabrück
#MECFS

Better together! 🙌🤝👏

#MECFS #Interdisziplinarität

sn.at/panorama/oeste…

#chronicillness #chronicillness humor #chronicillness memes #autoimmune #autoimmune meme #spooniememe #spooniehumor #fibromemes #fibromyalgia #spoonies #mecfs #longcovid #chronicillness memes

#MedTwitter please read this and stop harming #MECFS patients.

#MEAWARENESSHOUR
#SaveCarlasLife
#BringMillieHome
#ExposeMENow

Do you or someone that you know have #LongCovid or #MECFS ? We are looking for you to take part in our study Division of Sport and Exercise @UWS - no exercise required.

Contact information below!

Long Covid Support 🌍 Long Covid Scotland 🏴󠁧󠁢󠁳󠁣󠁴󠁿 Long Covid Patient Action Group UK Long Covid SOS Long COVID Physio Solve ME/CFS Initiative Action for M.E.

The NHS is going to kill her!! Can't they see it? in what world do we live in??? I can't believe I'm witnessing this. As a very severe patient I literally prefer dying at home than asking for help from a hospital again.

#mecfs #pwme #SaveCarlasLife

#SaveCarlasLife #BringMillieHome #MECFS

#chronicillness #chronicillness humor #chronicillness memes #autoimmune #autoimmune meme #spooniememe #spooniehumor #fibromemes #fibromyalgia #spoonies #mecfs #longcovid #chronicillness memes

🔥Powerful closing statement from George Monbiot on #MECFS

'The fact that this is not one of our very top medical priorities is itself a massive scientific scandal'