M.E is a neglected and stigmatised disease, leading to the negligent abuse of patients in UK hospitals right now.

#BringMillieHome
#MyalgicEncephalomyelitis #pwme

popsugar.com/fitness/mecfs-…

'Our fellow Mainers with ME/CFS deserve better care and we can do more to help improve their quality of life.'

Thanks to the CentralMaine.com 💻 for publishing an Op-Ed today from our chapter member Kristi, who lives in Augusta.

#MECFS #PwME #MyalgicE

centralmaine.com/2024/04/11/mai…

Parliamentary Questions: ME/CFS Research and Healthcare regarding NICE Implementation

Please see the website blog with the links to the parliamentary questions here:

meassociation.org.uk/rtva

#pwME #MECFS #MyalgicE #MyalgicE ncephalomyelitis #Research #Healthcare #NICEGuideline

🎉 The first round of participants in our HHV-6 study have completed their 6 months of sample collection!

👏 Huge thanks to our amazing community of #pwME and healthy controls for helping us advance #MECFS research.

📢 Stay connected for more insights: eepurl.com/huUOiL

#womaninbizhour
Restocked:
Popular Fungi Toadstool embroidered pendant.
craftymissbcrafts.etsy.com/listing/170785… #pwme #giftideas #jewellery

Petition
change.org/p/save-millie-…

Fundraiser
justgiving.com/crowdfunding/b…

#BringMillieHome #MilliesevereME #SevereME #pwME #saveMillie

Millie update
Petition
change.org/p/save-millie-…

Fundraiser
justgiving.com/crowdfunding/b…

#BringMillieHome #MilliesevereME #SevereME #pwME #saveMillie

For those who think #MyalgicEncephalomyelitis is just being 'tired'. Its like having a car where every light on the dash board is lit. It's not being believed by family, friends & doctors. It's millions of lives put on hold. It's abject poverty, food & housing insecurity. #pwME

Do you or someone that you know have #LongCovid or #MECFS ?

I am running a study to assess the feasibility of using dietary nitrate from beetroot juice to improve cardiovascular health markers in #pwLC and #pwME - no exercise required.

For more information please reach out!

New:
The influence of #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome (ME/CFS) family history on patients with ME/CFS

Free fulltext:
explorationpub.com/Journals/em/Ar…

#MEcfs #CFS #PwME

Update about Millie

Petition
change.org/p/save-millie-…

Fundraiser
justgiving.com/crowdfunding/b…

#BringMillieHome #MilliesevereME #SevereME #pwME #saveMillie

Millie’s fundraiser for private medical care once she has left hospital.

#BringMillieHome #MilliesevereME #SevereME #pwME #saveMillie

justgiving.com/crowdfunding/b…

As always Valerie is spot on. Why wasn’t this done decades ago by the largest charities instead of the luke warm “we’ll discuss it at the APPG” whenever that might be, which ALL the charities should be attending. #BringMillieHome #myalgicE #pwME

We have issued a statement in response to the concerning reports surrounding Millie's care.

Full statement available on our website: actionforme.org.uk/news/bringmill…

#BringMillieHome

#pwME #MyalgicE #SevereME

Update about Millie

Petition
change.org/p/save-millie-…

Fundraiser
justgiving.com/crowdfunding/b…

#BringMillieHome #MilliesevereME #SevereME #pwME #saveMillie

When you're diagnosed by a leading UK doctor in your disease as having #SevereME
- yet the BBC states: 'Her family said they believed she has ME'

BBC pls correct - that is inaccurate reporting. She has a diagnosis of ME!
- still, thanks for covering this
#MECFS #pwME #pwLC

#mecfs #pwME #LongCovid #pwLC

Help turbocharge this appeal to the U.K. government for a treatment protocol for #pwME in the health service: organise.network/actions/petiti…

Another fantastic article by Hannah Sharland

This time on how Wessley avoids accountability through having the system all stitched up...

#pwME
#MyalgicEncephalomyelitis
#MEcfs
#MillionsMissing

thecanary.co/opinion/2024/0…

Friends with ME ( #pwME ) how are you doing?