Sten Helmfrid 🇺🇦(@StenHelmfrid) 's Twitter Profile Photo

is a severe illness that affects tens of millions of people. To date, there is no cure and no understanding of the pathology. This challenge can be solved, if we put our minds to it and provide funding for research. In the meantime, patients need support.

#MECFS is a severe illness that affects tens of millions of people. To date, there is no cure and no understanding of the pathology. This challenge can be solved, if we put our minds to it and provide funding for research. In the meantime, patients need support. #MEAwarenessHour
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Sten Helmfrid 🇺🇦(@StenHelmfrid) 's Twitter Profile Photo

Patients with cannot reproduce their parameters in repeated CPET tests, but did you know that there is other objective evidence for post-exertional malaise? The gene expression, for example, shows a significantly different response than in controls.

Patients with #MECFS cannot reproduce their parameters in repeated CPET tests, but did you know that there is other objective evidence for post-exertional malaise? The gene expression, for example, shows a significantly different response than in controls. #MEAwarenessHour
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Katja Trtilek(@KTrtilek) 's Twitter Profile Photo



- wenn alle Lebensentwürfe, Träume und Hoffnungen nach und nach davonfliegen wie die Schirmchen einer Pusteblume im Wind. 😢

#MEAwarenessHour

#MECFS - wenn alle Lebensentwürfe, Träume und Hoffnungen nach und nach davonfliegen wie die Schirmchen einer Pusteblume im Wind. 😢
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Kirst(@kirstler31) 's Twitter Profile Photo

I have just had an idea. What about @TheChronicCollaboration telling Carla & Millie’s stories at the UniteToFight2024 conference? It’ll highlight what is going on in NHS hospitals hopefully get the word out that are being abused in NHS hospitals! Thoughts??

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Dan Wyke 🦠➡️🧠🔥(@Dan_Wyke) 's Twitter Profile Photo

Carla’s ordeal echoes the tragic deaths of Merryn Crofts and Maeve Boothby O'Neill. The NHS must stop the maltreatment and neglect of severely ill
patients. GMC Royal College of Physicians NHS England thecanary.co/uk/analysis/20…

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Timo Strotmann(@TimoStrotmann) 's Twitter Profile Photo

It took me 5 months to go from 500 steps a day to 5,000 steps a day, but only a week to lose all that progress.

I'm just done with this life.

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ME-Hilfe e.V.(@Me_Hilfe_) 's Twitter Profile Photo

🆕 Unser Team Soziale Arbeit eröffnet unsere erste Online Selbsthilfegruppe! 🆕

Melde dich gerne direkt per E-Mail: [email protected]

oder hier per Direktnachricht.

Bitte teile diesen Beitrag damit möglichst viele Betroffene unser Angebot finden 🙏🫂✨

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Jamie(@JamieJaime10) 's Twitter Profile Photo

Carlas oxygen is at 71%. Instead of treating her, staff removed the machine. They want to get rid of evidence of their mistreatment. She is at risk of death in their hands. This is how patients are treated under the NHS in 2024.

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Kat(@Katrin72894654) 's Twitter Profile Photo

Ab morgen, versuch ich Amifampridin. Hoffe damit auch meine Symptome zu verbessern.
Hat das schon mal wer mit genommen? Verträgt sich das mit den Mastzellen?

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