世界各国の #MECFS 患者さんの体験談⑧
#GlobalVoiceForME

ウクライナのマックスさん worldmealliance.org/2024/05/i-fear…

キーウで分子物理学を学ぶ大学2年生だった2006年に肺炎にかかり、2週間入院後に圧倒的に衰弱した
#WorldMEDay 　 #筋痛性脳脊髄炎
#コロナ後遺症 　 #LongCovid

When you know, you know.

#MEAwarenessDay #WorldMEDay #WorldMEDay 2023 #MillionsMissing #MECFS #LongCovid

We're thrilled to see Robin Swann, Northern Ireland's Minister for Health Department of Health, stepping up as a #GlobalVoiceForME for #WorldMEDay .

Thanks to Hope 4 ME & Fibro NI for developing the #DiscoverME virtual reality experience and medical education that led to this!
#MECFS #LongCovid

Wat is ME?

In deze video vertellen we wat ME is en geven we een inkijkje in hoe er omgegaan wordt met de ziekte👇🏻

De volledige video bekijk je hier:
youtu.be/_DAL8apoE5g

#MEAwarenessDay #WorldMEDay #WorldMEDay 2023 #MillionsMissing #MECVS #LongCovid #StillSickStillFighting

世界各国の #MECFS 患者さんの体験談⑤ #GlobalVoiceForME

パキスタンのネヴラさん mecfsj.wordpress.com/2024/05/06/24-…

私は5歳の時に熱を出し、何週間も幼稚園に行かれなくなった
毎日通園していたのに、一カ月に15日だけになった
#WorldMEDay #MECFS #コロナ後遺症
#筋痛性脳脊髄炎 #LongCovid

‼️Det første barnelege Bell presiserer er at en kan ikke fortelle ett barn som ikke er frisk at det er frisk. Det skaper identitetsproblemer og full forvirring.

#PwME #MillionsMissing #MEawareness
#MEdagen #WorldMEday
#VerdigLiv #LifeMatters

totoneimbehl.wordpress.com/2012/04/28/med…

Today is #MEAwarenessDay #WorldMEDay . I’ll just say I wish I could

- digest food
- talk & listen for >10s
- tolerate daylight
- wash myself
- sit & stand up, esp to use bathroom & kitchen
- think
- take a walk

Please cure #MECFS . Give the #MillionsMissing #pwME their lives back

55 years since the World Health Organization (WHO) recognised ME, yet no treatment, no cure and huge stigma. Thank you for leading this Westminster Hall debate ahead of #WorldMEDay Sajid Javid.

#GlobalVoiceForME

worldmeday.org

What does it mean to have ME as a Black African man in South Africa? Mlindeni shares his experience in his community as a #GlobalVoiceForME . #WorldMEDay
#MECFS #MyalgicE #LongCovid

buff.ly/3Q2FGOu

NIreland Health Minister Robin Swann statement in the run up to #WorldMEDay is also being circulated by Public Health Agency & Northern Trust
There’s an outpouring of gratitude from patients for 1.56 min recording, thank you #BeAGlobalVoiceForME #DiscoverME
vimeo.com/941987122/5598…

“Ik mis berg beklimmen, hier sta ik boven op de Mont Blanc. Nu kan ik niet meer naar buiten, ik kan niks met mijn 3 tienerkinderen ondernemen, ik kan de kinderen maar twee keer per week zien, en maximaal 30 tot 60 minuten praten.” -

#NietHersteld
#WorldMEDay
#MillionsMissing

Martin Hippe is an inspiring lawyer and filmmaker from Germany, working on advocacy and communications for ME. Join us on May 10th for the Bridging Borders live event and learn about his work! #WorldMEDay #MECFS #PCS #MyalgicE #GlobalVoiceForME
buff.ly/4b30ugO

世界各国の #MECFS 患者さんの体験談 ④
#GlobalVoiceForME

メキシコのダニエラさん
mecfsj.wordpress.com/2024/05/06/24-…

シャルコー・マリー・トゥース病という遺伝性症候群にかかっており、喉と消化器の2つの感染症に同時にかかった後、症状が悪化
#WorldMEDay #MECFS #コロナ後遺症
#筋痛性脳脊髄炎

I once climbed mountains. Now I can hardly climb one flight of stairs, walk or stand. I need an electric wheelchair to get out on the days I am even well enough to be outside.

Missing from my life for six years…

#millionsmissing #worldMEday #MECFS #LongCovid #MEAwarenessDay

Stand out moment for me in today's #WorldMEDay debate. Thank you Andrew Gwynne MP 🙏

#MEAwarenessDay2023 #WorldMEDay
Impressionen von der Liegend-Demo in Berlin.
#LiegendDemo
Vielen Dank @LG für das Video

'(After rest and sleep) More Exhausted than Before '
#LearnFromME #May12
#MEAwarenessDay #WorldMEDay #MillionsMissing #StillSickStillFighting #MEAction Network World ME Alliance BODY POLITIC #MyalgicEncephalomyelitis

Friday the 12th May is 'World ME day'. Thinking of the millions missing from their lives due to post viral disease. You are not forgotten.
#WorldMEDay #MyalgicEncephalomyelitis #DecodeME #MillionsMissing

Today's highlight is for World ME Day.

ME Awareness Day originated with US advocate Tom Hennessy (1954-2013). He chose the 12th as it was Florence Nightingale's birthday.

You can find the links in my bio.

#pwME #mecfs #MEAwarenessMonth #GlobalVoiceForME #WorldMEDay

Today is ME awareness day! ME stands for Myalgic encephalomyelitis - a debilitating illness that affects the lives of the people who have in huge way.
I am one of them.
#MereShadows #WorldMEDay #MyalgicEncephalomyelitis #MillionsMissing #MEAwareness #StillSickYearsLater