I’m always so excited to see when my YouTube videos are helping people make their lives better!! ❤️💜😊❤️💜

Here is the video in case y’all are curious:
Chronic Illness Mobility Aids: Why You Shouldn't Put Off Getting One Any Longer !
youtu.be/Ce_MJxqa3p0

#severeCFS #MECFS

Philkjp Kann ich gut verstehen. Ich pendle immer zwischen arbeiten & krank geschrieben. Es ist aber zu viel, selbst krank, Kind ist severeCFS, recherchieren, Termine für mich & Kind. Werde mich bald dauerhaft AU melden, um meine Energie ins gesund werden zu stecken.

Saturday October 15 ME CAREGIVER SUPPORT CALL

meaction.net/event/me-careg…

3:30PM ET/8:30 PM GB & Ireland

Find the time in your time zone here:
timeanddate.com/worldclock/fix…

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #SevereME #SevereME CFS #SevereCFS #VerySevereME

18/

“Partner with the patient & caregiver and coordinate across providers to achieve the required care, services, & support while not overloading the patient with excessive interactions, tests or outings (even outside of bed) that might exceed their limits”

#severeme #severecfs

On #SevereME day (Aug 8), I remember my friend Ruth Nolan from Glasnevin, Dublin who has spent 3 decades bedbound with #SevereME

For 13+ yrs she has had #VerySevereME :she's only able to have a few very short conversations & very little cognitive/mental stimulation☹️

#MEcfs #PwME

🏀A look at the best basketball players to come out of every US state, and the impact they had on the game. Here's the entire list! 🗺️

'PENNY STOCKS' CLASSIC TEE⬇️

All day everyday #severeme day #severeme #severeme awarenessday #bedbound #housebound #severelyill #severecfs #severeme cfs #verysevereme #chronicillnesslife #chronicillnessblogger … instagram.com/p/BmOcaI3hCUT/…

Ruth’s mother, Margaret, is one of our trustees. She and her family have minded Ruth over many years with very little support from the State.

#severeME #SevereMEday #MyalgicE ncephalomyelitis #ME cfs #CFS #MyalgicE #PwME #ME #MyE #ME eps #SevereMEday 2022 #SevereCFS #SevereMECFS

Bea is Chronically Persisting✨ Crystal angela mv/p 💁🏻‍♀️ Amy Hoy interesting. have you ever taken exogenous ketone-bodies to see how they affect your energy? do you think this has something to do with inflammation? GI issues? or more POTSY stuff? i cant imagine anyone with severeCFS managing to do strict keto...but then Myhill...

Agy Lena 🏳️‍🌈 PwME or SevereCFS can be disabled as fuck. Probably should be on highest band of whatever.

17/
“Emergency rooms, hospitals, and even visits to healthcare providers’ offices can exceed the patient’s stringent exertional limits and cause a prolonged payback period due to PEM, or potentially permanently worsen their health”

#severeme #severecfs me #verysevereme #severecfs

Just changed profile: now 28 years housebound with #severeME (more than half my life) (ill 33.5 years) ☹️

Hope research progress is made soon 🙏

Links:

- A list of research funds: phoenixrising.me/resources-2/re…

- My story: independent.ie/life/health-we…

#MyalgicE #MyalgicE ncephalomyelitis

Mom always knows best❤️. PFL has been and will always be fighters first👊. Welcome to the PFL Family Francis Ngannou

A lot of this is made up of useful extracts on what the NICE ME/CFS Guidelines says about Severe M.E/C.F.S
#SevereME #SevereME CFS #SevereCFS #VerySevereME

Our assistant chairperson

#ChronicFatigueSyndrome #MEcfs #CFS #PwME #PwME s #CFS ME #CFIDS #SEID #SevereCFS #SevereMECFS #PostViralSyndrome #postviralillness #PostViralFatigueSyndrome #MyE

33/

“Schedule regular home or telemedicine visits for ongoing care and to monitor changes in
the patient’s health.”

#severecfs #severecfs me

18/

May is #MyalgicEncephalomyelitis (ME) Awareness Month.

You can help to raise awareness and understanding by retweeting and/or
liking this 7 minute 8 second-video made on young UK woman with severe
ME

Day 18
#SevereME #SevereCFS
youtube.com/watch?v=cPH3kK…

#SevereME
“They only see us on our better days and that might be once every three months but people judge you on that one meeting. Don’t see me on bad days when I don’t eat and try and make it to the toilet.” - Liam Pike, on Facebook

#SevereME CFS #SevereCFS #PwME

1/

Ein Lied, eine Textpassage die mich zum kritzeln angeregt hat. Nicht gut, aber die Passage und die dazu gehörigen Gedanken mussten dargestellt werden. Hilfe wird kommen,wir sind bei euch. Die noch kämpfen können, tun es für euch mit. Für alle mit #severeME #severeCFS #MECFS #pwME

'The Gurney Guide for Severe ME Transportation'
by Galen Warden

galenwarden.com/post/gurney-gu…

I haven't read this free guide. It looks like it focuses on the US with a little discussion on the UK & Australia

#SevereME #SevereME CFS
#SevereCFS #VerySevereME #MEcfs #CFS #MyalgicE #PwME

Did I lose my destiny?
Or was this my true destiny all along?
#severecfs #severeme #severecfs me #chronicillness

Please share with MP’s by email too so they can advocate for #SevereME patients. Too many are dying and suffering because of avoidable medical ignorance & neglect. #MEcfs #pwME #MEAwarenessHour #MPDoYourJob4ME #DontLetMEDie #APPGonME

d1fdloi71mui9q.cloudfront.net/TJVC0ZwnTpexrA…

Jennifer Brea🦒 Forgotten Plague 8/

May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

You can help by sharing and/or liking this video. It was made by a woman, Laurel, with severe ME
Living with Severe ME
(5 minutes 13 seconds)
youtu.be/LvweCk44WHs

Day #8

#SevereME #SevereCFS