Update about Millie

Petition
change.org/p/save-millie-…

Fundraiser
justgiving.com/crowdfunding/b…

#BringMillieHome #MilliesevereME #SevereME #pwME #saveMillie

The fact that hospitals can’t even follow NICE guidelines for these horrendous diseases makes me think treatment is never coming 😭😔 I can hardly bear another day of this. Not even 1, not 1 minute of relief 😩. Things drastically need to change. #SevereME #ExposeMENow

Update about Millie

Petition
change.org/p/save-millie-…

Fundraiser
justgiving.com/crowdfunding/b…

#BringMillieHome #MilliesevereME #SevereME #pwME #saveMillie

We are so grateful for all the support from the community, Millie’s family would like to share the below update.

#BringMillieHome #MilliesevereME #SevereME #pwME #saveMillie

Update about Millie:

Petition
change.org/p/save-millie-…

Fundraiser
justgiving.com/crowdfunding/b…

#BringMillieHome #MilliesevereME #SevereME #pwME #saveMillie

When you're diagnosed by a leading UK doctor in your disease as having #SevereME
- yet the BBC states: 'Her family said they believed she has ME'

BBC pls correct - that is inaccurate reporting. She has a diagnosis of ME!
- still, thanks for covering this
#MECFS #pwME #pwLC

Petition update · An update about Millie from her family · Change.org · Change.org #BringMillieHome #MilliesevereME #SevereME #pwME #saveMillie #DontLetMEDie change.org/p/save-millie-…

Millie update
Petition
change.org/p/save-millie-…

Fundraiser
justgiving.com/crowdfunding/b…

#BringMillieHome #MilliesevereME #SevereME #pwME #saveMillie

Oh my god I am disgusted and in shock. Yet another #severeME patient being abused by psychiatry and the so called medical system. When will this stop happening? 😭😭💔💔

Yet another critically-ill UK patient with #SevereME subject to inhumane NHS care - Karen, similar to Millie.
+ at least 4 more cases in UK right now.

Part of a systemic global problem: entrenched medical maltreatment of #MECFS

Pls sign this petition
#pwME #pwLC #LongCovid

I urge you to please read this open letter by ME Foggy Dog 💙 shared by ME Association. The understanding & treatment of #severeme patients in NHS hospitals right now is dire. There is an urgent need for implementation of an #NHSProtocol4SevereMENow . Please sign & help save lives.…

@TheChronicCollaboration Shaun Lintern please see above. Carla has #severeME which means she cannot tolerate any light. Yet the hospital will not cover the glass on the door. It is torture for her. They are not looking after her #SaveCarlasLife

Disabled Doctor Yes. #BringMillieHome is a perfect example of Drs not knowing everything about #SevereME twitter.com/iEllieFry/stat…

Hello NICE

Are you content for your expert approved guidelines on #MECFS to be treated as some optional irrelevance by #NHS hospitals treating #SevereME patients?

GMC RCGP Royal College of Psychiatrists
#SaveCarlasLife #expose

📣URGENT!!!!!!!

#MECFS Twitter - we need to get them some stuff ASAP in the hospital. If anyone is in NYC and has time tomorrow, please DM me.

#pwME #SevereME #LongCOVID

1/6 Yesterday I did a thread on #BringMillieHome & #SevereME Some people commented on my proposal that UK ME orgs shd, in coalition, create/fund a Crisis Team for cases such as Millie's. The orgs have cash reserves; this is one way they could be put to good use. Detail follows 🧵

Join the ‘Urgent Call for the Creation of an NHS Protocol for Severe Myalgic Encephalomyelitis (M.E.)'

The open letter is available to read and sign here: organise.network/actions/petiti…

#pwME #MyalgicE #MECFS #MyalgicE ncephalomyelitis #NICEGuideline #SevereME #OpenLetter

Millie's family is incredibly grateful for being able to work with Gill Dummigan from BBC North West on this piece.
#BringMillieHome
#MilliesevereME #SevereME #pwME youtu.be/ExF-v0HKr2s?si…

Hospitals really need to understand the basics of caring for a patient with very severe m.e.

Hell, I often need my bedroom curtains shut to minimise this effect. #SevereME #DontLetMEDie