GPCR receptors link dysautonomia and MCAS – two fundamental elements of #LongCovid . Why does it only seem that researchers in Germany are interested in these receptors and not anyone anywhere else?

Sign & share the Solve ME/CFS Initiative open letter asking Bernie Sanders & the Senate HELP Comm. to include #IACCIs to proposed #LongCovid Moonshot legislation & help 73M+ Americans impacted by IACCIs like #MECFS #POTS #Dysautonomia #Fibromyalgia #Lyme #MCAS .
ow.ly/tTn350RfhZy

#POTS was described more than 30 years ago, but mainstream media still calls it 'mysterious.' 😫🤣 I would love to see reporters use the word 'common' instead of 'mysterious' because it is! 🧠🫀

#MedTwitter The Washington Post #Dysautonomia #NeuroTwitter #MedEd

Tilt table testing is useful, as this case example shows, in diagnosing post-COVID POTS. #Dysautonomia #POTS jamanetwork.com/journals/jama/…

This can definitely apply to #Sjogrens #dysautonomia #POTS ,gaslighted by 95% rheumatologists &other specialists. And unlike MECFS the damage to glands,organs is irreversible. #RheumTwitter
My impression is that most rheums have no clue about how low QoL is in dysautonomia/Sjogrens

So encouraging to see our recent paper has 'more views than 80% of all Frontiers articles.' It simply highlights the need to delve deeper into ME/CFS, EDS/hEDS/HSD, MCAS, POTS, Lyme, Dysautonomia, and Long COVID to help a diverse group of patients with comorbidities. #MECFS

Natasha 🐱🦠 I say try everything ASAP. People are suffering. SPG can help with the dysautonomia possibly. EAT shows some promise too especially if its hiding a reservoir of covid

Please sign & share our petition asking @sensanders to include #IACCI language to proposed #LongCovid Moonshot legislation & help 73M+ Americans impacted by IACCIs like #MECFS #POTS #Dysautonomia #Fibromyalgia #Lyme #MCAS . Sign here by April 22: ow.ly/pte850RcIYV

A recent study found that children with #POTS have more changes in blood pressure than controls. They also had higher blood pressure at night, which might make sleep more difficult. #SUTP #dysautonomia #potsresearch #potsawareness

Remember to rest 😴 #MECFS #dysautonomia #longcovid
Long COVID Physio Todd Davenport Harriet Carroll: Long Covid Scientific Consultancy DocValerie Dr Claire Taylor Daria Oller, PT, DPT, ATC 💖💜💙🏳️‍🌈 Laura Miers Hopeful Jessikah Braginton Adam Ohtw

This is part of the problem of #dysautonomia caused by #longcovid . Your brain doesn’t know how to stay asleep. Last night was a light wake up night. And I woke up 8 times. Only 48% of my time “in bed” was asleep time. And this is after taking all the things. Doing all the things.

🦠😷 S Blitshteyn MD, FAAN, Dysautonomia Clinic, of #Dysautonomia Clinic, discussed neurological manifestations of #LongCOVID and how they are similar to those seen with #migraine comorbidities. 🤕 🧠

🎥 View the full conversation here: neurologylive.com/view/understan…

[ On Etsy as a T-shirt, Hoodie, and Mug : tinyurl.com/5y7mwapz ]

#POTS #Potssyndrome #Dysautonomia

dysautonomia is so funny because i’m at the doctor and they’ve taken my heart rate three separate times times because they didn’t like how fast it was going

emily fraser 🌿🐌✨ Maya Lindemann Terri Wilder Dilemma: Not all cases of #MyalgicEncephalomyelitis are triggered by an infection. I haven’t researched but wonder whether that’s also true w/ #Dysautonomia , #MCAS . We know EDS is genetic. The accuracy of umbrella term “infection-associated” isn’t fully accurate - thoughts?

Yes it’s me, using an app to gamify hydration in the hope it’ll get me drinking enough to help manage my dysautonomia symptoms.

You know it's a bad day when:
- I tripped and fell on a dark run this morning and am all banged up.
- Therapy place refuses to see dysautonomia patients because therapy doesn't work for them.
- Another therapy place won't accept any Long COVID diagnosis.
🫠

Dysautonomia: the invisible illness affecting millions worldwide.

msn.com/en-xl/health/o…