Our Thursday laugh from @Doodlethru

#SUTP is proud to fund a study relating to the development of #microclots in #POTS and Long #COVID patients. They hope to characterize these microclots and the inflammatory molecules within them to inform more targeted diagnostic and treatment strategies. #dysautonomia #research

In this episode we check in on Maddie from episode 83, and hear how she has been doing…including how she regained the ability to walk again. Listen on your favorite podcast platform or at ThePOTScast.org.

Several clinical tests should be done on anyone suspected of having #POTS to exclude other diagnoses and look for underlying disorders. These include orthostatic vitals, heart and neurological examination, testing for #EDS , as well as blood work. #dysautonomia #SUTP #potsie

Our Thursday laugh from @Doodlethru

FUNDED: For approximately 40% of #POTS patients, regular fainting is a problem. Developing wearable devices that predict fainting in POTS patients could be a game changer to prevent falls. We are proud to fund projects that could improve quality of life! #SUTP #dysautonomia

In this episode, POTS patient Jill and POTSpouse Mike describe their experience creating DoodleThru.com comics to laugh about POTS and the endless absurdities that come with it. Listen on your favorite platform or at ThePOTScast.org.

If your story was a book, it would tell the tale of bravery. It would describe all of the obstacles you had to overcome to be here, now. People want to hear that story. When you're ready, tell it.
#POTS #chronicillness #spoonie

This doesn't come as a surprise to the #POTS community... but a new study found that POTS patients struggle more with their health and activities of daily living like shopping and showering than controls. Many with POTS are have a drastic reduction in quality of life. #SUTP

Many POTS patients also have mast cell activation syndrome (MCAS). If you haven’t yet learned about the connection between POTS and MCAS, consider listening to The POTScast. Our Thursday laugh from @Doodlethru:

FUNDED: Diagnosis continues to elude far too many #POTS patients. This team seeks to establish a rapid diagnostic process for diagnosing POTS that can be used in any healthcare practitioner's office. Normalizing and quickening the diagnosis of POTS will quicken proper treatment.

You’re not going to want to miss this one! Listen on your favorite platform or at standinguptopots.org/podcast.

Some illnesses cause visible disabilities. And some, like POTS, may not. Just because it cannot be seen does not make it any less real. What could someone do to make you feel seen?

A recent study found that children with #POTS have more changes in blood pressure than controls. They also had higher blood pressure at night, which might make sleep more difficult. #SUTP #dysautonomia #potsresearch #potsawareness

Our Thursday laugh from @Doodlethru

In episode 201, meet the ebullient Allie, a student at Purdue U. who makes a point of meeting one new stranger per day. How cool is that?! Listen on your favorite platform or at standinguptopots.org/podcast

Sometimes POTS feels like a dark cloud that overshadows everything, and we have to find light from other sources, like pet cuddles, a text from a friend, or even a really great doctor's appointment where we feel heard. What adds sunshine to your life?
#POTS #chronicillness

A new study supports the use of external vagal nerve stimulators in #POTS patients. These stimulators activate the parasympathetic nervous system via the vagus nerve, and can reduce some POTS symptoms after using it for 2 months. #SUTP #dysautonomia #research

If Sports Illustrated existed for POTSies: Our Thursday Laugh from DoodleThru

Ever wondered how POTS, long COVID, and related chronic illnesses intersect with female reproductive issues? Dr. Leticia Soares published an article on this, so you don’t have to be embarrassed asking! Listen at thepotscast.org or your favorite podcast platform.