Just another day being buried alive

Excited for this app

news.griffith.edu.au/2024/04/11/me-…

Timo Strotmann In the last 10 years I have seen many more people die from #mecfs than recover

As a result, we are still without therapies for post acute infection syndrome and suicide is often the only way out of suffering for those affected!

#LongCovid #MECFS

2/2 🧵

Efthymios Kalafatis 3/3 I have never seen in anyone I know with a different fatiguing condition an episode of 'PEM' that led to being unable to speak, unable to make the simplest of choices or decisions, unable to tolerate the slightest light or sound.

I’m fucking tired of #MECFS PEM being described in a way that makes it sound like a temporary payback. Oh well, maybe it’s worth it then. NO! PEM can be PERMANENT! Exertion can make you PERMANENTLY MORE DISABLED! This does not happen in ANY other disease! I will die on this hill.

Finally... our paper on #LongCovid is out! It's based on my tweet here.

Thanks to my amazing coauthor Monica Verduzco-Gutierrez, MD
and the amazing Ziyad Al-Aly, MD for your input and encouragement!

#MedTwitter #Neurotwitter Jacobs School at University at Buffalo American Academy of Neurology

journals.lww.com/ajpmr/citation…

The similarities between HIV and SARS2 are impossible to ignore but everyone's over it and still using language like 'back during COVID.' I'm like bro, you're still in it. In fact, its in you. Its still living and replicating in you.

tern PEM! Have ME & EDS and it’s many companions. PEM is the worst because you can’t do anything about improving other symptoms. Can’t do physio to strengthen muscles etc. It sucks!!!!

Do you have GI issues? If so, what kind? You know what the letters stand for.

If I get extremely hot and sweaty from doing a task is that a POTS symptom?

Not sure why doctors are telling patients on here they have a “poor prognosis.”
Long Covid/ME/CFS is being studied right now more then ever. Those doctors are basically telling you to give up hope in a time that’s most hopeful for ME.

New-ish #LongCovid research from Belgium:

Blood transcriptomic analyses reveal persistent #SARSCoV2 RNA and candidate biomarkers in #postCOVID19 condition

thelancet.com/journals/lanmi…

#PwLC
1/

Knowing that Ampligen is out there and it worked on me and I could be living my life semi normally now but noooo....FDA never approved it so i just rot in here 🙂

I am so exhausted of feeling so bad every day. I don’t think I have the mental strength to fight and survive this illness if the fundings and researches don’t go faster. We are in so much suffering, this should be a national emergency. How they are allowing this to happen to us?

Ok, going to actually take Celebrex tomorrow. Who’s taken it? Can you share your experience please. Thank you!

New mAb called 1301B7 with potent neutralization across multiple variants and achieves sterilizing immunity (undetectable traces of virus).

Potential for PREP and treatment therapeutic developments .

biorxiv.org/content/10.110…

#longcovid

Really feel like I’m going insane with the severe head pressure and pain, dissociation (feeling like I’m in a dream, out of touch with reality), and anxiety (feeling like world is about to end). It has been the worst 3 days of my life. When will this end? #LongCovid

Has lions mane helped anyone?