Constituents getting ready to talk to Virginia Congressfolk from our beds/recliner w head supported, bc we've got #MECFS #LongCovid #POTS #PostTreatmentLyme . We ask for an entity at NIH for Infection-Associated Chronic Conditions and Illnesses (IACCIs). #stopthelonghaul
Thank you Digital Director Jake Green at Rep. Gerry Connolly #VA11 for meeting today, being interested & respectful of our constituent stories and the stories we shared from others in the Northern VA ME/CFS, LC & OI Support Group. Help IACCIs get a proper home at NIH! #Stopthelonghaul
Solve M.E. Announces Emily Taylor as New President and CEO and Publication of New White Paper Calling for NIH to Restructure Funding for ME/CFS, Long Covid, and other IACCIs
prnewswire.com/news-releases/…
#MyLongCovidAdvocacy #LongCovid
Senator Bob Casey office thank you for mtg w/ me, Liz Kennerley (she/her) #COVIDIsntOver #PBMTReform, and other ppl from PA living with LC, ME, & other IACCIs.
Creating a coordinating mechanism within NIH for IACCI research would take advantage of synergies and lead to more effective treatments/use of resources.
Millions of people are suffering #LongCovid & #MECFS w/ no viable treatment.
Congress needs to support a new entity at NIH for Infection-Associated Chronic Conditions & Illnesses (IACCIs). Let's coordinate research & improve patient care! Solve ME/CFS Initiative MEAction GA Congressman Rich McCormick, MBA MD
New critical publication! ICYMI Rep. Jack Bergman Sen. Debbie Stabenow Senator Gary Peters 'A Home for IACCIs at NIH' is now available. Read more at: ow.ly/eISC50R4CGu p2a.co/twitterimage?i…
Hi Rep. Don Beyer Mark Warner Senator Tim Kaine—
I’m a constituent asking you to please read about the unmet needs at NIH for the tens of millions of us with #MECFS #LongCovid and other IACCIs.
Check it out at: ow.ly/eISC50R4CGu
Sign & share the Solve ME/CFS Initiative open letter asking
Bernie Sanders & the Senate HELP Comm. to include #IACCIs to proposed #LongCovid Moonshot legislation & help 73M+ Americans impacted by IACCIs like #MECFS #POTS #Dysautonomia #Fibromyalgia #Lyme #MCAS . ow.ly/tTn350RfhZy
New critical publication! ICYMI Dutch Ruppersberger Senator Chris Van Hollen Senator Ben Cardin 'A Home for IACCIs at NIH' is now available. Read more at: ow.ly/eISC50R4CGu #StopTheLongHaul #MEAwarenesshour p2a.co/twitterimage?i…
Grateful for all advocates, especially our MEAction GA advocates, who spoke to Senators’ staffs yesterday and will speak to Congressional staffs tomorrow, urging them to support the development of a home at NIH for #MECFS , #LongCovid & other #IACCIs . Please read the White Paper.
Getting ready now to talk to members of Congress from my bed, because I've got #MECFS . I'll be urging them to create an entity at NIH for Infection-Associated Chronic Conditions and Illnesses (IACCIs). #LongCovid #stopthelonghaul Congressman Rich McCormick, MBA MD Buddy Carter
Please Rep. Josh Harder Senator Alex Padilla Laphonza Butler read about the unmet needs at NIH for #MECFS #LongCovid and other IACCIs. Check it out at: ow.ly/eISC50R4CGu p2a.co/twitterimage?i…
Please Congressman Chuy García Senator Dick Durbin Tammy Duckworth read about the unmet needs at NIH for #MECFS #LongCovid and other IACCIs. Check it out at: ow.ly/eISC50R4CGu p2a.co/twitterimage?i…