Shaney Wright(@ShaneyWright) 's Twitter Profileg
Shaney Wright

@ShaneyWright

@WestHam Fan ⚒ | Accidental Centrist; Pro-Pragmatism/Science; Anti-Dogma.

Fighting for Biomedical Research into, and Awareness of, #LongCovid. #FBLC

ID:1358064335415877635

calendar_today06-02-2021 14:45:56

26,7K Tweets

15,4K Followers

493 Following

Follow People
Long Covid Support 🌍(@long_covid) 's Twitter Profile Photo

NHS Confederation Chair Victor Adebowale on Question Time:
Q.Does Britain have a sick note culture?
A. No… It’s cruel…2m people have , a recognised illness as a result of …very rarely met someone who doesn’t want to work… We need to stop using performative language.”

account_circle
GC(@ThePOTSPostman) 's Twitter Profile Photo

POTS is very real and an invisible illness, meaning there are many things you cannot see.

You can’t see the tachycardia.
You can’t see the brain fog and dizziness from the lack of blood to our head.
You can’t see the vision dysfunction.
You can’t see the dizziness.
You can’t…

account_circle
Paul Keeble ME/CFS/LC(@PaulRKeeble) 's Twitter Profile Photo

Long Covid SOS Simon Williams The Guardian Danny Altmann Binita Kane Stephen Griffin Trisha Greenhalgh Prof Amitava Banerjee💙 MANOJ SIVAN Long COVID Physio Long Covid Kids - #LongCovidKids Long Covid Support 🌍 'We need to continue to invest heavily in research'

This bit irritates me because we haven't actually invested in research at all. We funded some garbage in 2022 and nothing since. We need to start funding real biological research heavily starting 4 years ago!

account_circle
Danny Altmann(@Daltmann10) 's Twitter Profile Photo

I’d forgotten the caveat mentioned by Trisha Greenhalgh - because few now do LFD to confirm breakthroughs, many GPs are reticent about using diagnosis or codes..so we under-estimate

account_circle
A 😎 Long Covid + MECFS Billboards(@AaronCa11) 's Twitter Profile Photo

Covid Solidarity waiting on the BBC dropping a story about patients finding hope in Long Covid clinics or a story about someone extremely mild and improving with time.

Any minute….

account_circle
Shaney Wright(@ShaneyWright) 's Twitter Profile Photo

2 million in UK estimated to have . Think how many there are on top of that number misattributing Long Covid – chronic ill-health effects of Covid – to other things because they don't know they were infected with SARS-CoV-2 specifically due to universal lack of testing.

account_circle
Trisha Greenhalgh(@trishgreenhalgh) 's Twitter Profile Photo

👀 We need research into “long long covid”. In a significant proportion of people this condition goes on for YEARS.

account_circle
Danny Altmann(@Daltmann10) 's Twitter Profile Photo

I’m neither a politician nor an economist, but finding it hard to see how it could be good to have 3% of the workforce long term unwell to , yet no moves to acknowledge, mitigate, research or treat?

account_circle
RTHM(@RTHM_Health) 's Twitter Profile Photo

This change in the immune system may be behind many of the symptoms experienced by people with Long COVID, as well as those receiving Guillain-Barre or other immune disease diagnoses following SARS-CoV-2 infection.

account_circle
RTHM(@RTHM_Health) 's Twitter Profile Photo

🦠One theory behind autoimmunity is a viral infection causing confusion within the immune system.

When it comes to the SARS-CoV-2 virus, researchers are finding that people with COVID-19 are producing many different autoantibodies.⏩



rthm.com/articles/autoi…

account_circle
Long Covid Support 🌍(@long_covid) 's Twitter Profile Photo

BBC: “To get people off long-term sick leave the government is 'providing the NHS with record funding of nearly £165bn a year by the end of this Parliament'”.

How about we have a few £bn invested in research to … just saying.


bbc.co.uk/news/uk-politi…

account_circle
Office for National Statistics (ONS)(@ONS) 's Twitter Profile Photo

Long COVID symptoms adversely affected the day-to-day activities of 1.5 million people (74.7% of those with self-reported long COVID).

381,000 (19.2%) reported that their ability to undertake their day-to-day activities had been “limited a lot”.

Long COVID symptoms adversely affected the day-to-day activities of 1.5 million people (74.7% of those with self-reported long COVID). 381,000 (19.2%) reported that their ability to undertake their day-to-day activities had been “limited a lot”.
account_circle
Office for National Statistics (ONS)(@ONS) 's Twitter Profile Photo

2 million people living in private households in England and Scotland were experiencing self-reported long COVID

Symptoms continuing for more than four weeks after a confirmed or suspected infection that were not explained by something else.

➡️ ons.gov.uk/peoplepopulati…

2 million people living in private households in England and Scotland were experiencing self-reported long COVID Symptoms continuing for more than four weeks after a confirmed or suspected #COVID19 infection that were not explained by something else. ➡️ ons.gov.uk/peoplepopulati…
account_circle
Dysautonomia Intl.(@Dysautonomia) 's Twitter Profile Photo

Dr. Grubb and colleagues recently published this review of the literature on autoimmunity in and . They highlight the mounting evidence that autoimmunity plays a role in both conditions. See more details in comments below.

Read the article at mdpi.com/2075-4426/14/4…

Dr. Grubb and colleagues recently published this review of the literature on autoimmunity in #POTS and #OH. They highlight the mounting evidence that autoimmunity plays a role in both conditions. See more details in comments below. Read the article at mdpi.com/2075-4426/14/4…
account_circle
Long Covid Commentary(@LongCovidComms) 's Twitter Profile Photo

Two things can both be true

1) viral persistence as a cause of is a worthy hypothesis and deserves more funding and attention

2) the evidence for viral persistence as a cause of is constantly overstated ‘on here’

account_circle