This is my 1st year of #MECFS vs now, nearly 3 years later with very severe ME. It doesn't matter how healthy you were, once you get #severeME your life as you know it is over. I'm bedridden and unable to speak at 25. WE NEED TREATMENTS NOW #WorldMEDay #MEAwarenessDay

Beeindruckend, wie viele Menschen gestern -ob an den Bildschirmen,in Gedanken oder vor Ort- an den #Liegenddemo s teilgenommen haben:
Es war ein besonderer Tag,
mit vielen berührenden Begegnungen,
für Sichtbarkeit von #MECFS !
#PEMisnotNegotiable
#MEAwarenessMonth
#MEAwarenessDay

#MEAwarenessDay #WorldMEDay

On #WorldMEDay , we come together as a #GlobalVoiceForME . Millions more are developing #MECFS triggered by #COVID . This is a global health crisis.

We demand:
Recognition
Research
Respect

Take action to call on your country to become a #GlobalVoiceForME at worldmeday.org

Still fighting the same battles today we were then. Still demanding equitable funding, care and support. Where are you? HHS.gov NIH CDC U.S. FDA

#MECFS #LongCovid #CFIDSChronicle Summer 1994

Heute Nacht ist unser Haus blau beleuchtet für die Aktion #Lightupthenight4ME . Damit wollen Betroffene in ganz Deutschland, und damit auch im Kreis Kleve, auf #LongCovid und #MECFS aufmerksam machen.

#SevereME

It’s #MEAwarenessDay — Severe / Very Severe ME/CFS are among the worst (if not the worst) outcomes of #LongCovid , it’s horrifying & profoundly understudied.

I really encourage everyone to do 1 of 3 things today / this week.

1. Read this Ed Yong piece: archive.li/2023.07.27-111…

weet je wat mij leuk lijkt

vakantie

Hello, this is Felda, Christoph's caregiver. Today, I'm sharing photos from a protest at Heldenplatz in Vienna, organized by Ö. Ges. für ME/CFS to raise awareness for #MECFS . Let's make a difference together!💙
#MEAwarenessDay WE&ME Foundation

ik voel me vandaag weer heel ✨aware✨ maar ben ook kApOT.

STEMMEN UIT DE SCHADUW 💬

Vandaag is het #MEAwarenessDay .

Graag vragen we je aandacht voor patiënten met de ziekte ME (Myalgische Encefalomyelitis)

Veel van hen moeten we al jaren missen in onze maatschappij.

🧵👇🏻

#NietHersteld #MECVS
#MillionsMissing

#MEawarenessday video: The ME you don't see

Behind closed doors in the dark, Margot, Viv. Dascha Eliza, Ilse, Anil van der Zee ©, Lara talk about life with severe ME. Lou Corsius talks about Céline.
Watch full video here: youtu.be/DJGk-2G3yE4 (NL+ENG subs)
#millionsmissing

Wat is ME?

In deze video vertellen we wat ME is en geven we een inkijkje in hoe er omgegaan wordt met de ziekte👇🏻

De volledige video bekijk je hier:
youtu.be/_DAL8apoE5g

#MEAwarenessDay #MECVS #MillionsMissing #WereldMEDag

Thinking of all the partners, carers, friends and family of people with #MyalgicEncephalomyelitis and related conditions today.

There are some heroes out there mired in the hell with us by proxy, supporting loved ones and raising awareness.

Major appreciation 👏💙

Hartverscheurend. Mensonterend.

Achter gesloten deuren in het donker. Al jarenlang. Amper zorg. Wel ongeloof en verwijt.

Hoe kan het dat we zo met mensen omgaan? Waarom laten we dit gebeuren?

#MEAwarenessDay #MECVS

deel en bekijk de hele video hier: youtu.be/DJGk-2G3yE4?si…

Me & some + BERLIN BUYERS CLUB + friends were at LiegendDemo auf dem Washingtonplatz, ME/CFS yesterday. I thought of all the severely affected people with ME & LC who couldn’t be there. 😥 I wished there were more allies… but we will keep fighting. Things need to change for people with ME/CFS, right fucking now.

thank you. #pwME

#MEAwarenessDay

Deel 3

Bekijk de volledige video hier: youtu.be/_DAL8apoE5g?si…

Deel 2

Bekijk de volledige video hier: youtu.be/_DAL8apoE5g?si…