Hi. My name is Carol. I am one of the #MillionsMissing . I had mild ME and a thriving career in Software Engineering. On 03/2020, I got COVID and never recovered. Then on 02/2021, my home care nurse reinfected me, and COVID completely disabled me. 1/

#MEAwarenessDay #LongCovid

When you know, you know.

#MEAwarenessDay #WorldMEDay #WorldMEDay 2023 #MillionsMissing #MECFS #LongCovid

Today (well, yesterday now) is #MEAwarenessDay . I've been one of the #MillionsMissing since age 16. I turned 23 last week.

There are so many things I could say about life with #SevereME , so many alarming statistics & horrifying, heartbreaking stories. (1/8)

#LightUpTheNight4ME

#MEAwarenessDay #MECFS

Auch die #ChariteBerlin leuchtet heute blau zum #MEAwarenessDay

Auf dem Weg .....
#liegenddemo MUC #trauergang
#postcovid #MECFS #Belastungsintoleranz #mecfsawareness #GDB #postcovid syndrom #MEAwarenessDay #demo #MillionsMissing #demo nstration

jeremiah and i #GoBlueForMECFS this #MEAwarenessDay 💙 pls if you see this i ask you spare a thought for us affected by #MECFS and take a moment to educate if you can!

Vor ME/CFS und mittendrin. Seit 1,5 Jahren komplett bettlägerig. Wir fordern Forschung, wirksame Behandlungen und Aufklärung #MEAwarenessDay #severeme #mecfs #pwme

Tuesday was the 5 yr anniversary of the day my life fell apart. I had moderate #MECFS for 2 decades. On May 9th 2018, I woke up paralyzed from the neck down. I was 100% bedbound for 3.5 years. I’m now 80-95% bedbound. I often wish I died that day. In a way I did. #MEAwarenessDay

Kara Jane died of M.E. When will we take post-viral illness seriously? #MeAwarenessDay
People shouldn’t suffer like Kara did for so long without proper help theunwritten.co.uk/2023/01/18/kar…

On the 20th of February 2022, I walked up a mountain with my brother, exercising under the advice of a cardiologist who told me my symptoms were deconditioning. Two days later, I woke up in pain. I never got better. #MillionsMissing2023 #MyalgicEncephalomyelitis #MEAwarenessDay

My beautiful daughter (16). Life on hold since covid pneumonia 19 mths ago. Bedbound for 11 months. Many have been suffering for much longer. Enough is enough. We need awareness, research, trials, treatments #MEAwarenessDay #GoBlueForMe #MyalgicEncephalomyelitis #LongCovidKids

Impressionen von der gestriegen Liegenddemo vorm Bundestag in Berlin zum Internationalen ME/CFS Tag #Liegenddemo #MEAwarenessDay #MECFS

Today is #MEAwarenessDay and I don't have anything profound to say. Just how much I love and appreciate the #MillionsMissing community and how hard I'll keep advocating for us all 🩵

Heute leuchtet auch die #OsnabrückHalle blau als Zeichen der Solidarität mit #MECFS Betroffenen und um adäquate Versorgung und Forschung zu fordern.
Danke 💙

#LightUpTheNight4ME
#MEAwarenessDay
#MillionsMissing
Stadt Osnabrück

Before #MECFS I was a model, a recent college grad (& soon grad school!), a writer, an athlete. I could lift 300 lbs with my lower body. Could rollerblade 10 miles. I had so many dreams.

For the last 1.5 years, I lie in bed in a dark room for 23 hours a day. #MEAwarenessDay

Das bin ich seit #MECFS und davor.

Ich möchte wieder leben, statt nur zu überleben.

#MEAwarenessDay

PLEASE get involved with this #MEAwarenessHour .

For our #MEAwarenessDay protest we want YOUR photos to show on the ground & on the livestream so you can be there with us. Email hello(at)thechroniccollaboration.com to send them to us. We need them by 20 April LATEST. Full details 👇

Read our latest guest post by Dr Nina Muirhead for #MEAwarenessDay on The Importance of Learning About #MECFS 👉 bit.ly/3LZleep

And test your knowledge of this condition with our FREE CPD module 👉 bit.ly/3NWts9C
Action for M.E. ME Association Doctors with M.E.

I once climbed mountains. Now I can hardly climb one flight of stairs, walk or stand. I need an electric wheelchair to get out on the days I am even well enough to be outside.

Missing from my life for six years…

#millionsmissing #worldMEday #MECFS #LongCovid #MEAwarenessDay