What we need for #MECFS research, in terms of fundraising and allocation, is a 'Fast Grants' like approach:

fastgrants.org

I would love to do this myself, but I am obviously too sick. If you think you could pull this off, I might come up with seed money.

Please share!

The Way it Was: my extremely uncomfortable 22 minutes on Crossfire in 1997 with a Princeton English prof who claimed ME and Gulf War Syndrome sufferers were on a par with satanic cults (But we should feel sorry for them.) A relic of the era of possible interest to newbies.

It's not controversial to say that institutional funding for #MECFS will not dramatically increase over the next years. The only way to improve the situation is to increase private funding for both political advocacy & research. We need everyone, small & large donors to engage.

wow, the May crowdfunder is one donation short of 300 donations! Thanks to all past, present and future supporters! crowdfund.berkeley.edu/project/42302

So excited for this new podcast series! Everything that students who are training to become clinicians need to know about post-acute infection syndromes such as #LongCOVID , #MECFS , and chronic #Lyme broken down by Dr Raven! One episode every week coming at you!

Register now for *this* Thurs., May 23, Renegade Research Roundtable: T-cell dysfunction in #MEcfs & #LongCOVID : Viral immunologists Liisa K. Selin MD PhD & Anna Gil PhD UMass Chan Medical School; Roshan Kumar PhD HiFiBiO Therapeutics; Megan Fitzgerald PhD Megan Fitzgerald; & Rivka

remissionbiome.org/events/calendar

#LightningProcess Oh dear, the offer of a free ‘cure’ for #LongCovid has backfired dramatically 🙈
”The last time I looked, it was called quackery” ✅ edzardernst.com/2020/06/the-li…
bbc.co.uk/news/health-69…

Great initiative by María Richardson and team to collect videos and information about #MECFS !

#GreatesMedicalScandal

Last Friday we held a Symposium where PolyBio-supported teams gave updates on their #LongCovid , #ME /CFS & tick-borne/vector-borne illness projects and clinical trials.

Videos of the Symposium talks are now online here:

polybio.org/spring-2024-sy…

I am incredibly honored to have been invited to talk about #LongCovid and #Dysautonomia by the brilliant Eric Topol on his Ground Truths podcast. It's amazing to achieve this despite all of the obstacles in my life. 🙏🧠👩‍🔬

Jacobs School at University at Buffalo American Academy of Neurology Allison Brashear, MD, MBA #BrainHealth

Berkeley's May crowdfunder has reached 51% with exaclty 250 donations...crowdfund.berkeley.edu/project/42302

slowly moving along...crowdfund.berkeley.edu/project/42302

Those who would like to support my work can donate to Berkeley's crowdfunding campaign, which has reached 42% of its goal: crowdfund.berkeley.edu/project/42302

Thank you for having me and thank you to all with lived experience with PEM/PENE who prioritized attending among all the other things they might/could/should with their tight energy budgets.

#UniteToFight2024 Day 1 is over !
We thank all speakers, all presenters, all listeners and the whole community for this very special day.
You all are amazing 😍

Berkeley's crowdfunding for Trial by Error has reached 40% and is almost at 200 donations! I appreciate all the support. Here's the link: crowdfund.berkeley.edu/project/42302

The UniteToFight2024 online conference starts tomorrow, so I wanted to re-post this conversation with Marco Wetzel #UniteToFight2024, one of the five-person collective pulling it together: virology.ws/2024/05/08/tri…

Here's a video from Anil van der Zee © on living with severe ME, plus an interview about why he made the film and how being unable to move--he is a former dancer--makes him feel like a part of himself has been amputated: virology.ws/2024/05/14/tri…

Hello, this is Felda, Christoph's caregiver. Today, I'm sharing photos from a protest at Heldenplatz in Vienna, organized by Ö. Ges. für ME/CFS to raise awareness for #MECFS . Let's make a difference together!💙
#MEAwarenessDay WE&ME Foundation

For World ME Awareness Day, I'm reposting this interview I did last month with Guardian columnist George Monbiot about his scathing criticism of the biopsychosocial approach to ME/CFS and Long Covid:
virology.ws/2024/04/18/tri…