Medical gaslighting that results in misdiagnosis or late diagnosis should be considered malpractice. Sick people shouldn’t have to suffer because of a medical professional’s ego.

Imagine experiencing symptoms of being poisoned/brain concussion/early-stage dementia/transient paralysis & *non-alcohol induced hangover, on waking & knowing that’s so ‘normal’ no point in calling for help That‘s #MyalgicEncephalomyelitis Tip-somehow get head in a neck support

We have a double whammy in N.I. where GP has dx Covid-induced ME in 9yr old but school headmaster is insisting kids don’t get #LongCovid or #ME 🙈

GP & self convinced there'd be help for #ME 25yrs ago, to get back to work & care for family, the jaunt round NHS consultants began 1st up came ‘#menopausal hysterical women’ poster below explains where that led 🙈I’ll continue pathway how to waste NHS resources to DX-when able🤢

On #WorldPatientSafetyDay, supported by 200 healthcare professionals, I have written to Wes Streeting MP in collaboration with #There4ME calling for urgent action to improve care for people with severe #ME and #LongCovid. Our piece in the Times here ⬇️ 🧵 archive.is/XVxOt

‘A doctor from Leeds who developed long Covid and the debilitating effects of #ME has said NHS patients like her have been “left to rot”. bbc.co.uk/news/articles/…

Hosting educational conferences for HCPs since 2011 bringing world top scientists & clinicians to N.I., including @WorkwellFoundation yet, & despite assurances no action was ever taken from the top to specifically educate HCPs about #PEM Result-more patients irreversibly damaged

My teenage daughter is bedbound and tubefed. She is desperate to have some quality of life. She needs an NHS that is #ThereforME. Thank you to all the healthcare workers Binita Kane Becky Williams who are speaking up for her and many others like her.

A #GP feels ”left to rot” because the powers that be have dithered about for DECADES over #MyalgicEncephalomyelitis & they‘re still dithering & delaying the day when the inevitable *public statements & apologies come #WorldPatientSafetyDay would be ideal choice #WeToldYouSo

BBC Look North. Dr Becky Williams, who has long Covid, and meets the criteria for ME/CFS has joined over 200 other healthcare workers calling on the government to provide better support. #ThereForME campaign

Worked all my life, paid my taxes, contributed to society from leaving college until sudden-onset virus developed into full-blown #MyalgicEncephalomyelitis = end of career &life as I’d known it 25yrs later I still dont have any #ME services cause Excutive can’t find me 64p per wk

#ThereForMe. Wes Streeting MP #WorldPatientSafetyDay I am considered “Moderately” affected by ME. I am not in bed, but am 95% housebound. It means I can’t work, socialise, support my son or be the wife I want to be. Does that sound “moderate” to you?

My mind is transported back to Oct99 today when “its just a virus” ended life as I’d known it &the flashbacks from 25yrs of medical encounters of gaslighting r crippling but necessary to be able to continue the fight through #TheGreatestMEdicalScandal #MyalgicEncephalomyelitis

This is such incredible news. A pilot study evidencing Discover #ME #VR improving education and empathy outcomes. Well done to Hope 4 ME & Fibro NI and all your years of hard work #myalgicencephalomyelitis #DiscoverMe

Thank you Tara Anderson to my knowledge, this is the first time that any type of research paper has been published on #MyalgicEncephalomyelitis by N.I. researchers! Hopefully you’ve set a precedent! 🤞

For the record-1st thing I did after losing much-loved career2 #MyalgicEncephalomyelitis & receiving early ill-health pension-was to donate as much as I could to ME Research UK the only hope I had Later in journey I met now dearest friend Vance Spence who inspires me todo more ❤️

25 yrs ago, I‘d no reason to fear what lay ahead when casually dismissed with ‘chronic fatigue’ by important sounding ‘ologists What followed should be a lesson why HCPs needed education on #MyalgicEncephalomyelitis *then & is still left to those of us damaged by ignorance

This - and after the irreversible was done 👇

How are we five years into this panini and the revolving cast of characters leading the effort to learn how to treat Long Covid still can’t seem to figure out and use the prior scholarship in ME/CFS. It’s right there on Pubmed. The extent of willful ignorance is mindblowing.

Mind you when the pandemic arrived in NI, health officials did mention-once on TV-that they knew some people would experience ‘tiredness’ after getting the virus, never heard of a televised public follow-up on that ‘tiredness’ since #LongCovid #PEM #ME you’re not alone Todd🙈