We inject different viruses into the brains of mice to study and understand seizure incidence and frequency. Still, we tell patients with post-viral illnesses that their epilepsy is not related to Covid-19 or other viruses. Can someone explain it to me? #LongCovid #MECFS

'Even today, some in the medical field stick to old ideas resisting scientific advances. A prime example of this is blaming psychological factors for chronic disease processes triggered by post-acute infections.'

Readable history of ME and CFS.

#MECFS #MedTwitter

“Zurich Insurance’s responsible investment head resigns because of long Covid”

‘Johanna Köb, the head of responsible investment at Zurich Insurance Company, announced her resignation due to long Covid in a LinkedIn post on Friday’

citywire.com/ch/news/zurich…

we still need help with ppl in the room
i took a 3rd day off work, I can't take any more for the time being
please, if you are in the NYC area, you're CC, and you are seeing this,
WE NEED HELP!!!

Volunteers still urgently needed to take turns sitting in Allegra's hospital room as witnesses. Dizzy's girlfriend has been there a lot: her job is at risk.

Please get in touch if you're in the NYC area and can spare even a bit of time. 👇
#SaveAllegra 💙🙏

Pacing is not easy. It's like riding a highway in 1st gear. You can touch the peddles but you're not allowed. Everyone around you is speeding you past, they're all like: coming? no? okay see ya!

Thank you, UC Davis Center for Neuroscience, for the good news; I'm super excited to see some of my photos will be at the SMUD MOSAC Museum of Science soon!

The images below were selected as 4 of the 12 images included in the MOSAC exhibit. Do you have a favorite one? 😊
#Microscopy 🧠🔬

I've been doing worse recently and I need to stop using my phone and talking to my family and caregivers other than a few words. But I haven't bcs it's so hard on my mental health. How do other very severe people deal w/ the isolation and boredom? #mecfs #long

Royal Australian College of GPs (RACGP) President what's with this prehistoric clinical guidance for infection-associated chronic illness? This advice is 40 years old and it was poor and unevidenced at the time.

When we know better, we must do better.

Join me!

My new story on how dogma around post-acute infection syndromes casts a long shadow. Medical misogyny erased #pwME with enduring fallout, as abuse continues despite recent deaths. History threatens to repeat with #LongCovid
#MECFS #DontLetMEDie
amandafrancey.medium.com/within-four-wa…

Gang, it's the last week of voting for The People's Book Prize for A Girl Beyond Closed Doors to win best non fiction. Pretty please spend 30 secs of your time voting for it! The award is voted for entirely by the public #PwME #MedTwitter

peoplesbookprize.com/summer-2023/a-…

Grateful today for Bernie Sanders‘s responsiveness to the Long Covid community. Thank you for leading on this urgent issue, Senator, and for making sure we have the chance to be heard.

Folks who haven’t yet can email their thoughts to [email protected] by COB!

Last week I spoke with Guardian columnist George Monbiot about his scathing rebuke of the biopsychosocial brigades and their bogus research into ME/CFS and Long Covid, the so-called 'Science Media Centre,' etc. Here's an edited transcript of our convo: virology.ws/2024/04/23/tri…

We have $2000 left of our match from a generous donor. Please give today and your gift will be matched! #MillionsMissing #TeachMETreatME need your support! meaction.net/donate
Thank you!!!
#pwME #LongCovid #MECFS #MyalgicEncephalomyelitis

😂🙌

Death by a Thousand Cuts.
Felt inspired to write this after Rishi's latest announcement. It's kinda funny, mostly passive aggressive. Full song here youtu.be/Yygd3koX07s?si…
General election please!!!

#mentalhealth #rishisunak #mind #GeneralElectionN0W #toriesout #costofliving

(6/6) We’re excited to make these data sets available to any researcher who wants to push the field forward, and are grateful to all the other disease foundations that are joining us in this fight. Let’s go find cures.

And for those who haven't seen it, here's the video of my interview with George Monbiot about the 'national scandal' involving the decades-long mistreatment of patients with ME/CFS: youtube.com/watch?v=GC5i3v…

Has anyone with #LongCovid tried the updated Pemgarda monoclonal?