Well done Karen, you articulated everything beautifully. You are facing NHS standard operating procedures with #VerySevereME: imminent death in hospital or at home. According to #MaeveInquest this is not a #HumanRights matter. It is. Inhuman and degrading treatment Andrew Gwynne MP

Everything ME/CFS Skeptic writes it worth reading.

This is a beautiful place to stay: zastani.hr/221-2/

Thanks for your comment, sarah, I've now posted it at the top of the blog.

Great article. As a former athlete I would love to see an article about elite athletes with ME as well. The void I fell in having no MDs/researchers showing any interest in why I became more ill after exertion has been heartbreaking. My life didn't matter. thesicktimes.org/2024/08/16/gra…

Karen Gordon is being held hostage at an NHS hospital with a now 24 hour ultimatum between 2 choices that will both kill her. ⬇️ Excerpts from my letter to her hospital below New post on my blog: whitneydafoe.com/mecfs/?post=de… NHS Michael Gordon #SaveKaren #NHSmurdersMEpatients

This post from Colleen Steckel contains a really useful list of news articles about the recent inquest into Maeve Boothby O'Neill's death. (It mentions my posts also.) open.substack.com/pub/colleenste…

This crap review needs to be withdrawn. Thanks to Caroline Struthers for continuing to press this issue.

1/8 Short🧵following up on some obvious questions arising from my recent #MEmedia posts. Note: my comments refer to the situation in the UK, altough other countries may have similar experiences...

1) Boom and bust, another ME/CFS myth? In this new blog post we look at the evidence behind the boom and bust theory and how it originated. mecfsskeptic.com/boom-and-bust-…

Max Witt MD Tania Melnyczuk ChristosArgyropoulos MD, PhD PharmanukerInChief Here is me + my White Paper from 4/2020, on behalf of Solve ME/CFS Initiative’ successful advocacy on The Hill for that 1st $1.15B, all while in the throes of a prolonged atypical acute C19 episode that journeyed onto Long COVID (where I live still, 4.5 y later): solvecfs.org/wp-content/upl…

This is an excellent article by Dr. Weir and Dr. Speight that could be helpful to many people who are struggling to convince others that ME is not psychological mdpi.com/2227-9032/9/8/…

Feels like there is a bit of media momentum at the moment! #ThereForME campaign will be on BBC breakfast at 7am tomorrow. Binita Kane will be giving a live interview as well as a pre record with Karen Hargrave and me.

Professor Per Fink receives and award for his work in psychosomatic medicine. I fixed the text a bit as it was clearly needed. facebook.com/share/p/5EEHCT… Lääkärilehti #FFS #pwME

CBT/GET ideologues have largely been absent in news coverage of Maeve Boothby O'Neill's inquest and this week's BBC Breakfast segment on ME and Long Covid. Oonagh Cousins Karen Hargrave Binita Kane virology.ws/2024/08/29/tri…

#MaeveKnew her death may be the test case required in English law. She did not want to die. How she did should inform a #MEPublicInquiry without delay. We already know findings at the #LongCovid Inquiry support this. Valerie Eliot Smith #LongCovidKids davidtuller Joe Lajszczuk

EMEA pan-European survey of more than 11,000 ME patients: europeanmealliance.org/emea-pan-europ…

See you next month!

Why are investigators studying whether exercise "causes" PEM in a cohort of Gulf War Illness patients who mostly do not experience PEM? It's hard to understand how this got published in this form. virology.ws/2024/09/07/tri…

I'm not saying anything here about the overall prevalence of PEM among GWI patients. My point was that in the specific sample studied, the prevalence of PEM as a characteristic of the participants' GWI presentation was very low