Haven't had one panic or anxiety attack since becoming housed. Housing instability can truly break someone down both physically and mentally. Housing is a human right and I want to start including the financial aspect of chronic illness in my graphics. It is simply not talked…

Headed out to the campground tomorrow. Here we go, tent life. I could use help with food and transportation for now, but I'll need help later on with lodging when I don't have a house sitting gig lined up. Thank you so much. Homelessness is getting old.

spot.fund/6qsx8sc

#homeless senior on limited social security looking for a spare room basement shed camper house all bills paid around $500.a month willing to relocate for right situation don't smoke drug free don't drink currently in Amarillo Texas but will consider right situation

Dear #pwme and members of #mecfs community! Our fellow patient Nevra Liz is in a dire situation and her multiple medical issues are urgent. A community advocate in the past herself, she now needs our support to get through her darkest time. Please continue reading below 1/n

Nevra is terrified as she realizes she's on her own. She is afraid because she doesn't feel that the family understands her current level of debility & her appeals for help are ignored. Pls share this fundraiser to help her! 9/n rb.gy/henw8i

#pwME #DisabilityRights

they might stop paying for afrin they might cut off ohone like theh might make homeless again they might take off insurance so donate here if want help future. esp afrin he so important (and renaurd future maybe).

gofund.me/339a282c

paypal.me/hopestarmasacre

i pulled it i pulled the trigger sent proof of abuse to family members most likely to say something call cops call aps i done having seizures in middle night begging for food for antihistamines

watch here for safety in case:

twitch.tv/hopestarmasacre

Family push for daughter's removal from Lancashire hospital bbc.in/3UfwQPV

BBC News (UK) Millie has a diagnosis of ME from the UK’s foremost expert. This is not a case of “the family believes she has ME”, she does have ME and she is experiencing extreme suffering and deterioration in hospital, where they are not providing the care she needs.

We saw George Monbiot's calls for an ME Inquiry. This got Hannah Sharland thinking: who could possibly stand in the way?

Well, there's one weasely person who could - & here, Hannah dissects his track record. Important read #BringMillieHome #DontLetMEDie :
thecanary.co/opinion/2024/0…

Please donate if you have the means to do so.
Very severe ME patient here who also has parents who are not only abusive but are denying her food.
Really heartbreaking situation. 🥺
gofund.me/cde64f3b

New Severity Scale for ME/CFS

I wrote this new severity scale for ME/CFS about 2 years ago.  I really wanted to express how severe the illness can actually get which is not at all reflected in our current mild-moderate-severe-v.severe scale.  And I wanted to make it more…

How to support Millie in the UK who is currently at risk of dying.

She is no longer sectioned but they STILL will not give her a feeding tube. 😱

IF you have the energy please send Millie a card showing solidarity and support so Millie knows we care about her and the hospital…

i got it back 😭😭😭😭

i am scheduled to see her on the 15th, please contribute
so i can continue affording important and lifesaving(?) medical care like this.

gofund.me/339a282c

paypal.me/hopestarmasacre

i can rest now
thank you 🌸

Why would NHS staff think they're exempt from following NICE guidelines? 🧐 #MyalgicEncephalomyelitis #MECFS #MedTwitter NHS England Royal College of Physicians GMC

2/2 NICE guide on #SevereME saying 'they don't apply at this hospital'. Dr Weir has assisted, & we've been liaising #MEAwarenessHour

Point being we're going to see the family in a day or two, & then do another #BringMillieHome #ExposeMENow . But we'll need YOU to get involved.

Jim the hermit The (likely) coronavirus that made me sick was in 1987. My “long covid” progressed for 30 years until it became diagnosable autoimmune small fibre neuropathy, dysautonomia, MCAS, Sjogren’s… By the time I was put on IVIG, the nerve damage was so severe I narrowly avoided…

Dan Wyke 🦠➡️🧠🔥 Its the only profession I can think of where practitioners can charge £300+ per hour for not doing their job. It’s like calling an engineer round to fix your boiler and they spend half an hour telling you that you’re imagining being cold. Then hand you a bill for £250.

Unless there's irrefutable evidence they've murdered someone, medical professionals enjoy a protected status in our society. It's virtually impossible for lowly patients to bring them to account. This must be why the profession appeals to certain sociopathic personalities.

Long Covid advocacy needs to include ME/CFS. Honestly, if you disagree, just unfollow me. You won’t change my mind. I cannot demand research for myself & forget people like my former colleague who have had pre-pandemic ME for almost nine years.