Nathalie Robin Justice Gravel
@welcomewords
Writer. Photographer. Traveller. Cook. Married to my best friend: 19 yrs. #MyalgicEncephalomyelitis: 3+ decades. 80-100% bed bound: 5 1/2 yrs. Empathy is key.
ID:262493732
08-03-2011 04:24:51
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BBC News (UK) Millie has a diagnosis of ME from the UK’s foremost expert. This is not a case of “the family believes she has ME”, she does have ME and she is experiencing extreme suffering and deterioration in hospital, where they are not providing the care she needs.
We saw George Monbiot's calls for an ME Inquiry. This got Hannah Sharland thinking: who could possibly stand in the way?
Well, there's one weasely person who could - & here, Hannah dissects his track record. Important read #BringMillieHome #DontLetMEDie :
thecanary.co/opinion/2024/0…
Why would NHS staff think they're exempt from following NICE guidelines? 🧐 #MyalgicEncephalomyelitis #MECFS #MedTwitter NHS England Royal College of Physicians GMC
2/2 NICE guide on #SevereME saying 'they don't apply at this hospital'. Dr Weir has assisted, & we've been liaising #MEAwarenessHour
Point being we're going to see the family in a day or two, & then do another #BringMillieHome #ExposeMENow . But we'll need YOU to get involved.
Jim the hermit The (likely) coronavirus that made me sick was in 1987. My “long covid” progressed for 30 years until it became diagnosable autoimmune small fibre neuropathy, dysautonomia, MCAS, Sjogren’s… By the time I was put on IVIG, the nerve damage was so severe I narrowly avoided…
Dan Wyke 🦠➡️🧠🔥 Its the only profession I can think of where practitioners can charge £300+ per hour for not doing their job. It’s like calling an engineer round to fix your boiler and they spend half an hour telling you that you’re imagining being cold. Then hand you a bill for £250.