DON'T. LOOK. AWAY. #SaveCarlasLife #MEAwarenessHour
Please meet Pierre, Carla's father. We cannot overstate how distraught he is by what is happening to his daughter. However, he wanted to speak to everyone directly. Please watch & share widely. She is running out of time 💚
TONIGHT 8PM:
We're pleased to say we're launching our website during #MEAwarenessHour TONIGHT at 8pm. This is a project that everyone can be involved in - so we hope you'll be online later today for the launch #MEcfs #EDSAwarenessMonth #SaveCarlasLife
thechroniccollaboration.com
UPDATE: #SaveCarlasLife - it seems the hospital are finally doing something positive - but still not quite enough - plus #BringMillieHome
FYI transcript of the video in reply below:
We won’t improve access to care for #verysevereME #SevereME without a protocol.
#savemillie #SaveCarlasLife Karen and others in the same position need help fast. This should have been in place decades ago. Please sign and share
organise.network/actions/petiti…
Right now, three women are suffering medical abuse and gaslighting in UK hospitals because there are no guidelines for Severe ME. This is life threatening. Please speak up about this!!
#SaveCarlasLife
thecanary.co/uk/analysis/20…
#SaveCarlasLife #BringMillieHome some updates and what's been, and will be, going on...
@TheChronicCollaboration Maybe you saw, #SaveCarlasLife was trending in politics at about 10pm last night
Twitter/X seems to have penalised me for taking part in campaigns to save extremely ill #SevereME patients from abuse in @NHS hospitals. #SaveCarlasLife #BringMillieHome #MEcfs #DontLetMEdie #pwME
I hope I can take part in future actions. Too dire not to. @TheChronicCollaboration
My heart breaks for Carla, Pierre & Caroline. Despite the hospital agreeing to carry out an MRI, CT, EEG & lumbar puncture none of them have been carried out as planned. All procedures have been cancelled. Why? This is just plain cruel. #SaveCarlasLife
#savecarlaslife this is heartbreaking and makes me furious at the same time - what is the hospital waiting for? For her to die? As a parent (& someone with ME), I feel so sorry for Pierre (Carla’s Dad) who is doing everything he can 2 support his daughter, whilst the NHS does 0.
