Excited to join the Cornell ME/CFS Center in examining the skeletal muscle cellular basis of chronic fatigue. Thanks to our PI Maureen Hanson and many collaborators in NYC and Ithaca, and to NIH @NIAIDFunding for supporting critical research on this understudied syndrome.

Come and join me tomorrow to learn more about #EDS #hEDS/#HSD #MCAS and the risk of being falsely accused of #FII. It will be recorded and available later if you are busy! #FIIAwarenessWeek2023 Ehlers-Danlos Support UK The Trouble Club hypermobility.org MastCellAction @Andy_Bilson @DrHannahBB

[TW: story about severe ME/CFS] Some time ago, a person with severe #MECFS requested that I visit with them. It has been a while since I was there and I’m still working through everything I heard and saw that day. This person had been unwell for many years and their (1/)

Putrino Lab Whitney Dafoe. Sick with Severe ME since 2008

Really excellent resource from ⁦Long COVID Physio⁩ ⁦World Health Organization (WHO)⁩ On SAFE #Rehab post #Covid #LongCovid #MedTwitter #PhysioTwitter Safe Long COVID Rehabilitation — Long COVID Physio longcovid.physio/long-covid-vid…

ME/CFS is a highly debilitating neurological disease affecting systems throughout the body. 25% of people with ME are housebound or bedbound, and only ~13% are able to work full-time. People with severe ME are often forced to exist in their beds in isolation for years. #SevereME

Nice to see this from the prestigious US Centers for Disease Control & Prevention "On May 12, 2023, CDC will “light up” its Atlanta campus in blue in recognition of ME/CFS International Awareness Day". Also has its own CDC page cdc.gov/me-cfs/resourc… #WorldMEDay #MEcfs #PwME

No words can describe the pain of loss I feel today. I am tired. I'm tired of people with power destroying the dreams of thousands that they don't even understand. I'm tired of lying in bed as a supplicant trying everything to humanize our situation. #MECFSAwarenessDay #mecfs

This year's theme for #WorldMEDay centers around #PEM. World ME Alliance co-chair and Solve M.E. CEO Oved Amitay notes, “To avoid prolonging and intensifying the suffering of millions, providers must listen to and believe those who experience PEM.” #WorldMEDay #LearnFromME

May 12 is #MECFS International Awareness Day. We stand together with the millions of people who suffer from ME/CFS & other chronic illnesses. Learn more about ME/CFS bit.ly/3p2bng6 #MECFSAwarenessDay

This evening I had the pleasure of hosting the Hope 4 ME & Fibro NI conf., which ended w/ an amazing joint-announcement from Queen's University Belfast 🎓 & Ulster University that they will be including ME into their medicine courses. Seismic for patients who have campaigned for greater understanding of ME!

Amazing seeing so many buildings lit blue for #WorldMEDay and #WorldFibromyalgiaDay 💙💙💙

Results of a collaboration between the Cornell and Columbia NIH ME/CFS Centers have now been published in JTM. Analysis of plasma proteins and extracellular vesicle cytokines distinguishes ME/CFS from healthy at 86% accuracy. tinyurl.com/2yjjavdj

📢 Join us on #SevereMEAwarenessDay and take part in our FREE educational activity featuring 5 MCQs on Severe Myalgic Encephalomyelitis (ME). Expand your understanding of this condition and receive a 0.5 Hour #CPDCertificate. 👉🏽 bit.ly/47meeCq #ClinicalKnowledge pic.x.com/Km9UavqQMR

New free short module on severe ME by Dr. Nina Muirhead Doctors with M.E. mecfs-med-ed.org/2023/08/09/new…

My mini-review on the viral origin of ME/CFS is now available in PLOS Pathogens tinyurl.com/mskfbuzu. Special thanks to Christoph Ströck and @Tempi_Stiftung for helping to fund my enterovirus research.

CONTENT WARNING: A decision made for death rather than life with myalgic encephalomyelitis (ME). My heart is with Celine's family and all those who are affected by this, particularly those who still continue to live with ME.

ME Association receive apology from OUH regarding 'offensive’ job advert We have now received an apology from the Oxford University Hospitals Trust NHS Foundation Trust and Dr Shepherd will be writing to thank them for taking this action. meassociation.org.uk/6s4y

It's time that everyone stopped gaslighting ME and Long Covid patients. These are real and devastating conditions, however politically convenient it might be to deny them (and to deny benefit payments to the patients!). Those who attack and mock pile suffering upon suffering.