Sonia
@sonia43284247
ID: 1358099518575824901
06-02-2021 17:05:44
327 Tweet
13 Takipçi
8 Takip Edilen
#ALS needs the same URGENCY and speed as the Covid in the investigation and approval of treatments. #ALS doesn't give up and is 100% deadly. WE ALSO HAVE THE #RIGHTTOLIFE EU Medicines Agency Stella Kyriakides Ursula von der Leyen European Commission European Parliament
Dr. Janet Woodcock What about #NurOwn Dr. Janet Woodcock ??
#LUCHAMUNDIALCONTRALAELA #alstreatmentsnow #als #MND #ELA #SLA FDA Biologics EU Medicines Agency Stella Kyriakides Ursula von der Leyen EURORDIS-Rare Diseases Europe EUpALS
National Organization for Rare Disorders (NORD) NORD won't ever get it done with these kind of terrible attitudes! All talk, and "NORD action". #ALS #ENDALS The ALS Association CNN STAT #NUROWN #DRUGSINBODIES PPA Action #AACT
The National ALS Association has Committed 5 million to research for 2021. They are paying 10 million in salaries, 5 million in a software program, and 70 million sits in the bank. #passiton #tragic ALS Uncensored 🏴☠️ Sean Mino Maria Shriver Christy A. Moonbeam Ninja
#AlzaTuVozPorLaELA #HazQueCuente #LUCHAMUNDIALCONTRALAELA #TratamientosParaLaELA #TreatmentsforALSNOW #ENDALS EU Medicines Agency U.S. FDA en Español Stella Kyriakides Ursula von der Leyen Pascal Canfin AEMPS Informativos Telecinco Sonsoles Ónega J.J.Santos Jose Ribagorda Angeles Blanco Consejo de Informativos TVE Human Rights Watch
Dr. Janet Woodcock Listen to Dr Robert Brown and Merit Cudkowicz. They it had a clear benefit for1/3 ALS patients. Approve NurOwn. The FDA is protecting us to death. Ask the Dr.s who see the devastation every day!!
Nobody deserve to have #ALS. Everyone deserve to have access to #als treatments #ALS #MND #ELA #SLA U.S. FDA EU Medicines Agency The ALS Association ALS/MND Alliance EUpALS EURORDIS-Rare Diseases Europe
Thank you Meg Tirrell and @thenewsoncnbc for sharing Lisa's story. We are so grateful for your support of Lisa and the broader #ALS community. Biogen U.S. FDA Media Affairs please please help Lisa and her loved ones. Please give her more time. #tofersen4lisa #EndALS
Give ALS sufferers a fighting chance. We urgently need treatments #AMX0035 U.S. FDA Tracy Beth Høeg, MD, PhD Dr. Janet Woodcock Dr. Stephen M. Hahn EU Medicines Agency Ursula von der Leyen Stella Kyriakides European Commission EUpALS ALS/MND Alliance
#AlzaTuVozPorLaELA #HazQueCuente #LUCHAMUNDIALCONTRALAELA #TratamientosParaLaELA #TreatmentsforALSNOW #ENDALS EU Medicines Agency U.S. FDA en Español Stella Kyriakides Ursula von der Leyen Pascal Canfin AEMPS Sonsoles Ónega J.J.Santos Jose Ribagorda Angeles Blanco Consejo de Informativos TVE Human Rights Watch
Good news. Now we need early access to treatments that can help us and give us time ... From WORLD FIGHT AGAINST ALS we continue fighting and we will not stop until we get it. #endals #als #ela #esclerosislateralamiotrofica #treatmentsforALS #tratamientosparalaELA arisla.org/?page_id=131
European Commission: Acceso temprano a tratamiento para la ELA (Early access to treatments for ALS) - ¡Firma la petición! chng.it/jj9jKv9z vía Change.org España