WORLD FIGHT AGAINST ALS (@luchaela) 's Twitter Profile
WORLD FIGHT AGAINST ALS

@luchaela

We fight for:
• Early access to treatments.
• Visibility and social awareness.
• We support research.

ID: 1190393189053685761

calendar_today01-11-2019 22:20:38

3,3K Tweet

469 Followers

243 Following

No More Excuses ALS Watchdogs! (@als_now) 's Twitter Profile Photo

(1/4) PALS, FYI: highly respected Mayo doctors have confirmed the obvious. The results from Mayo' MSC trial are about the same as NurOwn's. And, results of Kadimastem are similar to both. ALS is making a tragic mistake. Fact: ~30% of patients "stabilize". That means HALTED ALS!

(1/4) PALS, FYI: highly respected Mayo doctors have confirmed the obvious. The results from Mayo' MSC trial are about the same as NurOwn's. And, results of Kadimastem are similar to both. ALS is making a tragic mistake. Fact: ~30% of patients "stabilize". That means HALTED ALS!
No More Excuses ALS Watchdogs! (@als_now) 's Twitter Profile Photo

(2/4) Can you imagine the impact of even one therapy that halts #ALS in ~30% of newly dx patients? How about three? Well, FOUR exist that have done so- and NONE are accessible. Still don't think the system is broken? It is. ALS is stuck. The U.S. FDA has FAILED on #ALS #ENDALS

(2/4) Can you imagine the impact of even one therapy that halts #ALS in ~30% of newly dx patients? How about three? Well, FOUR exist that have done so- and NONE are accessible. Still don't think the system is broken? It is. ALS is stuck. The <a href="/US_FDA/">U.S. FDA</a> has FAILED on #ALS #ENDALS
No More Excuses ALS Watchdogs! (@als_now) 's Twitter Profile Photo

(3/4) Only #ALSHEARINGS can deliver #ALS patients' urgency and the FACTS directly to Congress in detail, and what kind of "awareness" is needed to FIX ALS' broken trial system, where good options were said to "fail", all because of a simple 12 question survey (that doesn't work!)

(3/4) Only #ALSHEARINGS can deliver #ALS patients' urgency and the FACTS directly to Congress in detail, and what kind of "awareness" is needed to FIX ALS' broken trial system, where good options were said to "fail", all because of a simple 12 question survey (that doesn't work!)
No More Excuses ALS Watchdogs! (@als_now) 's Twitter Profile Photo

(4/4) I say this to ALS' top research doctors; you don't "need more research to confirm" (yet again). You need to TREAT PEOPLE WITH ALS. We are in a "standoff" with humanity, and no doctor wants to say it first. Which says it ALL Wall Street Journal Opinion #endals #ALS …generativemedicineblog.mayoclinic.org/2021/05/07/how…

No More Excuses ALS Watchdogs! (@als_now) 's Twitter Profile Photo

FOUR therapies have halted ALS in trials: 1. Mayo MSC 2. NSI-566 3. NurOwn 4. T-REGS. Others have slowed ALS: 1. CuAtsm 2. AMX0035 3. TOFERSEN 4. ASTRORX. Think #ALS isn't "treatable"? Or maybe, just maybe it IS, but "certain people" aren't ready to GIVE YOU A SHOT. U.S. FDA

FOUR therapies have halted ALS in trials: 1. Mayo MSC 2. NSI-566 3. NurOwn 4. T-REGS. Others have slowed ALS: 1. CuAtsm 2. AMX0035 3. TOFERSEN 4. ASTRORX. Think #ALS isn't "treatable"? Or maybe, just maybe it IS, but "certain people" aren't ready to GIVE YOU A SHOT. <a href="/US_FDA/">U.S. FDA</a>
WORLD FIGHT AGAINST ALS (@luchaela) 's Twitter Profile Photo

Can you help me with this collection of signatures to have EARLY ACCESS to #TreatmentsforALS? It is aimed at drug regulatory agencies (FDA-EMA) and pharmaceutical companies (Biogen, Amylix, Brainstorm ...) We need the same flexibility as Covid! change.org/p/european-com…

Amylyx (@amylyxpharma) 's Twitter Profile Photo

We continue to make progress with our global clinical & regulatory plans. We are on track to submit an MAA for AMX0035 to the European Medicines Agency CHMP by end of 2021 and initiate a Phase 3 clinical trial in Europe and the U.S. by Q3 2021.

WORLD FIGHT AGAINST ALS (@luchaela) 's Twitter Profile Photo

Join the WORLD FIGTH AGAINST ALS campaign and RAISE YOUR VOICE FOR ALS. From Portugal we get this video in sign language!!!💪💪💪🌍🌍🌍 #WorldFightAgainstALS #RaiseYourVoiceForALS #IamALS #ApelaPortugal

WORLD FIGHT AGAINST ALS (@luchaela) 's Twitter Profile Photo

Hoy es un gran día para ALS en Europa!! Desde la WORLD FIGHT AGAINST ALS realizaremos nuestra tercera (pero no última acción en el Parlamento Europeo) 1. Petición registrada 0555-2021 y que ha recibido el apoyo de diferentes eurodiputados, europa.podemos.info/noticias/la-el…

WORLD FIGHT AGAINST ALS (@luchaela) 's Twitter Profile Photo

Today is a great day for ALS in Europe!! From the #WORLDFIGHTAGAINSTALS WORLD FIGHT AGAINST ALS we will carry out our third (but not the last action in the European Parliament) 1. Registered petition 0555-2021 and that has received the support of different MEPs, europa.podemos.info/noticias/la-el…

Juntos Contra La ELA (@juntoscontraela) 's Twitter Profile Photo

Hoy, 21 de Junio, #DiaMundialContralaELA nuestro cofundador y afectado de ELA, Antonio Madero, nos lee un manifiesto que él mismo ha escrito con el fin de dar a conocer esta horrible enfermedad. Ayúdanos a compartir y darle visibilidad. ¡Necesitamos que nos escuchen!

WORLD FIGHT AGAINST ALS (@luchaela) 's Twitter Profile Photo

Desde WORLD FIGHT AGAINST ALS hemos realizado 3 iniciativas en la Unión Europea en menos de un mes. 2.Pregunta a la Comisión Europea,la eurodiputada Idoia Villanueva ha respaldado la iniciativa instando a la Comisión Europea a crear una línea de investigación específica

Desde <a href="/LuchaEla/">WORLD FIGHT AGAINST ALS</a> hemos realizado 3 iniciativas en la Unión Europea en menos de un mes.
2.Pregunta a la Comisión Europea,la eurodiputada Idoia Villanueva ha respaldado la iniciativa instando a la Comisión Europea a crear una línea de investigación específica
WORLD FIGHT AGAINST ALS (@luchaela) 's Twitter Profile Photo

From WORLD FIGHT AGAINST ALS we have carried out 3 initiatives in the European Union in less than a month. 2. Question to the European Commission, MEP Idoia Villanueva has supported the initiative by urging the European Commission to create a specific line of investigation.

From <a href="/LuchaEla/">WORLD FIGHT AGAINST ALS</a> we have carried out 3 initiatives in the European Union in less than a month.
2. Question to the European Commission, MEP Idoia Villanueva has supported the initiative by urging the European Commission to create a specific line of investigation.
WORLD FIGHT AGAINST ALS (@luchaela) 's Twitter Profile Photo

From WORLD FIGHT AGAINST ALS we have carried out 3 initiatives in the European Union in less than a month. 3. We have delivered a letter signed by 18 MEPs to the European Union Health Commission

From <a href="/LuchaEla/">WORLD FIGHT AGAINST ALS</a> we have carried out 3 initiatives in the European Union in less than a month.
3. We have delivered a letter signed by 18 MEPs to the European Union Health Commission