A multidisciplinary clinic team works together to provide care for people living with ALS. This type of care has been proven to help people help people with #ALS live longer, maintain independence, and have a better quality of life.
Find a clinic: bit.ly/Clinic-Map

Join us on Tuesday, April 23 at 2pm ET for a community conversation on issues people with #ALS encounter during air travel featuring special guest Kelly Buckland, Disability Policy Adviser with the U.S. Department of Transportation:
bit.ly/ALSAirTravelWe…

We need to hear from you! #ALS Focus surveys bring the perspectives of people with #ALS and caregivers to the forefront of research, care, and advocacy. Our latest survey focuses on clinical trials and treatment needs.
Respond today: alsfocus.org!

We are excited to highlight ALS Nexus speakers Dr. Ambereen Mehta from Johns Hopkins Medicine
and Jill Recker, executive director of Ascend Home Health. Who will be speaking about the benefits and barriers to palliative care for ALS. Interested in learning more?
Visit alsnexus.org

Most people can say they have had a less than perfect air travel experience at some point in their life, but for people living with #ALS , these bad experiences often prohibit them from flying. A proposed new U.S. Department of Transportation rule aims to address that issue directly.
Learn more:

We are excited to announce our new partnership with Synapticure, a leading telemedicine focused on improving the lives of people and caregivers living with neurodegenerative diseases, to expand access to care for people living with #ALS .
Learn more: bit.ly/synapticure-pa…

Do you know someone who was recently diagnosed with #ALS ?

Encourage them to join the National ALS Registry to help find the causes of this disease. We want to make sure everyone is counted.

Start the conversation today: bit.ly/3wbdkHD

Thank you so much pensfoundation for supporting the fight against ALS!

The U.S. Senate has scheduled a committee hearing on the Justice for #ALS Veterans Act for next Wednesday, April 17!
Urge your U.S. Senators and Representatives to support #veterans with ALS and their families by passing this critical legislation TODAY! bit.ly/Justice-ALS-Ve…

Thank you Bride Rose Sweeney and Rep Jamie Callender for your leadership! People living with ALS deserve access to more affordable Medicare supplemental insurance plans. #ALSAdvocacy

When Katie was diagnosed with ALS at the age of 39, she had no idea the challenges she would face with insurance companies. Now she is sharing her story, using her voice to make real change for the #ALS community.
Learn more: bit.ly/katie-adams

Due to geography, logistics, and sometimes cost, many people with #ALS cannot access the crucial care they need, a vital issue experts will be addressing at our upcoming ALS Nexus conference. Learn more: bit.ly/als-nexus-care

#ALS Nexus

Get the latest #ALS news delivered straight to your inbox. Sign up for our monthly e-newsletter today: bit.ly/ALSnewsletter

Every person who shares their time and talent with us as an ALS Association volunteer has a “why” story. But Dana Julian’s “how” might be a little different than you’d expect. bit.ly/dana-julian-vo…

#NationalVolunteerMonth

Are you looking for an opportunity to engage in thought-provoking discussions that will shape the future of ALS? Join us at #ALSNexus this July in-person or virtually if you are a person living with ALS or their caregiver.
Register today: ALS.org/Nexus

Thank you Peyton Galyean for helping us fight #ALS !

Join Kelly Buckland, Disability Policy Adviser at the U.S. Department of Transportation, for our upcoming webinar to learn how you can help make air travel more accessible.
Register here: bit.ly/ALSAirTravelWe…

We commend Amylyx for pulling Relyvrio off the market, while still ensuring that people living with ALS can access the drug if they believe it is helping them. ALS is a fatal and heterogenous disease with few treatment options, and creative solutions are needed. We believe the

ALS can run in families. Learn more about familial #ALS and genetic testing on our website: bit.ly/Familial-ALS

Lobbying legislators about the critical needs of people living with #ALS , their families, and caregivers is one of the keys to making ALS a livable disease until we can cure it. We took to the Hill this month to do just that. Learn more: bit.ly/take-action-on…

#ALS Advocacy