Thank you Mike Quigley Jeff Fortenberry Senator Chris Coons Sen. Lisa Murkowski. 🙏♥️ You've brought hope and are driving change with the needed urgency that will save countess families the extreme suffering and devastation of #ALS. #ALSchampions

Thank you Senator Jacky Rosen for joining us in the fight of our lives. We are so grateful for Senators who can hear our stories & take action so that we can change our story's endings. #ACT4ALS

Roberto with #ALS moving hand for 1st time in 18 mos after ONLY 3 doses of #NurOwn in #ExpandedAccess. Finger function would allow me mouse clicking on computer & control of wheelchair. What would more treatment do? U.S. Senator Bill Cassidy, M.D. John Kennedy, tell FDA Biologics #ApproveNurown

Please join the 315 bipartisan House #ACTforALS cosponsors. Cosponsor Senate companion bill, S.1813. Senate HELP Committee GOP HELP Committee Dems Senator Patty Murray Richard Burr Bob Casey Senator Tim Scott Mitt Romney Senator Ben Ray Luján Tina Smith Sen. Maggie Hassan Tim Kaine Chris Murphy 🟧 Sen. Tammy Baldwin

ALS IS NOT RARE! The lifetime risk of horrific & 100% fatal #ALS is ONLY 1 in 300 & INCREASING. Senator Patty Murray Sen. Maria Cantwell, Kristen & her loved ones are constituents & are asking for your support. Cosponsor lifesaving bipartisan #ACTforALS, S.1813. Steve Gleason - "Live Impossible"

If you're wondering where the The ALS Association leadership is while we're fighting for our lives every second of every day, the answer is the same as it has been for years... Nowhere to be found. #AbandonedByALSA #AllTalkNoACTION #NurownWorks #ACTforALS #PromisingPathwayAct

She is faith, hope and courage. My friend Robin Ramos. Always there with an encouraging word, a sunny smile and a message of hope. #ALS hasn’t shaken Robin’s faith. It has deepened it. Robin is dying. Waiting for the cure. Every moment. Robin’s light matters. #Monday

Drop foot in left worse than rt.Legs wasted.Can’t walk w/o help.Left hand like skeleton.Rt hand & left forearm wasting.Weak core.W/o your help @senrobportman Sherrod Brown I will have to stop working & go on social security. Medicare or Medicaid. Day 20 begging for our lives.

WOW. Zoom calls w 32 yo Josh & his mom Smithstrongmom since last summer. Zoomed this morning & his voice is sooooo much improved! What's changed? Josh just got his 3rd & last dose of #NurOwn #EAP FDA must approve NurOwn NOW! #LivingProof #NurOwnWorks Pat Toomey (US Sen. ret.) Pat Toomey

"YOU HAVE POWER! Your power is your voice! Your voice is writing a letter, making a phone call,..." "This president and this congress have got to know that this is a priority." #EndALS I hope legendary AIDS activist Larry Kramer inspires you too. youtu.be/vIQDlW7UtzI

My heart breaks for Lori. She lost both her twin girls to #ALS. Their memory inspires the community, but the FDA can help keep their legacy alive. @RepAnnaEshoo Rosa DeLauro Jan Schakowsky Rep. Kim Schrier, M.D. Lori Trahan Rep. Lizzie Fletcher @PeterWelch Archived: U.S. Rep Kathleen Rice ARCHIVE: Congresswoman Ann McLane Kuster

Thank you Richard Blumenthal for sponsoring #S1813 to give Alex & 30k Americans the same access to drugs in clinical trials that cancer patients get via FDA's #ExpandedAccess program Your support gives them a chance to have more years of their one of a kind love! #DrugsinBodies

Met w Tom Pfeiffer of Pat Toomey (US Sen. ret.)'s office today re #S1813 & #NurOwn. As Ranking Member of Senate ALZ Caucus, his staff understood neurodegenerative diseases & had some of most relevant questions we've had in 100s of meetings re #ALS We need Pat Toomey's leadership! #ActforALS

Thank you Mike Quigley Thank you for standing up for us, standing with us. We are so grateful for your leadership. #ACT4ALS

Check here to see if your Senator is supporting #ACT4ALS, #S1813 … if not reach out and ask why?

Army veteran & Michigan resident dies of 100% fatal #ALS at 47 denied safe/effective treatment. #NurownWorks #DiedWaiting Sen. Debbie Stabenow Senator Gary Peters, join the 315 bipartisan House #ACTforALS cosponsors. Cosponsor Senate companion bill, S.1813. #EndALS obits.mlive.com/us/obituaries/…

Ethan deserved a chance to live U.S. FDA FDA Biologics. #NurownWorks #FDAfailedALS Richard Burr U.S. Senator Bill Cassidy, M.D. @SenatorBraun Rand Paul Sen. Susan Collins Senator Tim Scott Mitt Romney Coach Tommy Tuberville Senator John Hickenlooper @RepAnnaEshoo @RepJohnCurtis Brett Guthrie Sen. John Barrasso @SenatorBraun

Washington has 11 ALS Clinic(s), 19 DoD sites, and 510,709 Veterans. There are 47,521 post-Gulf War Veterans, which are at 4x to 10x risk of ALS. Will you support #S1813 #Act4ALS? Senator Patty Murray ? Sen. Maria Cantwell ? I'm available to discuss.

Oklahomans are grateful to Senator Sen. Jim Inhofe for sponsoring #S1813 the #ACTforALS. As the Ranking Member of Senate Armed Services Committee, his support also helps #Veterans w #ALS who have up to 10x risk of ALS, including the pilots at #AltusAFB Military Times Air Force Times

Thank you Senator Roger Wicker’s office for meeting w/members from the ALS community today & leaning in to better understand how ALS plagues Veterans at a higher rate.You can help those battling ALS, a service related disease, by sponsoring #S1813 #ACT4ALS. Are you in?