EverythingALS
@everything_als
We are a patient-focused non-profit bringing technological innovations and data science to support efforts, from care to cure, for people with ALS.
ID: 1250608194067460096
http://www.everythingals.org 16-04-2020 02:14:03
1,1K Tweet
2,2K Followers
811 Following
Halle Tecco MBA, MPH
@halletecco
✨Healthcare optimist✨
blu sanders
@blusanders
I wrote a book about ALS and a Chevrolet. Find it, music, photos, and more at the link below.
Shooeylou
@shooey
Observer, I have strong opinions !! Canadian living in the land of the free! I bleed blue Go Leafs Go
Tammi Hammerot Smith
@tammi65
Love and enjoy life! :-) Diagnosed with ALS 08/23/2019. Fighting to live, fighting for treatment or a cure. Animal rescue and flowers are my passion. 🐕🐾🐈🌻🌷
Richard Sperry
@richardsperry
Husband | Father of 3 daughters | Philly sports fan and Sevillista | Spain enthusiast
Sheena Chew, MD
@sheenachew
Dedicated to taking care of and developing treatments for people with ALS | @MGHneurology and @Harvardmed | Tweets my own
Mr. Statistician Face Man
@tomhaberstroh
✍️ TomTheFinder.com substack and @YahooSports | 📺 @trailblazers analytics insider | 🍽️ @PackKnives/@countthedings | 💪🏼 @Hoops4ALS
ALS Advocacy
@alsadvocacy
ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
Emily Kramer-Golinkoff
@emilykg1
Co-Founder @EmilysEntourage, Patient Advocate/Speaker, Bioethicist, Digital Health Enthusiast, To-Do List Writer
Lori Hermstad
@lorihermstad
Tragically lost my twin daughters my whole world to the beast #ALS..eternally 17 and 26~forever loved! #jacifusen youtube.com/watch?v=Lq6qot…
Mark Defund The ALSA
@ml1969
I’m a 56 year old man living with ALS. I am a conservative!!! I will defend my 2A right. #MAGA #KAG 🚫 DM 🧑🏼🦽Great to be Gen X!
Kelsie Snow
@kelsieswrites
Storyteller, writer, podcaster @sorryimsadpod, ALS advocate, widow, mom, dual citizen (🇨🇦🇺🇸). Instagram & TikTok: kelsieswrites
PTC Therapeutics
@ptcbio
PTC is a patient-centered biopharmaceutical company focused on discovering, developing & commercializing medicine for patients with rare disease
Verified
@verified
Individuals can get a blue checkmark with @Premium. Organizations can sign up for Verified Organizations here: x.com/i/verified-org…
ALS Uncensored 🏴☠️
@scottsfight
Scott Craig. ALS Uncensored podcast. Digital Artist. AI Student. Typing with my eyes. Living Impossible! #ALSUncensored #ALS #EyeGazeArtist #AI #IWriteALS
Yoni - יוני (and Rebecca too)
@primary_immune
Human. Jew. Israeli. הודו לה' כי טוב כי לעולם חסדו Closed on Shabbat
Andy Benton
@abentonski
Advocate for #ALSawareness to ultimately #endALS.
JoPeKim
@jopekim
Chief Strategy Officer | Imagineering the Future of Research Automation | Creatively making sense of things
Steve Rodriguez
@steverodz1
I'm a neuroscientist working to understand the molecular underpinnings of neurodegenerative diseases. Opinions are my own.
Sandra Abrevaya
@sabrevaya
Wife to @bsw5020. Mama. Caregiver. CEO @synapticure providing medical care for Alzheimer’s, Parkinson’s and ALS. Co-founder @iamalsorg. EP @noc_film.
Cure Parkinson's
@cureparkinsonst
We’re here for the cure. Cure Parkinson’s is working with urgency to find new treatments to slow, stop and reverse Parkinson’s.
Guðjón Sigurðsson
@gaui_mnd
FDA Biologics
@fdacber
Latest information from the Center for Biologics Evaluation and Research. Contact us at 1-800-835-4709 or [email protected]. fda.gov/privacy
Andrea Lytle Peet
@andrealytlepeet
Urban/sustainability planner. Triathlete. Diagnosed with ALS at 33. New mission: raise money and awareness for a cure.
Girl Travelin Alone
@cathystandish
MND NW London
@mnd_nwlondon
North West London branch of the MND Association. Supporting people with MND, their families and carers, in the area. Tweets by @sarahezekiel.
Seth Poling
@sethpoling10
Wild & Wonderful WV. FSU grad. Married to @erika_poling , Father to Liam & Bayler, ALS Warrior & advocate. #EndALS Founder of @project_seth
Mayuri Om Saxena
@mayuri_saxena
40yo living with ALS on Life support. Author. Creative Director. Advocate. Dreamer. Public Servant. ALSFRS 1/48 linktr.ee/mayurisaxena
Beth Frates MD
@bethfratesmd
Associate Professor @HarvardMed, Author, Speaker, Coach, Award Winning Teacher, Alum @Harvard + @StanfordMed, Founder @pavingwellness
Brigance Brigade Foundation
@brigancebrigade
Founded by Chanda and @OJBrigance, the Brigance Brigade Foundation equips, encourages and empowers people living with #ALS.
Irina
@irina_m_lewis
Avid outdoors person and advocate for those with ALS (Lou Gehrigs) and other neurological diseases.
Victorine Obenson
@obensonfam
Love , compassion and friendship. MND warrior. wife, mom, daughter, sister and friend
Kylan Morris
@kylanmorris1
ALS Patient Advocacy | @sandymorris333🌻
Jamie Smith
@jamielw8
Mother I Widow I Pediatric Respiratory Therapist Fighting for reform in health care and research for ALS.
Envisagenics
@envisagenics
RNA Splicing Analytics + Artificial Intelligence for Drug Discovery
Susan Sackett
@sl_sackett
Privileged to be a daughter of Christ, wife to the best husband, and mom to 4 amazing children. Happen to be living with ALS and praying for a cure.
BrainGate Team
@braingateteam
A consortium of clinicians, scientists, and engineers developing brain-computer interfaces to restore movement and communication for people with paralysis
Candace
@rarecandace
“Weaponized Patient Advocacy” 😎 Platelet assassin. On a soapbox for Specialty Pharmacy and drug development. @ITPresearch 🇺🇸🇮🇱 #RareNOTless #FIXIT
Hande Ozdinler
@drozdinler
Neuroscientist, Scientist, Mother, Poet, Press member, Inventor of OzdinART Our research will help end ALS, HSP and PLS.
Lee Millard
@onein300
1/300 is the lifetime risk of developing #ALS #MND. My living with Motor Neurone Disease blog.
ALS TX DAD
@alsdads
Effie Parks
@onceuponagene
Rare Disease Advocate | Award Winning Podcaster | Speaker | Captain Connection | RareMama to my sweet, Ford, who lives with #CTNNB1 🦓
I AM ALS
@iamalsorg
I AM ALS is a patient-led movement revolutionizing how to end disease with our sights set squarely on ALS.
Sarah Nauser
@sarahnauser
Dominating ALS one day at a time since 2018. Retired Police Officer. “Love the life you live and live the life you love” Go Royals! 💙#FightLikeAGirl
Scott Holzapfel
@holzapfelscott
Husband,Father, Sports fiend. I have ALS, but it doesn't have me.
Shah Minokadeh, M.D.
@minoshah
Anesthesiologist -Johns Hopkins Hospital Pain Management -UC San Diego Now battling ALS & FDA regulatory rigidity for 100% fatal ALS
Thurman
@thurmantough
I’m a very competitive person and with ALS makes the game that much more interesting.
Modality.AI
@modalityai
Dr. Nadia Sethi
@nadia_sethi
ALS we are coming for you. Widowed by ALS and still fighting it.
AZ Latina ☮️🌊🟦
@avoice4als
Advocate for Amyloidosis, ALS & Rare Diseases. Enviro Justice, Foster Care & Gun Safety. Love LA sports. @EndRareDiseases on bsky
biggMoe_effALS
@biggmoe_effals
NOT TODAY ALS.. NOT TODAY. brother diagnosed with ALS at 27. ADVOCATING&FIGHTING for all pALs
Traci MacLean
@traci_maclean
Onni
@onni68879684
Als fighter #iamals Soon in heaven because of one of the worst disease in the world @ARSLA75 is useless 😔
Sebastian
@sebasti96581646
Remedio para ELA
Jack Deegan
@jackdeegs
Jack
@jack54786896
I’m on team end all MNDs like ALS, PLS, PMA, and SMA. Let’s get NU-9 and AMZ0035 out their for those battling this brutal disease and get cures for other MNDs
David Taylor
@vpresearch_als
ALS Canada VP, Research. Passionate ALS research nerd since 2001. Science brain, advocate heart. Opinions are my own. he/him
T Bertamini
@tbertcdn
Fighter at ALS (Lou Gehrig’s Disease).
Let's Kick Some ALS
@letskicksomeals
I have ALS. Move forward w/a positive attitude. Love my wife & 4 kids to the end of the Earth. Beat cancer at 21. Time to beat this devastating illness! USC '90
Sandra W. Marlowe
@sandrawmarlowe
Married to the love of my life. Christ follower. Mom of five. Mimi to 14! Entrepreneur. Diagnosed with Bulbar ALS 3/30/2020. Fighting to live.
Neuro Rehab Times
@editornrtimes
NR Times, the neurorehabilitation platform covering brain and spinal injuries and neuro conditions from every angle. Sign-up & subscribe online.
Chan Zuckerberg Initiative
@chanzuckerberg
We're a new kind of philanthropy that builds tech and partnerships to accelerate progress in science, education and create a thriving California Bay Area.
Chris Snow
@chrissnowcgy
Husband & Dad | Walking science experiment | Determined to beat ALS & win a Stanley Cup | Citizen of both 🇺🇸🇨🇦 | Assistant General Manager, Calgary Flames
Neuralink
@neuralink
Creating a general-purpose, high-bandwidth interface to the brain
Clay Newcomb
@claynewcomb4
Mandi
@runningmama0522
Brian Wallach
@bsw5020
Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.