Emily Kramer-Golinkoff (@emilykg1) 's Twitter Profile
Emily Kramer-Golinkoff

@emilykg1

Co-Founder @EmilysEntourage, Patient Advocate/Speaker, Bioethicist, Digital Health Enthusiast, To-Do List Writer

ID: 28090812

linkhttp://www.emilysentourage.org calendar_today01-04-2009 11:48:12

5,5K Tweet

1,1K Followers

542 Following

Emily Kramer-Golinkoff (@emilykg1) 's Twitter Profile Photo

One thing I've missed most while I've been in seclusion for 4.5 yrs is: conferences. Going to them, learning and speaking at them... "Away from all that needs to be maintained, I tend to the generative." My Secret to Creative Rejuvenation? Conferences. nytimes.com/2024/05/21/mag…

Emily Kramer-Golinkoff (@emilykg1) 's Twitter Profile Photo

You can get used to almost anything but it is the constant changing, the constant progression that Brooke Eby so perfectly describes that is the hardest part for me in my experience with CF. usatoday.com/story/life/hea…

Emily Kramer-Golinkoff (@emilykg1) 's Twitter Profile Photo

“You have to learn to walk the fine line between hope without expectation. As soon as you start expecting something, the disappointment is so much more ferocious.” - Dana Reeve in Superman On Film Christopher & Dana Reeve Foundation

Emily Kramer-Golinkoff (@emilykg1) 's Twitter Profile Photo

"When you’re adrift at sea, you don’t ruminate over how the rowboat might sink; you simply climb in." - On evaluating risk when you're contending with a fatal illness. statnews.com/2025/07/18/sar…

Emily Kramer-Golinkoff (@emilykg1) 's Twitter Profile Photo

When the physician becomes the patient—everything changes. A beautiful article about when your clinical expertise ends up hitting frightfully close to home. news.cuanschutz.edu/cancer-center/… via @gotosage CU Cancer Center

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“One of the hardest things about being a founder is you never have the space to absorb the greater lessons. You’re just in motion. So to stop for a sec & have a little bit of reflection was actually quite valuable.” -Nirav Tolia Nextdoor How I Built This podcasts.apple.com/us/podcast/how…

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"For my whole life, I've tried to be good, to be a good student & a good sister & a good daughter, & to protect my mother & never make her upset or angry. Now I've added a new tragedy to her life, to our family’s life &there’s nothing I can do to stop it." newyorker.com/culture/the-we…

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I relate to so much of this so deeply | A beautiful, moving tribute to what seems like a remarkable person. statnews.com/2025/12/22/ada… via Andrew Joseph

Emily Kramer-Golinkoff (@emilykg1) 's Twitter Profile Photo

Unbelievable piece about risk, drive, and the complicated decisions we make about how to live. washingtonpost.com/world/interact…