Differently abled is the new black.

Good night moon.

I won!!!!!!!!!!!! Thank you babe 😘😘

If you think your parenting days are over because you’re an empty nester… since ALS struck at 37, I have never needed my parents more and they are holding me in the palm of their hands.

Tonight, at 43, I texted them, “you are the best mommy and daddy in the universe.” ❤️❤️

So proud of Dan Tate today and every day. Wonderful to see him receiving this recognition for his work ❤️❤️

bryceharlow.org bryceharlow.org/awards-celebra…

If you are living with a neurodegenerative disease or are caring for someone who is, I have a question for you: If you have not tried Synapticure, why not when everyone who has tried it loves it.

Thank you to the amazing The White House team for making this possible ❤️❤️❤️

Month of Care begins with powerful ⁦The White House⁩ Proclamation on Care Workers Recognition Month, 2024

Read every word. #CareCantWait
whitehouse.gov/briefing-room/…

🌟 Leading the Way in Cutting-Edge #Neurodegenerative Care!

🧠💡 Synapticure is urgently addressing care gaps through telehealth, bringing specialized expertise directly to patients and caregivers.

Read more: vist.ly/txv3

Importantly...

1) It was from the Reno airport, filled people playing slot machines

2) We were with our 6 and 8 year old daughters

3) I told Brian to book our flights and this is what he picked

ALS has clearly not affected his adulting skills 🤪

The second half of today’s miracle was that I got to ski with my daughters, who have turned into incredible skiers.

Good night moon.

Today, a small miracle happened. Seven years after my symptom onset, I skied. No matter what your day is like, get ready to smile.

I want to give a huge thank you to Paulette who moved mountains to make today happen and SkiHeavenly for an amazing day.

DON’T MISS: FTP founding partner Dan Tate will receive the 2024 Business Government Relations Award at the 43rd Annual Bryce Harlow Fdtn. Awards.

Click the link to register now: bit.ly/3IvuN3o

ALS advocacy in the exact format that we endorsed. The first time I met Brian and Sandra I knew I liked the I AM ALS organization for its “patient-led” format and commitment. I stand by them and support them. I love what they did with Synapticure and the mission.

As promised, here is a thread to help set the record straight with regard to what happened with Relyvrio. I will add to this thread over time but I wanted to start with two particularly concerning narratives.

Brian Wallach Thank you both and IAA for your relentless fight for awareness, change, and dedication to making 'good trouble.' To the naysayers and critics who failed to look at the 'big picture' of your #ALS mission, they hopefully will now understand advocacy!

Incredibly proud of I AM ALS & the truly revolutionary work done. Brian Wallach & Sandra Abrevaya = EXTRAORDINARY people I get to call true friends. We’re going thru hell together but doesn’t mean we can’t laugh & find moments of joy. 🎊 to the all volunteers/staff who work so hard u 🪨!

'You guys have given him hope. You've given him a new lease on life.” - Caregiver to Synapticure patient

We are so proud to support patients and caregivers on their #mentalhealth journey. Your bravery and resilience inspire us every day🌟

📽️Full video: youtube.com/watch?v=CJxj_8…

Kudos to Synapticure for listening and responding to the #mentalhealth concerns of people living with a #neurological disease. Enjoyed your panel yesterday! #changemakers Brian Wallach #HealthcareHeroes

NBC: Biden cancels nearly 6 billion in student debt for 78,000 public service workers nbcnews.com/politics/white…

Families fighting Parkinson’s and ALS together, finding moments for joy and laughter. Thank you for this alliesiggy ❤️❤️