biggMoe_effALS (@biggmoe_effals) 's Twitter Profile
biggMoe_effALS

@biggmoe_effals

NOT TODAY ALS.. NOT TODAY. brother diagnosed with ALS at 27. ADVOCATING&FIGHTING for all pALs

ID: 1265349596596908040

calendar_today26-05-2020 18:30:50

2,2K Tweet

526 Followers

477 Following

Target ALS (@targetals_fdn) 's Twitter Profile Photo

#FactFriday | The incidence of ALS is five times higher than Huntington's disease and about equal to multiple sclerosis. Source: Johns Hopkins Medicine #ALS #Huntingtons #MS #ALSResearch #EndALS #DidYouKnow

biggMoe_effALS (@biggmoe_effals) 's Twitter Profile Photo

⭐️Tonys (dx w #ALS at 27) been cheering for Dallas Cowboys since diapers! DEAR Dak Prescott: your support helps Tony, Sarah Nauser, axeALSFoundation, & all suffering #pALS strength to fight for treatment like #NurOwn #NurOwnWORKS 🙏🏽PLEASE ⬇️Sign Petition bit.ly/3gQZaHp & RT

Shah Minokadeh, M.D. (@minoshah) 's Twitter Profile Photo

21-year-old Jonathan has #ALS. As the incidence of 100% FATAL #ALS keeps increasing & younger and younger people are afflicted, will #Congress fight to end the regulatory RIGIDITY of the FDA Biologics & Dr. Robert M. Califf? ALS IS NOT RARE. Don't wait for #ALS to enter your life to ACT.

21-year-old Jonathan has #ALS.

As the incidence of 100% FATAL #ALS keeps increasing &amp; younger and younger people are afflicted, will #Congress fight to end the regulatory RIGIDITY of the <a href="/FDACBER/">FDA Biologics</a> &amp; <a href="/DrCaliff_FDA/">Dr. Robert M. Califf</a>? 

ALS IS NOT RARE.  Don't wait for #ALS to enter your life to ACT.
AZ Latina ☮️🌊🟦 (@avoice4als) 's Twitter Profile Photo

Hey #CowboysNation Diehard #Cowboys fan has #ALS This #GirlDad watched friends get trial drug that halted their paralysis. Tony needs #NurOwn so he can keep telling his 4 girls he loves them ⬇️RT & Sign to ask #FDA to help bit.ly/3gQZaHp Emmitt Smith Dak Prescott #DemBoys

Hey #CowboysNation 
Diehard #Cowboys fan has #ALS

This #GirlDad watched friends get trial drug that halted their paralysis. Tony needs #NurOwn so he can keep telling his 4 girls he loves them

⬇️RT &amp; Sign to ask #FDA to help
bit.ly/3gQZaHp

<a href="/EmmittSmith22/">Emmitt Smith</a> <a href="/dak/">Dak Prescott</a> 
#DemBoys
AZ Latina ☮️🌊🟦 (@avoice4als) 's Twitter Profile Photo

Congrats on TD! Thx Tee Higgins⁵ for choosing #AxeALS for #MyCauseMyCleats Eric got #NurOwn trial & it slowed his #ALS paralysis. He needs more. ⬇️Sign & RT petition asking #FDA to let axeALSFoundation testify at public hearing. bit.ly/3gQZaHp BENGALS TALK 🗣 Cincinnati Bengals

Congrats on TD!
Thx <a href="/teehiggins5/">Tee Higgins⁵</a> for choosing #AxeALS for #MyCauseMyCleats

Eric got #NurOwn trial &amp; it slowed his #ALS paralysis. He needs more. 

⬇️Sign &amp; RT petition asking #FDA to let <a href="/stevens_nation/">axeALSFoundation</a> testify at public hearing.
bit.ly/3gQZaHp

<a href="/BengalsTalk/">BENGALS TALK 🗣</a> <a href="/Bengals/">Cincinnati Bengals</a>
AZ Latina ☮️🌊🟦 (@avoice4als) 's Twitter Profile Photo

21 yo Kade has #ALS & was FAST progressor In #NurOwn P3 in 2019. None since. Today Kade ▪️Eats what he wants ▪️No feeding tube ▪️Sleeps flat ▪️No bipap Kade & his Mayo Clinic Neuro deserve chance to share evidence that #NurOwnWorks Kade's mom's advice: "Sit down & listen"

21 yo Kade has #ALS &amp; was FAST progressor
In #NurOwn P3 in 2019. None since.

Today Kade
▪️Eats what he wants 
▪️No feeding tube
▪️Sleeps flat
▪️No bipap

Kade &amp; his <a href="/MayoClinicNeuro/">Mayo Clinic Neuro</a> deserve chance to share evidence that #NurOwnWorks 

Kade's mom's advice: "Sit down &amp; listen"
Sandra Abrevaya (@sabrevaya) 's Twitter Profile Photo

We are hitting the road again!! Join us and if you want updates on where we are screening next, sign up for emails at noordinarycampaign.com Looking forward to continuing to bring more people into the fight!!!

We are hitting the road again!! Join us and if you want updates on where we are screening next, sign up for emails at noordinarycampaign.com

Looking forward to continuing to bring more people into the fight!!!
AZ Latina ☮️🌊🟦 (@avoice4als) 's Twitter Profile Photo

Lifelong #Bengals fan needs help Josh has fatal #ALS #NurOwn halted his paralysis but he needs more Tell Congress that FDA must let Josh & his #Neurologist testify how #NurOwnWorks bit.ly/ALS_Congress #WhoDey #RuleTheJungle #WhoDeyNation #CINvsBUF #CincinnatiBengals

Lifelong #Bengals fan needs help

Josh has fatal #ALS 
#NurOwn halted his paralysis but he needs more

Tell Congress that FDA must let Josh &amp; his #Neurologist testify how #NurOwnWorks

bit.ly/ALS_Congress

#WhoDey #RuleTheJungle #WhoDeyNation #CINvsBUF #CincinnatiBengals
AZ Latina ☮️🌊🟦 (@avoice4als) 's Twitter Profile Photo

RT #CowboysNation Sarah Nauser has fatal #ALS Her #FightLikeAGirl campaign inspired Dak Prescott Sarah deserves to live Tell Congress that FDA must let #neurologists testify how #NurOwn slows paralysis ➡️bit.ly/ALS_Congress #SarahsSoldiers #Cowboys #DALvsSF #DallasCowboys

RT #CowboysNation 
 
<a href="/SarahNauser/">Sarah Nauser</a> has fatal #ALS
Her #FightLikeAGirl campaign inspired <a href="/dak/">Dak Prescott</a>

Sarah deserves to live
Tell Congress that FDA must let #neurologists testify how #NurOwn slows paralysis

➡️bit.ly/ALS_Congress

#SarahsSoldiers 
#Cowboys #DALvsSF 
#DallasCowboys
AZ Latina ☮️🌊🟦 (@avoice4als) 's Twitter Profile Photo

RT - Lifelong #DallasCowboys fan, Tony got fatal #ALS at 27 yrs old This #GirlDad needs #NurOwn so he can keep telling his 4 girls he loves them Tell FDA to let people testify re how #NurOwnWorks bit.ly/ALS_Congress #CowboysNation #DALvsSF #Cowboysvs49ers Emmitt Smith

RT - Lifelong #DallasCowboys fan,
Tony got fatal #ALS at 27 yrs old

This #GirlDad needs #NurOwn so he can keep telling his 4 girls he loves them

Tell FDA to let people testify re how #NurOwnWorks
bit.ly/ALS_Congress

#CowboysNation #DALvsSF 
#Cowboysvs49ers 
<a href="/EmmittSmith22/">Emmitt Smith</a>
Shah Minokadeh, M.D. (@minoshah) 's Twitter Profile Photo

41-year-old firefighter Matt died of #ALS leaving behind his wife & 2 young children. FDA Biologics MUST end its CRUEL regulatory RIGIDITY for 100% FATAL #ALS. #Congress, DEMAND an #AdComm hearing to allow #RealWorldEvidence of #Nurown efficacy shared publicly. #NurownWorks #EndALS

41-year-old firefighter Matt died of #ALS leaving behind his wife &amp; 2 young children.

<a href="/FDACBER/">FDA Biologics</a> MUST end its CRUEL regulatory RIGIDITY for 100% FATAL #ALS.

#Congress, DEMAND an #AdComm hearing to allow #RealWorldEvidence of #Nurown efficacy shared publicly.

#NurownWorks #EndALS
Nicole Cimbura (@nicolecimbura) 's Twitter Profile Photo

“It will take multiple therapies to make ALS a treatable disease” Cimbura said. “With the recent approval of AMX0035 [Amylyx’s Relyvrio ], review of tofersen … and now NurOwn, we can be on our way to that goal.” biospace.com/article/brains…

No More Excuses ALS Watchdogs! (@als_now) 's Twitter Profile Photo

Had you been part of a credible, *unbiased* #ALS organization (instead of speaking like a child while your job is to help dying people), maybe you could have. My, how things have changed in #ALS' leadership. Thankfully. #endals Kuldip Dave The ALS Association STAT #NUROWN

Had you been part of a credible, *unbiased* #ALS organization (instead of speaking like a child while your job is to help dying people), maybe you could have. My, how things have changed in #ALS' leadership. Thankfully.
#endals <a href="/TheKuldipDave/">Kuldip Dave</a> <a href="/alsassociation/">The ALS Association</a> <a href="/statnews/">STAT</a> #NUROWN
Phil Green (@pjgreen) 's Twitter Profile Photo

As someone who participated in the BrainStorm #NurOwn trial and received six additional treatments under EAP, I am excited to share my firsthand experience at the upcoming U.S. FDA AdComm. The biomarker data fully supports the benefits that I felt while on treatment.