biggMoe_effALS
@biggmoe_effals
NOT TODAY ALS.. NOT TODAY. brother diagnosed with ALS at 27. ADVOCATING&FIGHTING for all pALs
ID: 1265349596596908040
26-05-2020 18:30:50
2,2K Tweet
526 Followers
477 Following
#FactFriday | The incidence of ALS is five times higher than Huntington's disease and about equal to multiple sclerosis. Source: Johns Hopkins Medicine #ALS #Huntingtons #MS #ALSResearch #EndALS #DidYouKnow
⭐️Tonys (dx w #ALS at 27) been cheering for Dallas Cowboys since diapers! DEAR Dak Prescott: your support helps Tony, Sarah Nauser, axeALSFoundation, & all suffering #pALS strength to fight for treatment like #NurOwn #NurOwnWORKS 🙏🏽PLEASE ⬇️Sign Petition bit.ly/3gQZaHp & RT
ALS IS NOT RARE. Could you/your loved one be next? #NurOwnWorks #NoAdComNoVoice #EndALS Dr. Robert M. Califf @RepAnnaEshoo Jan Schakowsky Brett Guthrie CathyMcMorrisRodgers Mike Quigley FDA Biologics @repmullin Rosa DeLauro @SenatorBraun Sen. Lisa Murkowski Michael Burgess, MD @RepJohnCurtis
21-year-old Jonathan has #ALS. As the incidence of 100% FATAL #ALS keeps increasing & younger and younger people are afflicted, will #Congress fight to end the regulatory RIGIDITY of the FDA Biologics & Dr. Robert M. Califf? ALS IS NOT RARE. Don't wait for #ALS to enter your life to ACT.
Hey #CowboysNation Diehard #Cowboys fan has #ALS This #GirlDad watched friends get trial drug that halted their paralysis. Tony needs #NurOwn so he can keep telling his 4 girls he loves them ⬇️RT & Sign to ask #FDA to help bit.ly/3gQZaHp Emmitt Smith Dak Prescott #DemBoys
Congrats on TD! Thx Tee Higgins⁵ for choosing #AxeALS for #MyCauseMyCleats Eric got #NurOwn trial & it slowed his #ALS paralysis. He needs more. ⬇️Sign & RT petition asking #FDA to let axeALSFoundation testify at public hearing. bit.ly/3gQZaHp BENGALS TALK 🗣 Cincinnati Bengals
21 yo Kade has #ALS & was FAST progressor In #NurOwn P3 in 2019. None since. Today Kade ▪️Eats what he wants ▪️No feeding tube ▪️Sleeps flat ▪️No bipap Kade & his Mayo Clinic Neuro deserve chance to share evidence that #NurOwnWorks Kade's mom's advice: "Sit down & listen"
Matthew Perrone the following people would make for an amazing story. Please hear them Elizabeth McCormick End ALS Now @ThurmanTough Mitze Klingenberg BSN, RN Kandy Simons axeALSFoundation Smithstrongmom it’s the story nobody is telling. Also please talk to Matt Bellina. #Nurownworks.
RT #CowboysNation Sarah Nauser has fatal #ALS Her #FightLikeAGirl campaign inspired Dak Prescott Sarah deserves to live Tell Congress that FDA must let #neurologists testify how #NurOwn slows paralysis ➡️bit.ly/ALS_Congress #SarahsSoldiers #Cowboys #DALvsSF #DallasCowboys
RT - Lifelong #DallasCowboys fan, Tony got fatal #ALS at 27 yrs old This #GirlDad needs #NurOwn so he can keep telling his 4 girls he loves them Tell FDA to let people testify re how #NurOwnWorks bit.ly/ALS_Congress #CowboysNation #DALvsSF #Cowboysvs49ers Emmitt Smith
41-year-old firefighter Matt died of #ALS leaving behind his wife & 2 young children. FDA Biologics MUST end its CRUEL regulatory RIGIDITY for 100% FATAL #ALS. #Congress, DEMAND an #AdComm hearing to allow #RealWorldEvidence of #Nurown efficacy shared publicly. #NurownWorks #EndALS
Had you been part of a credible, *unbiased* #ALS organization (instead of speaking like a child while your job is to help dying people), maybe you could have. My, how things have changed in #ALS' leadership. Thankfully. #endals Kuldip Dave The ALS Association STAT #NUROWN