.FDA Biologics Secretary Kennedy Dr. Marty Makary, 113 DAYS you've had our Nurown Citizens petition=SILENCE Nothing more difficult than ALS appts when you see progression even when there is almost nothing left. NO HOPE WHILE THE #FDA DRAGS ITS FEET It doesn't seem like #FDA leadership is

Brooke and Della. Della and Brooke. These remarkable women participated in the ALS walks and dedicated their hearts and voices to spreading humor, awareness, and hope. How lucky I was to have had a moment when their kindness and strength touched my life. If you haven't heard,

When you have ALS, your motor neurons may degenerate, but your style never has to! So, if you need adaptive clothing (or not) AND support Team Gleason, be bold. Shop the Brooke Eby collection because everyone who is everyone knows Brooke has style for miles. Check out the cute

Another crybaby liberal can’t handle facts!

What if, long ago, during Lou Gehrig's era, there had been a cure for #ALS? Brooke is right. Life is full of what-ifs. #fridaymorning Live Like Lou Brooke Eby Her ALS Story

What about ALS therapy, NurOwn? Secretary Kennedy Vinay Prasad MD MPH Dr. Marty Makary Donald J. Trump

Thank you, LeSean McCoy, for staying dedicated to the fight against ALS in honor of your grandmother. Hopefully, soon, scientists will discover the weakest link in the motor neurons and develop a cure for #ALS. If only they had a treatment in 2010. 🌹 foundation.leseanmccoy25.com

Secretary Kennedy Vinay Prasad MD MPH Dr. Marty Makary What is so hard about approving an effective for some, proven safe therapy for patients w/a 100% fatal disease, with no real options? WE NEED NurOwn NOW!! Mark Defund The ALSA Vita Kalinsky Shah Minokadeh, M.D. No More Excuses ALS Watchdogs! I AM ALS U.S. FDA Seek the real truth!

Nancy Ryder fought against ALS for six years and lost her battle in 2020. Let us never forget her; she was the Queen of TEAM NANCY. Read more about her at hollywoodreporter.com/news/general-n….

Sometimes, when my widow's world feels lonely, I imagine what it would be like if my husband hadn't been diagnosed with ALS and had been here to walk our daughter down the aisle at her wedding last year. Please take a moment to reflect on this. It’s Monday. For all the dads

After losing her dad to the “Old Man’s Disease,” my daughter didn’t have him to walk her down the aisle. Now imagine being that dad who loses his daughter to the same disease and not being able to see her walk down the aisle. The sorrow of #ALS is unimaginable. No parent should

“We must keep the names alive - for the world forgets faster than we die.’ -Gertrude Kolman 🪖 Andre Williams and Larry Ujhely were Veterans who bravely fought for our freedom, our country. May their battles against ALS never be forgotten. Andre passed in 2017. Larry in 2023.

What about stem cells for ALS? Come on, MAKE IT HAPPEN!! Shah Minokadeh, M.D. Nick Dyer Vita Kalinsky juan Rain Consulting Group Mark Defund The ALSA Matthew Bellina Dr. Marty Makary HHS Donald J. Trump U.S. FDA Greg Heydet Sr No More Excuses ALS Watchdogs! Project ALS No More Excuses ALS Watchdogs! Vinay Prasad MD MPH Racing for ALS #nurownworks

Craig Reagan Shah Minokadeh, M.D. Nick Dyer Vita Kalinsky juan Rain Consulting Group Mark Defund The ALSA Matthew Bellina Dr. Marty Makary HHS Donald J. Trump U.S. FDA No More Excuses ALS Watchdogs! Project ALS Vinay Prasad MD MPH Racing for ALS Approve NurOwn. You use your own stem cells What’s easier than that. And it’s been proven by so many trial patients. Not only did it stop the progression, but it improves abilities in patient. It’s a no brainer. Be the miracle that we’ve been waiting for, for 155 years ago.

Dr. Marty Makary Secretary Kennedy Vinay Prasad MD MPH Why do ALS victims have to BEG for our lives? Your goal of BLA reviews <60 days sounds GREAT! Do you mean it? Really? NurOwn is now at 141 days, >78% of your codified timeline. gina Gibson Shah Minokadeh, M.D. JC juan Mark Defund The ALSA

The ALS Assoc is a truly corrupt organization! They DO NOT help ALS victims, they are a pay-to-play org. Just look at their corp sponsors. Their blatant malfeasance brought us the ineffective Relyvrio. Why? Because Amylyx is a corp sponsor! Prove me wrong. The ALS Association

Craig Reagan Dr. Marty Makary Secretary Kennedy Vinay Prasad MD MPH gina Gibson JC juan Mark Defund The ALSA It's still shocking to me how little every FDA administration cares about such a horrific disease that has been universally fatal for the past 156 years. I was fooled by this administration's empty words. They have proven to be no different than their predecessors.

Shah Minokadeh, M.D. Craig Reagan Dr. Marty Makary Secretary Kennedy Vinay Prasad MD MPH gina Gibson JC juan Mark Defund The ALSA I was fooled as well. Empty words before, empty words now.

Mark Defund The ALSA Greg Heydet Sr Craig Reagan Shah Minokadeh, M.D. Nick Dyer juan Rain Consulting Group Matthew Bellina Dr. Marty Makary HHS Donald J. Trump U.S. FDA No More Excuses ALS Watchdogs! Project ALS Vinay Prasad MD MPH Racing for ALS I was hoping that one of the things that I would be thankful for this Thanksgiving will be Nurown. NO, it's not happening and all the people that can make this happen keep ignoring us which means that they don't care about ALS sufferers.

Mark Defund The ALSA Craig Reagan Dr. Marty Makary Secretary Kennedy Vinay Prasad MD MPH gina Gibson Shah Minokadeh, M.D. JC juan The ALS Association Radicava doesn’t come close to what NurOwn can do for people. IAMALS wound stand behind NurOwn either, why? Radicava is a fluke. It’s all about the mighty dollar and the pharmaceutical industry.