2 years mistreating her to death. This is AMYOTROPHIC LATERAL SCLEROSIS. Worldwide APPROVAL of #NUROWN NOW. Don't let us die!! $BCLI U.S. FDA EU Medicines Agency Dr. Stephen M. Hahn Stella Kyriakides European Commission Ursula von der Leyen C Lebovits David setboun Mary Kay Turner David Sassoli Pascal Canfin Human Rights Watch President Donald J. Trump

Nothing like a mid-week Cabaret to get ya singing! Tomorrow I'll be part of the very 1st Virtual Cabaret Convention, presented by @MabelMercerFdtn. Come join me in A World of Cabaret! For more information visit cabarethotspot.com/oct-19-22-2020…

👇👇thread from Grade A human, Jeff Passan (Jeff Passan )

Brace yourselves... we are closer than ever before to finding cures for #ALS. Watch the video below and then learn more here: iamals.org/latest-researc…

I just decided to enter this video contest...if you want to find out what alpacas and jazz have in common, please go to this link: binkd.co/T9hf0 Find my 60 second video titled "Alpacas, Jazz and Me" and vote in the upper left corner!

💔 RIP Pat Quinn, may we all have the courage and passion you had for life. #endals

Remembering Pat Quinn

pALS! Please read below!

⁦Rep. Roger Williams⁩ please tell Nancy Pelosi time is of the essence. Schedule the vote for H.R.1407. Lives are depending on it.

“When a process isn’t working, it’s time to change the process...” Nancy Pelosi, it’s time to change the process. #endals

Proud to share Phase 3 trial data! Full of gratitude for trial participants. You are all #ALS Heroes! #Thankful to each one of you and your loved ones! #biomarkers!

ALS is a devastating & cruel disease. That's why I’m proud to have been on the House floor leading the passage of a bill that makes it easier for people with ALS to access their earned #SocialSecurity benefits. We need to eliminate these waiting periods for ALL severe diseases.

#Nurown - clear trend for improvement, significant change in biomarkers, no reports of safety issues & multiple UNPRECEDENTED success stories. Approve Nurown NOW so all #ALS patients get a chance to fight for our lives. FDA Biologics Dr. Janet Woodcock Dr. Stephen M. Hahn youtu.be/wFN8opYJCCo

John Stamos' wife LIVE with Michelle Lorenz about HR8662 for ALS! The ALS Association @ALS_NNE @ALSA_RockyMtn @ALSA_Nevada Al Sama Company axeALSFoundation @alstexas @AlsOklahoma Dana Perino #iamals #als #endals stat news Jeff Fortenberry Sen. Jim Inhofe Inhofe Press Office m.facebook.com/story.php?stor…

Terrible to lose the young and talented Rebecca Luker, to ALS!  Thousands like my sister are fighting for their lives every day with this vicious disease. We are fighting as well every day to get that much needed cure. playbill.com/article/rebecc…

Team Gleason is amazing! Because of them, I can write this tweet, make this map tinyurl.com/als-clinic-map & continue to thrive with #ALS. God bless #TeamGleason & all who support them! Special thx to Esri for allowing me to continue my life’s work Steve Gleason - "Live Impossible" @TobiiDynavox #Esri

One year ago this week Freddy Cole and I were together for ten performances at Birdland Jazz Club and Theater. Freddy Cole was on fire each show🔥 Hard to believe he is gone. I’ll miss him forever and will always see him in an “Orange Colored Sky!” Watch 👀 youtube.com/watch?v=t3tVwj…

Hey @alsagoldenwest please start advocating for people with #ALS to get the vaccine ASAP!

On rare disease day let’s be clear — ALS is not rare. People just die from it so fast that at any given point there aren’t a ton of people living with it. That doesn’t make it rare. It makes it urgently in need of research and answers.👇🏻

I ask why must I die when there is treatments that will save my life ?