#MEAction Network
@MEActNet
A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing
https://t.co/JhhNZoFYJi
ID:2501259470
http://meaction.net 17-05-2014 10:54:10
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Hannah Davis
Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checked
Janet Dafoe
Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
It'sME(Jaime)
Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
Bhupesh K Prusty
A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
ME/CFS News
News, interesting information and commentary on ME/CFS. My bluesky account is @mecfsnews.bsky.social Looking for paid ME/CFS related work.
We asked our community how long it took to receive their diagnosis of myalgic encephalomyelitis (ME, aka ME/CFS). Most diagnoses took years not months.
#MEAction ’s annual #MillionsMissing campaign has a theme of #TeachMETreatME this year. Learn more at millionsmissing.org.
#MEAction Network I had to go out to a doctor’s appt today which is difficult for me in the extreme, but I wasn‘t gonna let the opportunity go by without asking my doctors to #TeachMETreatME ! One medical building, CME dropped off w/three docs. Thanks #MEAction Network for the great cover letter script!
I have been a part of the #MECFS community for a long time and I have seen many inaccurate articles in the press. I am so grateful for the work that It'sME(Jaime) and the #MEAction Network staff have done to bring truth to light. I just said Thank You with a small donation. Join me?⬇️
Jaime Seltzer, our Scientific Director, is speaking now at NSU INIM 2024 conference!
#TeachMETreatME #MillionsMissing #pwME
Thank you Marie-Claire Grounds for helping to organise this fantastic event. Ask your doctors to attend and earn 2 CPD points that are valid throughout the UK. #MedTwitter #TeachMETreatME #MillionsMissing
#MEAction Maryland is pleased to share the first research presentation in our series on Evidence-Based Pediatric MECFS with Dr. Peter Rowe, with a discussion with ppl with experience of pediatric ME. youtu.be/Bk2UbMfZscA?fe…
#MedTwitter #MECFS #MillionsMissing #TeachMETreatME
Now is the time to share your #MillionsMissing #teachMETreatME photos, videos, or artwork- now through May 12th!
Everything is in our Show Up From Home Toolkit: bit.ly/HomeMM2024
Sample language for post or videos, graphics, signs, and language to email your clinician.
We're live!! Join us on Facebook live now and hear from ME organisations across the world!
Together, we are a #GlobalVoiceForME !
#WorldMEDay #MyalgicEncephalomyelitis #LongCovid
Join us: buff.ly/3Kgwkvj
#MEAction 's Scientific Director shares a sample of press efforts by @meactnet. If this work matters to you, please consider a donation: meaction.net/donate.
If you are interested in talking to #MEAction for press, you should reach out to [email protected].
#MillionsMissing
Sunday is #MillionsMissing and this year #MEAction Network is marking it w/provider education. This means a great deal to me after losing so much of my health in the 12 years I went undiagnosed. Help spare someone else the same by sharing this CME w/your HCPs!
docs.google.com/document/d/15j…
The knowledge needs to make it to the doctors out there TO👏🏻DAY!👏🏻 I waited far too freaking long to get someone who knew what they were talking about. Too many doctors have told me there's no such thing as ME! 😔 This needed to change in the 1990s. #TeachMETreatME
#TeachMETreatME
Help clinicians learn about myalgic encephalomyelitis (ME aka ME/CFS).
Share this continuing medical education with your healthcare providers. Sample messaging: docs.google.com/document/d/15j…
#MillionsMissing @meactnet
#PEM . This week we published the infection-associated illnesses Anki deck, attended CDC’s #MECFS Light Up, and hosted the inaugural Wilhelmina Jenkins ME/CFS Service Awards. Now I lie in the dark and wait and pray for the symptoms to lessen. #MillionsMissing #TeachMETreatME
Great to see you Terri, I will be thinking about ME/CFS people, especially this weekend. #MillionsMissing
An update on CDC Emerging Infections ‘s multi-year, 2-phase effort to educate school nurses about #MECFS .
#MEyouth #pwME #MEeducation
#TeachMETreatME
The recording for last night’s event is now available! youtu.be/gDpUQzSYx8E?si…
Thank you once again to everyone at MEAction GA for all they did to make the Wilhelmina Jenkins ME/CFS Service Awards a success!
#MillionsMissing #TeachMETreatME #MECFS