#MEAction is honored to share a new book, Invisible Illness: Coming of Age, Chronic Illness, and a Mother’s Will to Survive, with you by author @itsMELauren - who offered to donate a portion of her proceeds to #MEAction for all books purchased in May! meaction.net/2024/04/29/int…

Welcome to all our new followers who have found us via #MillionsMissing #TeachMETreatME ! We want to keep in touch! Subscribe to receive emails here: meaction.net/subscribe/

Find us on most social media at @ meactnet. LinkedIn is the outlier at #MEAction . Make sure to follow!

Home #Test2Treat aimed to reduce disparities for most at-risk people, with FREE tests, telehealth & treatment for COVID & flu. But it just ended!

Sign a letter to NIH: bit.ly/4bwHhnO

White House & representatives: bit.ly/3TX5gGM

#pwME #MECFS #LongCovid

Unproven treatment, the Lightning Process leaves participants feeling 'blamed' for being ill, according to former Team GB rower Oonagh Cousins. But some say they completely recovered after using the programme... I went undercover to find out more bbc.co.uk/news/health-69…

In this report Oonagh Cousins says Lightning Process 'exploits' people

NICE warns against the LP for #pwME & #pwLC need better guidelines and we all need better treatment & more research now!

ow.ly/O8yw50ROwmi

#longcovid #LongCovidKids #MyalgicEncephalomyelitis

#MEAction is hosting a new virtual, 30 minute, very modified movement class on May 30th at 11 am PT/2 pm ET/7 pm BST that has been crafted specifically for people with ME. We are always thrilled to partner with Nourish Therapeutic Yoga. meaction.net/event/a-very-m…
#pwME #MECFS

Thanks so much to all who have participated in #BlueSunday ! Extra special thanks to @theslowlane_me for creating the day and to all those who chose #MEAction as their charity for this year. We truly appreciate it! Sending out love if you could not participate this year.

Thanks, Cynthia!

Anna / M.E. myself and I has left Tw*tter/X has a link to all the orgs you can donate to here: the-slow-lane.com/donation-pages/

#MEAction 's is here: meaction.funraise.org/fundraiser/ann…

#BlueSunday

I had a different #BlueSunday2024 #TeaPartyForME2024 because #MCAS has limited pastry possibilities ( #LongCovid on #ME ) and this heatwave in Mexico isn't great for #POTS , but I enjoyed my coffee thinking lovingly of other #pwME . Donated to #MEAction Network:
the-slow-lane.com/donation-pages/

Happy #BlueSunday - aka Tea Party for ME day. This is a day our community comes together to raise funds for various M.E. charities and add a little joy via tea parties (singular or with others). The idea is to donate what you might pay for a treat/tea in a shop to a charity. 🧵

Thinking of all my friends today celebrating #BlueSunday and of all the people with severe #MECFS who haven't been able to celebrate anything for months and years 🫂

Huge THANK YOU to everyone who donated 💙

ME Research UK #MEAction Network @invest_in_me (Invest in ME Research) 🇪🇺

#TeaPartyForME2024

#BlueSunday : Tea Party For M.E. was started by @theslowlane_me & is TOMORROW.

Learn more: the-slow-lane.com/blue-sunday-20…

Donate to #MEAction : meaction.funraise.org/fundraiser/ann…

@meactmaryland is having a virtual pajama party at 4 pm ET on May 19. tr.ee/qoozuYt5sv

#pwME #TeaPartyForME

#BlueSunday is almost here! Everyone is welcome #MEActionMaryland's virtual pajama party! Read more below!

Link to donate (idea is donate price if tea/cake) meaction.funraise.org/fundraiser/ann…

No donation required to participate!!!

#pwME #MyalgicEncephalomyelitis #MillionsMissing

Share Dr. Rowe's webinar on Evidence-Based Pediatric #MECFS with your healthcare provider! This webinar is targeted towards healthcare providers while being accessible for #pwME as well.
#MEAwarenessHour