Save Liz Nevra(@SaveLizNevra) 's Twitter Profileg
Save Liz Nevra

@SaveLizNevra

A place to receive updates and support Nevra Liz on her journey with Ehlers-Danlos Syndrome, PMDD and ME/CFS to get the health care she needs. #ME #EDS #PMDD

ID:1251243768105381888

linkhttps://www.gofundme.com/f/save-nevra calendar_today17-04-2020 20:19:16

4,0K Tweets

541 Followers

800 Following

Save Liz Nevra(@SaveLizNevra) 's Twitter Profile Photo

Hi, my name is Nevra, and I got sick when I was 6 years old and I wasn't able to attend school because of a high fever, and it continued through grade school. Learn more about my story and click on the GoFundMe link. Thanks!
gofundme.com/f/save-nevra

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Kate Colbert -- Higher-Education Author & Marketer(@KateColbert) 's Twitter Profile Photo

Nevra is my close friend. She sometimes contacts me when she is dragging herself, wheezing, through these parks because her house is killing her & her family doesn’t care. An unmarried woman in Pakistan, she is all but invisible. Pls DONATE for safe housing and medical care. ❤️

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Fran Haddock(@franhaddock_) 's Twitter Profile Photo

Please support Save Liz Nevra’s GFM and share this video of her story. Global solidarity is essential within the ME community especially to those in country’s where medical and social support is lacking gofundme.com/f/save-nevra

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Whitney Foxtail ♿🦊(@Whitney_T_F) 's Twitter Profile Photo

ME Association This post makes it seem as if there are actually two sides worthy of consideration, when there's one side that's bunk and out of date (LP) and the truth, which is that LP should not be offered to pwME & pwLC. We do actually have evidence-based options for symptom mgmt ya know

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Save Liz Nevra(@SaveLizNevra) 's Twitter Profile Photo

I'm Nevra. I'm 28 years old, I have ME & I'm permanently trying to escape abuse and World ME Alliance have done a writeup on my story. Please click the link below to learn more about me. The article has a GoFundMe link at the very end. Thank you worldmealliance.org/2024/04/people…

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Himmat(@himmatb15) 's Twitter Profile Photo

Getting more than a little fed up of the 'you probably aren't resting enough' finger pointing that pops up here from time to time. Some of us decline despite rest and some of us are in too much intense pain to manage without any distractions all day.

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Robin. Please Do NO HARM.(@robinsoped101) 's Twitter Profile Photo

World ME Alliance has written an article on Liz Nevra. She still needs our help. Another tragic ME sister caught up in abuse that she's trying to escape. Please read & help! worldmealliance.org/2024/04/people…

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Save Liz Nevra(@SaveLizNevra) 's Twitter Profile Photo

An old reel: I am a polyglot, and my favourite language to learn about is Gaeilge, aka Irish. Check out my story in the linked GoFundMe.
gofundme.com/f/save-nevra

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Robin. Please Do NO HARM.(@robinsoped101) 's Twitter Profile Photo

Nevra is a sweet soul with ME. She needs our help to reach her goal for safety and care. Please read her GoFundMe page. ❤️🫂🌻

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Save Liz Nevra(@SaveLizNevra) 's Twitter Profile Photo

Nevra is sick, abused, dismissed, in horrible pain, & at the beginning of a surgical odyssey. Unfortunately, her care was delayed for too long & her body isn't tolerating most medications. She needs your support, sharing and generosity to pull through. 2/n

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Save Liz Nevra(@SaveLizNevra) 's Twitter Profile Photo

Nevra is often left without assistance for hygiene tasks (changing clothes, underwear, period pads and brushing teeth) & has to beg for these things, which further exhausts her. Here she speaks about these difficult circumstances: 8/n rb.gy/ffbw5p

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Patients with Power(@PtsWithPower) 's Twitter Profile Photo

Content warning: Medical neglect

It is so hard to see members of our & community without access to support or advocates, and being afraid for their life, knowing so many are in this situation around the world.

Nevra's story and fundraiser

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