#MEAction Network UK
@meactnetuk
UK branch of global grassroots movement @MEActNet. Empowering patients to fight for the #MillionsMissing with ME. Health equality & biomedical research now!
ID: 745955541055320064
http://www.meaction.net 23-06-2016 12:23:54
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Coverage of yesterday's session of Maeve's inquest. Fiona Hamilton report reflects the absence of specialist help for people with ME, something the ME community have long been aware of. ow.ly/fYZc50SOc1F #MyalgicEncephalomyelitis #VerySevereME #MaeveInquest
Reports from The Guardian ITV News & @BBCnews. We are in awe of the courage, compassion, dignity and resolve that sarah Sean O'Neill have shown throughout this painful process. ow.ly/y52K50SPjrn ow.ly/qulQ50SPjrp ow.ly/HyF150SPjro #MaeveInquest
Article by Eleanor Hayward in The Times and The Sunday Times with Karen Hargrave co-founder of #ThereForME & appeal to Wes Streeting MP for at least £100m for research. Get involved here: ow.ly/rOmE50SSQzi ow.ly/WenA50SSQzh #MyalgicEncephalomyelitis #VerySevereME
Video of Karen Gordon filmed on 21 July at Conquest Hospital Hastings UK. Karen has very severe ME & needs to be able to access IV feeding at home. Please sign & share the petition to try to save Karen. ow.ly/9O2k50ST6Bt Michael Gordon #VerySevereME
For #SevereMEDay2024, the medical education platform which hosts Dr Nina Muirhead's CPD module on ME, Learna's StudyPRN, is featuring severe ME as their 'question of the day', which includes a case study & questions👏 More info on Action for M.E.'s website: actionforme.org.uk/news/new-onlin…
Thanks to Good Morning Britain for this piece with sarah & Dr Shepherd with Sarah Boothby saying lessons have been learnt for future treatment of #VerySevereME who can't eat by Royal Devon NHS. ow.ly/Y0YY50SYkEf #MyalgicEncephalomyelitis #MaeveInquest #RememberMaeve
Olympic rower and #ThereForME advocate, Oonagh Cousins, speaks about her experiences and the stigma people with ME/LC can often face to Eleanor Hayward in The Times and The Sunday Times. ow.ly/ju6E50SZ9J7 #MyalgicEncephalomyelitis #pwME #pwLC
Watch BBC Breakfast interviews Binita Kane, Dr William Weir, Karen Hargrave & Oonagh Cousins. 250,000 is quoted, our updated figure is 700,000. ow.ly/sGTk50T7lhL Who is #ThereForMe? Wes Streeting Andrew Gwynne MP Segment starts 1.15.30 ow.ly/rgOT50T7lhN
Can the ME Community help ME Foggy Dog get more signatures on this petition and get it trending during ME Awareness hour this evening? ow.ly/3yKp50TfbNS #MyalgicEncephalomyelitis #VerySevereME #SevereME