Last year, Alan Avis & friends walked the Isle of Wight in aid of ME Research UK as part of Walk for ME. This year, in conjunction the volunteers of Surrey Stands With Ukraine, he will be fundraising once more for research. tinyurl.com/mr6bnbyf

#W4ME #pwME

Research suggests that family history of chronic illness may represent a predisposing risk factor for ME/CFS – including history of ME/CFS, cancer, autoimmune conditions, & metabolic disorders. Read more : tinyurl.com/5f5h3acu #MECFS #myalgicE #MyalgicEncephalomyelitis #pwME

Nominates close on Friday - the more votes we receive the more chance ME Research UK will have of winning £5000. Vote for free today - tinyurl.com/29sbfd5k
#MECFS #pwME #fundraising

Congratulations and thanks to James Baker who completed Sunday's TCS London Marathon in aid of ME Research UK - tinyurl.com/yjbxtae4

As well as her ME Research UK-supported work on mitochondrial function, Dr Sarah Annesley at La Trobe University has also been involved in a study measuring the characteristics of lipid droplets in fibroblasts from people with ME/CFS: bit.ly/4d9aaIn

Benefact Group's Health and Wellbeing Special Health Draw for £5000 is now open for nominations - tinyurl.com/y2xtzez4

Nomination window is open for 5 days only and closes Friday 26th April. Please vote for ME Research UK.

#MECFS #pwME

Dr Barnden and his team at Griffith University and the University of Queensland have recently published new findings showing increased neurochemical levels in the brains of people with ME/CFS and long COVID

Find out more: bit.ly/3Q2EA51

Excited to report that James Baker is running in aid of ME Research UK in Sunday's TCS London Marathon as 'research into the life altering illness is grossly underfunded as well as lacking in understanding of the causes & best treatments' tinyurl.com/4fwrr3mx #LondonMarathon

Hand grip strength, a measure of muscle fatigue, has previously been explored in ME/CFS. A recent study conducted by researchers from Charité – Berlin University of Medicine extended this research to long COVID.

Read more: tinyurl.com/3fkd7666

#MECFS #pwME #longcovid

Near Portleven Harbour Market on 12th May 2024? For International ME Awareness Day Claire Carter will be having a cake sale as part ofWalk for ME. #walk4ME #IMEAD

UK biobank study on 295 people with CFS suggests that thiose with CFS had reduced activity levels, & significant differences in measures related to body temperature compared with controls. More - tinyurl.com/47xebty6 #CFS #UKbiobank

Post exertional malaise is often referred to as the cardinal symptom of ME/CFS – & one also experienced by some with long COVID. A new paper looks at how monitoring lactate levels in the blood may provide a way to support pacing strategies for PEM tinyurl.com/k823kc5c #MECFS

On 19th May 2024, Isaac is hosting an online concert for Blue Sunday, in aid of ME Research UK and Smile for ME. Isaac, who has a sister with Severe ME, mentions that the concert will “feature a wide range of performances.”

Reserve a spot: bit.ly/3VTGMja
#MECFS #pwME

ME Research UK attended, virtually, the “1st International Conference on Clinical and Scientific Advances in ME/CFS and Long COVID”. The conference, held in Portugal, provided valuable insights into a wide range of topics.

General overview: tinyurl.com/5n9asbew

#MECFS #pwME

A recent study (bit.ly/3xA7S4B) revealed ME/CFS participants with joint hypermobility, particularly those with EDS, “demonstrate distinct clinical characteristics, including more severe symptomatology and reduced HRQOL.”

Read more: tinyurl.com/msr5m8fb

#MECFS #EDS

Register for UniteToFight's inaugural conference on 15-16 May (9am-7pm CEST). This free online event aims to address the challenges of Long COVID & ME/CFS by bridging scientific knowledge with society. Speakers include Drs Davis, Proal, Prusty and Wüst - tinyurl.com/bp6kc7ek

Master's candidate at University of the West of England has a research project on 'How do children & adolescents with ME/CFS cope with Education' & is looking for participants. To take part (non ME Research UK-funded study) go to tinyurl.com/46hvjwum #MECFS

Dr Elisa Oltra at the Catholic University of Valencia has recently completed her ME Research UK-funded study looking at the link between HERVs and ME/CFS. She published early results from the study back in 2022: bit.ly/3TEa4zt