Everyone still trying to explain away PEM as DOMS/deconditioning needs to read this. I’ve lost count of my #LongCOVID , #Lyme and #MECFS patients who were former athletes. Who know *better than non-athlete doctors* what DOMS and deconditioning feels like. This ain’t it.

Someone integral to me being alive passed away last night after 6 days in the ICU. Feeling lots of feels…which is great (sarcasm) with #ME / #LC since strong emotions can cause PEM… This disease sucks.

We know that even mild exercise can lead to post exertional malaise (PEM), exacerbating ME/CFS.

Workwell Foundation has shared a great resource - letter to healthcare providers
Opposition to Graded Exercise Therapy (GET) for ME/CFS

bit.ly/GETOpposition

#MECFS #GradedExerciseTherapy

A reminder that there will be children trick or treating on Halloween that may not communicate with you in a way you will understand. You may not get the thank you you’d expect, but your kindness & patience will be appreciated 🍬🎃 #Halloween #Autism #SEND #Disability

Should be required reading in every medical school…

Today is International #SafeAbortion Day.

Access to safe abortion protects the health of women and girls.

As with all other health services, women and girls should be able to access safe and respectful abortion care, when they need it, without fear of harm, punishment or

Thrilled to announce that the first of our #LongCOVID papers from our collaboration with the incredible Prof. Akiko Iwasaki has been published in nature today. This work is incredibly important as it highlights clear objective differences in the blood 1/ nature.com/articles/s4158…

Exercising my frontal lobes not to engage with certain people who write feelings-oriented papers with no science to back them up. Feelings are not facts! #MECFS is not FND. #Dysautonomia is not FND. #LongCovid is not FND.

#NeuroTwitter #MedTwitter

Known in #MECFS :

- Alteration of autonomic nervous system
- Orthostatic intolerance with reduction in cerebral blood flow
- Increased immune system activation
- Oxidative stress
- Adrenergic receptor autoantibodies
Etc.

ICYMI, starting Monday you can order free #covid19 tests from the government again. Why does this matter? Because you have to test before you can treat, and treatment can ⬇️ duration of illness, chance of hospitalization, and also long covid.

Many #PEM triggers have been identified. Take a look to help reduce and perhaps even avoid certain #triggers .

#EMF #MedEd #crash #PESE #postviral #complexchronic #illness #MECFS #longcovid #fibromyalgia #PostExertionalMalaise #physicaltherapy #occupationaltherapy #preventivecare

Dr. Brayden Yellman highlights the importance of #resting & utilizing a careful #regimen of both physical & cognitive #pacing to avoid #PEM :

📽️bit.ly/3s4a3us
📘bit.ly/3Q4U89c
📽️bit.ly/3D42XZe

#MECFS #LongCOVID #Fibromyalgia #MedEd

Partner still recovering from mono (glandular fever). I have ME/CFS post covid. 4 yo (who verbally stims) spending lots of time out of house with caregivers. Quiet house helping a ton with rest/recovery but SOOO much mom guilt about not being present with him much. 😭 #pwME #pwLC

Don't shame a parent whose autistic child will only eat chicken nuggets or greggs sausage rolls , you have no idea how hard it is

Brilliant explanation of energy struggles with #longcovid #mecfs

Why people should rest and avoid #exercise and physical stress for weeks and months after a mild #Covid infection.

Also see my 4 comments below that share some potential insights into this delayed #LongCovid ' phenomenon.

time.com/6215346/covid-…

I absolutely believe this based on my experience with my son and patients (and likely self)

“Only 26 subjects (7.6%) recovered from PCC during follow-up”. Follow up was 2 years. This article just documents what those of us with #LC already knew, but glad to have peer reviewed research to support us.

Great article about how even the term we’ve chosen to use for when physicians downplay, ignore and outright dismiss women’s symptoms (medical gaslighting) minimizes the health impact it has. “This is not about women’s hurt feelings. This is about gratuitous death and suffering…”

“Recovery is extremely rare during the first 2 years, posing a major challenge to healthcare systems.”

Last week Putrino Lab reported just 15-20% fully recovered (among a sample of 3,000+).

Soooo…

Avg person gets infected 1-2x per year.

10% risk of Long Covid, each time; or