The only words I have tonight are that I want this disease to stop killing any of us. occupyme.net/2023/12/22/eno…

I luckily shared the last couple of weeks of #BethMazur's life with her. I want you to know: She felt loved when she died. She died because her ME was unbearable. There's nothing more any of us could have done. Effective treatment is the only thing that could have saved her.

Fuck ME.

Save Millie's life! Another very severely ill #pwME is being mistreated & we share another call for help. Please sign & share this petition as widely as you can. chng.it/PPKvy6j2 via Change.org UK #MyalgicEncephalomyelitis #VerySevereME

Dr Dr. Sabine Hermisson 🦋 speaks about the experience of severe ME patients. HIDDEN - MISSING - FORGOTTEN Living in isolation, not able to go to hospital, experiencing severe pain, too weak to eat and drink, gastroparesis that cause malnutrition and dehydration. #UniteToFight2024

Mila. Meine Worte fehlen. Deine sollen gehört werden. #LearnAboutME #UniteToFight2024

OK so we have a critical update on #SaveCarlasLife #ExposeMENow. We are watching the NHS kill a very severe ME patient in real time and we have literally been trying every possible route out of this 👇

“It is hard to express the frightening sense of vulnerability engendered by being severely ill, and yet having genuine reason to fear the very system that is supposedly there to help.” My reflections on #MaeveInquest (1/4) alifehidden.com/2024/08/06/mae…