
Long Covid Wales ๐ด๓ ง๓ ข๓ ท๓ ฌ๓ ณ๓ ฟ
@longcovidwales
Devolved Welsh Campaigning Offshoot of 60k strong patient-led UK Support Group @long_covid #LongCovid #Wales #TreatLongCovid
ID: 1316757892243087361
http://longcovid.org 15-10-2020 15:09:53
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UK followers, please sign this petition asking for people with #LongCovid to be included in the vaccine booster programme. Based on evidence of immune system damage & symptom exacerbation by repeat infections, we think they need to be eligible. petition.parliament.uk/petitions/6422โฆ

Together with Long Covid Kids / [email protected] we conducted the first ever survey on the impact of reinfections on people with Long Covid. Please help ensure they have the option to get the booster if they want it. Like so many others that aren't, & should be, on the list. longcovid.org/impact/storiesโฆ

A pilot study investigating the use of hyperbaric oxygen therapy in people affected by Long Covid. Latest blog from Supporting Healthcare Heroes UK by paulgill.bsky.social. Long Covid Support ๐ Long Covid SOS @longcovidsos.bsky.social Long Covid Kids / [email protected] Long COVID Physio @Dr Jenny Ceolta-Smith PhD RetiredOT ๐๐ PenScribbler shh-uk.org/a-pilot-study-โฆ

Please sign and share widely for #LongCovid #LongCovidKids International #LongCovidAwareness Day and Month to be recognised. International Long Covid Awareness actionnetwork.org/letters/ask-thโฆ

Tune in to BBC The One Show tonight at 7pm and watch the Long Covid piece with Binita Kane. #LongCovid #LongCovidKids #LongCovidAwareness #TreatLongCovid


Please help us continue to support people w/#LongCovid: Peer support Research involvement Health & Work advocacy Long Covid Support is registered with easyfundraising so over 7,000 brands will donate to us for FREE every time you use easyfundraising to shop with them.easyfundraising.org.uk/causes/longcovโฆ

A truly inspiring lecture from Ziyad Al-Aly, MD. Thanks to @Daltmann10 Imperial Medicine Imperial College London for hosting. Thanks for continually putting the #LongCovid community and its advocates at the centre of the huge amount of work that you do. #TreatLongCovid Oonagh Cousins Jo D ๐ท๐


First UK billboard promoting NotRecovered and raising awareness for #LongCovid and #MECFS. This billboard is located at the following location in Bournemouth and will be up 24/7 for two weeks. google.com/maps/@50.75275โฆ



2 years ago today Long Covid Support and Long Covid Kids / [email protected] created a Long Covid information leaflet. It is sadly as relevant now as it was then. Please share widely to ensure that everyone can get the support they need. Link here - longcovid.org/information-leโฆ #LongCovid #LongCovidKids



๐With Christmas approaching, many of us will be shopping online. Why not register with Give as you Live ๐โค๏ธ๐ and raise funds for Long Covid Support to help us continue our work! ๐ It costs you nothing extra and could make a big difference to us! #LongCovid giveasyoulive.com/charity/long-cโฆ

๐ดWeds 29th Nov. 6pm GMT๐ด โAntibody immune profiling in #LongCovid - a clue to viral persistence?โ ๐ฃBinita Kane with Long Covid Support invite you to our inaugural Fireside chat. This session - Prof Andrew Shaw, CEO/founder of Attomarker. โก๏ธ YouTube: youtube.com/@LCCWYCD


Save the date! 3rd Jan 2024 at 6pm GMT Binita Kane speaks to @TobyRichardsUCL founder of the Iron Clinic to discuss a much neglected area in mainstream medicine. Tune in to understand the role of iron in health, interpreting ferritin levels, and when & how to treat.


๐จFrom LOCOMOTIONstudy - impact of #LongCovid on productivity: โ๏ธ51.7% reduced paid work hours โ๏ธMean monthly work income โฌ๏ธ 24.5% โ๏ธAverage aggregate value of productivity loss since incident infection, extrapolated nationally: ๐จยฃ5.7 billion๐จ link.springer.com/article/10.100โฆ


๐ข New Community Video online! Long Covid Support (Long Covid Support ๐) shares their journey and mission to support those affected by #LongCovid. Learn about their impactful work in peer support, advocacy, and more! ๐ฝ๏ธ Watch now: youtu.be/9akAXpIb9LY

๐จJoseph Kwon at LOCOMOTIONstudyโs webinar: โผ๏ธEQ5D of p/w #LongCovid worse than 229/271 disease groups incl. brain cancer, schizophrenia, acute myocardial infarction โผ๏ธValue of QALY loss - ยฃ2.05bn annually; ยฃ6.13 bn since start of LC - represents approx 25% total burden


Iโll be leading a short debate on #LongCovid on Wednesday evening. Thank you to everyone who has contacted me about it. While I canโt use every story, your lived experience is vital in informing my speech. โ๏ธ: [email protected]
