Long Covid Wales ๐Ÿด๓ ง๓ ข๓ ท๓ ฌ๓ ณ๓ ฟ (@longcovidwales) 's Twitter Profile
Long Covid Wales ๐Ÿด๓ ง๓ ข๓ ท๓ ฌ๓ ณ๓ ฟ

@longcovidwales

Devolved Welsh Campaigning Offshoot of 60k strong patient-led UK Support Group @long_covid #LongCovid #Wales #TreatLongCovid

ID: 1316757892243087361

linkhttp://longcovid.org calendar_today15-10-2020 15:09:53

3,3K Tweet

2,2K Followers

818 Following

Long Covid Support ๐ŸŒ (@long_covid) 's Twitter Profile Photo

UK followers, please sign this petition asking for people with #LongCovid to be included in the vaccine booster programme. Based on evidence of immune system damage & symptom exacerbation by repeat infections, we think they need to be eligible. petition.parliament.uk/petitions/6422โ€ฆ

Long Covid Support ๐ŸŒ (@long_covid) 's Twitter Profile Photo

Together with Long Covid Kids / [email protected] we conducted the first ever survey on the impact of reinfections on people with Long Covid. Please help ensure they have the option to get the booster if they want it. Like so many others that aren't, & should be, on the list. longcovid.org/impact/storiesโ€ฆ

Long Covid Support ๐ŸŒ (@long_covid) 's Twitter Profile Photo

Please sign and share widely for #LongCovid #LongCovidKids International #LongCovidAwareness Day and Month to be recognised. International Long Covid Awareness actionnetwork.org/letters/ask-thโ€ฆ

Long Covid Support ๐ŸŒ (@long_covid) 's Twitter Profile Photo

Please help us continue to support people w/#LongCovid: Peer support Research involvement Health & Work advocacy Long Covid Support is registered with easyfundraising so over 7,000 brands will donate to us for FREE every time you use easyfundraising to shop with them.easyfundraising.org.uk/causes/longcovโ€ฆ

Long Covid Support ๐ŸŒ (@long_covid) 's Twitter Profile Photo

A truly inspiring lecture from Ziyad Al-Aly, MD. Thanks to @Daltmann10 Imperial Medicine Imperial College London for hosting. Thanks for continually putting the #LongCovid community and its advocates at the centre of the huge amount of work that you do. #TreatLongCovid Oonagh Cousins Jo D ๐Ÿ˜ท๐Ÿ’™

A truly inspiring lecture from <a href="/zalaly/">Ziyad Al-Aly, MD</a>.  Thanks to @Daltmann10 <a href="/ImperialMed/">Imperial Medicine</a> <a href="/imperialcollege/">Imperial College London</a> for hosting. 

Thanks for continually putting the #LongCovid community and its advocates at the centre of the huge amount of work that you do.

#TreatLongCovid

<a href="/oonagh_cousins/">Oonagh Cousins</a>
<a href="/JoD66/">Jo D ๐Ÿ˜ท๐Ÿ’™</a>
A ๐Ÿ˜Ž Long Covid + MECFS Billboards (@aaronca11) 's Twitter Profile Photo

First UK billboard promoting NotRecovered and raising awareness for #LongCovid and #MECFS. This billboard is located at the following location in Bournemouth and will be up 24/7 for two weeks. google.com/maps/@50.75275โ€ฆ

First UK billboard promoting <a href="/Not_Recovered/">NotRecovered</a> and raising awareness for #LongCovid and #MECFS. 

This billboard is located at the following location in Bournemouth and will be up 24/7 for two weeks.

google.com/maps/@50.75275โ€ฆ
Clinically Vulnerable Families ๐Ÿ’™๐Ÿ’œ๐Ÿ’— (@cv_cev) 's Twitter Profile Photo

Are you in ๐Ÿด๓ ง๓ ข๓ ท๓ ฌ๓ ณ๓ ฟ Wales ๐Ÿด๓ ง๓ ข๓ ท๓ ฌ๓ ณ๓ ฟ? Do you want to contribute to CVFs inquiry work? Join our FB group to find out more... #ClinicallyVulnerableFamilies๐Ÿ’™๐Ÿ’œ๐Ÿ’—

Are you in ๐Ÿด๓ ง๓ ข๓ ท๓ ฌ๓ ณ๓ ฟ Wales ๐Ÿด๓ ง๓ ข๓ ท๓ ฌ๓ ณ๓ ฟ?

Do you want to contribute to CVFs inquiry work?

Join our FB group to find out more...

#ClinicallyVulnerableFamilies๐Ÿ’™๐Ÿ’œ๐Ÿ’—
Long Covid Support ๐ŸŒ (@long_covid) 's Twitter Profile Photo

2 years ago today Long Covid Support and Long Covid Kids / [email protected] created a Long Covid information leaflet. It is sadly as relevant now as it was then. Please share widely to ensure that everyone can get the support they need. Link here - longcovid.org/information-leโ€ฆ #LongCovid #LongCovidKids

2 years ago today Long Covid Support and <a href="/LongCovidKids/">Long Covid Kids / longcovidkids@bsky.social</a> created a Long Covid information leaflet.
It is sadly as relevant now as it was then. Please share  widely to ensure that everyone can get the support they need.
Link here - longcovid.org/information-leโ€ฆ
#LongCovid #LongCovidKids
COVID-19 Longhauler Advocacy Project (@c19lh_advocacy) 's Twitter Profile Photo

Our #LongCOVID #Billboards are live! If you are near Everett MA, Delray Beach FL (pictured below), Arvada Colorado, or Ft Wayne IN you can go see the billboards in person Friday (today) from 3-6pm, and Saturday and Sunday from 1-3pm. Send us a picture! We have more coming so

Long Covid Support ๐ŸŒ (@long_covid) 's Twitter Profile Photo

๐ŸŽ„With Christmas approaching, many of us will be shopping online. Why not register with Give as you Live ๐Ÿ’™โค๏ธ๐Ÿ’š and raise funds for Long Covid Support to help us continue our work! ๐ŸŽ It costs you nothing extra and could make a big difference to us! #LongCovid giveasyoulive.com/charity/long-cโ€ฆ

Long Covid Support ๐ŸŒ (@long_covid) 's Twitter Profile Photo

๐Ÿ”ดWeds 29th Nov. 6pm GMT๐Ÿ”ด โ€˜Antibody immune profiling in #LongCovid - a clue to viral persistence?โ€™ ๐Ÿ“ฃBinita Kane with Long Covid Support invite you to our inaugural Fireside chat. This session - Prof Andrew Shaw, CEO/founder of Attomarker. โžก๏ธ YouTube: youtube.com/@LCCWYCD

๐Ÿ”ดWeds 29th Nov. 6pm GMT๐Ÿ”ด
โ€˜Antibody immune profiling in #LongCovid - a clue to viral persistence?โ€™

๐Ÿ“ฃ<a href="/BinitaKane/">Binita Kane</a> with Long Covid Support invite you to our inaugural Fireside chat. This session - Prof Andrew Shaw, CEO/founder of Attomarker. 

โžก๏ธ YouTube: youtube.com/@LCCWYCD
Long Covid Support ๐ŸŒ (@long_covid) 's Twitter Profile Photo

Save the date! 3rd Jan 2024 at 6pm GMT Binita Kane speaks to @TobyRichardsUCL founder of the Iron Clinic to discuss a much neglected area in mainstream medicine. Tune in to understand the role of iron in health, interpreting ferritin levels, and when & how to treat.

Save the date!
3rd Jan 2024 at 6pm GMT

<a href="/BinitaKane/">Binita Kane</a> speaks to @TobyRichardsUCL founder of the Iron Clinic to discuss a much neglected area in mainstream medicine. Tune in to understand the role of iron in health, interpreting ferritin levels, and when &amp; how to treat.
Long Covid Support ๐ŸŒ (@long_covid) 's Twitter Profile Photo

๐ŸšจFrom LOCOMOTIONstudy - impact of #LongCovid on productivity: โ—๏ธ51.7% reduced paid work hours โ—๏ธMean monthly work income โฌ‡๏ธ 24.5% โ—๏ธAverage aggregate value of productivity loss since incident infection, extrapolated nationally: ๐Ÿšจยฃ5.7 billion๐Ÿšจ link.springer.com/article/10.100โ€ฆ

Long Covid Support ๐ŸŒ (@long_covid) 's Twitter Profile Photo

๐Ÿ“ฃ Are you planning/conducting research into #LongCovid? If so, book one of our regular sessions with our Research Involvement Consultancy! Ensure your study is relevant, robust and keeps the patient voice at the centre. โžก๏ธ Link: longcovid.org/research/reseaโ€ฆ

๐Ÿ“ฃ Are you planning/conducting research into #LongCovid?

If so, book one of our regular sessions with our Research Involvement Consultancy!

Ensure your study is relevant, robust and keeps the patient voice at the centre.

โžก๏ธ Link: longcovid.org/research/reseaโ€ฆ
UniteToFight (@u2fight_world) 's Twitter Profile Photo

๐Ÿ“ข New Community Video online! Long Covid Support (Long Covid Support ๐ŸŒ) shares their journey and mission to support those affected by #LongCovid. Learn about their impactful work in peer support, advocacy, and more! ๐Ÿ“ฝ๏ธ Watch now: youtu.be/9akAXpIb9LY

Long Covid Support ๐ŸŒ (@long_covid) 's Twitter Profile Photo

๐ŸšจJoseph Kwon at LOCOMOTIONstudyโ€™s webinar: โ€ผ๏ธEQ5D of p/w #LongCovid worse than 229/271 disease groups incl. brain cancer, schizophrenia, acute myocardial infarction โ€ผ๏ธValue of QALY loss - ยฃ2.05bn annually; ยฃ6.13 bn since start of LC - represents approx 25% total burden

๐ŸšจJoseph Kwon at <a href="/LOCOMOTIONstudy/">LOCOMOTIONstudy</a>โ€™s webinar:

โ€ผ๏ธEQ5D of p/w #LongCovid worse than 229/271 disease groups incl. brain cancer, schizophrenia, acute myocardial infarction

โ€ผ๏ธValue of QALY loss - ยฃ2.05bn annually; ยฃ6.13 bn
since start of LC - represents approx 25% total burden
Dr Hefin David MS/AS (@hef4caerphilly) 's Twitter Profile Photo

Iโ€™ll be leading a short debate on #LongCovid on Wednesday evening. Thank you to everyone who has contacted me about it. While I canโ€™t use every story, your lived experience is vital in informing my speech. โœ‰๏ธ: [email protected]

Iโ€™ll be leading a short debate on #LongCovid on Wednesday evening. Thank you to everyone who has contacted me about it. While I canโ€™t use every story, your lived experience is vital in informing my speech. โœ‰๏ธ: hefin.david@senedd.wales