BBC: “To get people off long-term sick leave the government is 'providing the NHS with record funding of nearly £165bn a year by the end of this Parliament'”.

How about we have a few £bn invested in research to #CureLongCovid … just saying.

#LongCovid
bbc.co.uk/news/uk-politi…

New Green Finance Institute report out today.

We are still in a pandemic. Today's Office for National Statistics (ONS) figures show that Covid-19 & increased prevalance of #LongCovid are of massive concern to the health & economy of the UK.

'The ongoing costs of its legacy, inc considerable global burden of Long Covid...'

New ONS data on Long Covid show that it is getting worse, not better
Now 2m people in England and Scotland, compared with 1.9m in the whole of UK in Mar 23
The pandemic is not over and every day someone contracts an infection which will disable them

People with Long Covid regularly ask 'how will reinfection with Covid affect me?'

We & Long Covid Kids - #LongCovidKids addressed this in our 2022 reinfection survey but we need new data to understand it as SARS-CoV-2 evolves

We welcome Visible new reinfection study, take part if you can

🚨 From our Trustee Danny Altmann - full quote attached:

“Stigmatising the long term disabled with terms such as ‘sicknote culture’ might be taken to indicate a lack of insight into the seriousness of this situation”

#LongCovid
#ResearchLongCovid
#CureLongCovid

Our CEO, Sonya Chowdhury , spoke to Channel 5 News on the lack of treatment available for #pwSevereME , the paucity in ME research & the efforts of #pwME in raising awareness & redressing stigma around the condition

Available on My5 soon.

#MECFS #MyalgicE #ExposeMENow #SaveCarlasLife

Two things:

PLEASE everyone tune into Channel 5 from 5pm for 5NEWS as the amazing Ruth Liptrot report on #SaveCarlasLife #ExposeMENow should be on it.

Second, we have taken the decision to share another video of Carla which we want everyone to see. It will be live in 10 mins.

With so many people with #LongCovid developing #PoTS , adding to the many that were already experiencing this debilitating condition, this is very relevant and much needed research!

#ResearchLongCovid
#TreatLongCovid
#CureLongCovid
#Dysautonomia

At hosp. appointment - only other person I saw in a mask was the person taking my blood.
2022 APPG report on #LongCovid estimated NHS trusts in England lost 1.8m+ working days to LC absences bw Mar ‘20-Sept ‘21.
It’s in everyone’s interest to #WearAMask in healthcare settings!

Thanks to our Founding Member Nikki S. and the other authors for the extensive work that went in to this paper, also with acknowledgements given to our Member Ruairidh Milne and Advisor crr. 🙏
Nawar Bakerly Dr Julie Darbyshire Sareeta MANOJ SIVAN

🎥 It's a month on from #LongCovidAwareness Day so here’s a look back at some of our #LongCovidAwareness work.

We continue to push for funding, for answers, for treatment, for a cure.

We will not stop.

We #ConfrontLongCovid every day. When will you?

“The future remains uncertain for many #LongCovid patients. As governments and health professionals slowly catch up, patients have no choice but to wait it out. As Churchill once said:

“If you’re going through hell, keep going””

Thank you Yanto Evans & Michael Alexander!

Thank you charity members Yanto Evans & Michael Alexander for this piece including various ‘What can be done?’ points:

🔴Research & clinical trials
🔴Educating Healthcare Professionals
🔴 #LongCovid public messaging
🔴Access to antivirals
🔴Prevent spread of #Covid19
And more!

UK healthcare worker living with Long Covid? Share your story to raise awareness! Whether it's a brief testimonial or a longer blog/vlog, your voice matters. Email us at: [email protected]
#CareForThoseWhoCared

This artwork by one of our brilliant members Dormouse was the perfect opening image for a short video by another of our members to help illustrate why #LongCovid research is so important. You can watch it on our YouTube channel:

youtube.com/watch?v=QqTiPX…

#CureLongCovid

“The researchers think the ongoing immune responses could be causing the symptoms of #LongCovid . There are already some approved treatments that are designed to reduce these responses in other conditions…”

So let’s get trials underway!!

#TreatLongCovid
#CureLongCovid

The children of Greater Manchester deserve clean air. Please support the Clean Cities Campaign - more info here ➡️ cleancitiescampaign.org/gm/

#GMDirtySecret
#cleanair

So proud of my Long Covid Support 🌍 buddy Nikki S. for this and everything she does for the #LongCovid community. Her dedication is incredible and inspiring 💜

Save the date!
Live Wednesday 17 April 6pm BST
Fireside chat

Dr Binita Kane & Helen Oakleigh present 'The Long Covid Clinic - What You CAN Do'. In partnership with Long Covid Support.

Micro-pacing for recovery, Binita Kane talks to Robin McNelis Robin McNelis Physiotherapy

#LongCovid

My incredible #LongCovid buddie Francesca Lo Castro is in Rome speaking at the Senate in the plenary session dedicated to disabilities. Francesca has had #LongCovid since the first #Covid19 wave in the UK in 2020 and is a fantastic advocate. Go Francesca!! 💪💖
Rete Long Covid Press