EDS_unplugged #chronicillnesswithatwist 😀
@eds_unplugged
#EDSunplugged #vloggers #authors raising awareness for #EDS #EhlersDanlosSyndrome #chronicpain #chronicfatigue #invisibledisability @Marcia_Brock @ConsciousCass
ID: 1220668597862850560
https://linktr.ee/eds_unplugged 24-01-2020 11:25:02
423 Tweet
618 Followers
505 Following
tristinbrynn
@tristinbrynn
Rhetoric + Writing PhD student, writing teacher. she/her. Will also tweet about Pro Wrestling. Also: @[email protected]
Cherylee Houston
@cheryleehouston
actor, factory girl, seed grower, stick things on thingser. MCAS, EDS. ♿️🐾@triplecmanchest @DANC_UK For Public speaking engagements message me #TakingTheDis
Kelly Shikany
@kshikany
IU Hoosier| Wife| Mom| music lover | 🦓EDS| CFP®
People's Book Prize
@peoplesbkprize
The only Book Prize voted exclusively by the public. Discovering new talent and encouraging reading! #TPBP
robin
@msrobinhosking
music/sport chat - afc/awfc - find me elsewhere under the same name. DMs not monitored.
International Pain Foundation®
@ipainofficial
International Pain Fnd (iPain) provides #ChronicPain community resources since Nov 2006 @NERVEmberProj @iPainLivingMag #MyPainIsLike #HopeIsTrue #NERVEmber
The Ehlers-Danlos Society
@theedsociety
The global nonprofit organization dedicated to change and progress in the world of Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD).
@[email protected]
@imani_barbarin
she/her Black girl magic+disabled pride |MA Global Comms | my thoughts | #DisTheOscars + #AbledsAreWeird #ThingsDisabledPeopleKnow | ✉️ imani.barbarin gmail
Disability Rights UK
@disrightsuk
We are the UK’s leading organisation run by and for Disabled people, working for justice and equality for all.
Versus Arthritis
@versusarthritis
We want a future free from arthritis. We won’t rest until everyone with arthritis has support with a real hope for a cure. We are #VersusArthritis.
Jeff Akin
@jefftakin
Host of the Starfleet Leadership Academy podcast @SFLApodcast and @BabylonFirst. Drummer, speaker, #StarTrek, Catholic, transformational leader! He/Him
BangTheDrumEhlersDanlos 🏴
@ehlersainteasy
HEDS. Account to learn and share about hEDS + comorbidities. Grateful to find others. CSF leak?+ mast cell instability. Swears a lot due to arsholery.
Gizzelle
@gizzelleakin
Oracle of Technology Inspiration 💗💻 Creator of Art, Music, and Automation 🎨 🎤✨ Native Oregonian 🌲ADHD 🐿 EDS 🦓
Laura Elliott
@tinywriterlaura
Writer, maker, disabled journo. Words in @guardian, @MetroUK, @BylineTimes etc. Debut novel AWAKENED out with @angryrobotbooks June 2025. Rep @PortyLiterary
TheWheelchairPro
@wheelchairprouk
Practical Help on Available Support and Solutions to the Very Real Challenges of the Disabled/ Elderly/ Carer - In Personal Care and Independent Living Ability
Professor Lara Bloom
@larabloom
President & CEO @TheEDSociety•Prof of Practice Patient Engagement & Global Collaboration•Rare & Chronic Disease Advocate•🏳️🌈Gay•She/Her• Views my own
Stickman Communications ltd
@stickmancrips
Stickman Communications Ltd: Creating understanding of disability related needs and issues. Run by Hannah Ensor. Now also on spoutible.
hypermobility.org
@hmsacharity
Supporting people with connective tissue disorders or hypermobility related health problems, including but not limited to Ehlers-Danlos, Marfan & Stickler etc.
Lïttle Mïss Betty Page 💙💛Arm Ukraine NOW🇺🇦🇬🇧
@tankgirljunkie
Hard rocking kinda girl on wheels kicking life and 🇷🇺 in the arse. £missbettypage @Ukraine_DAO contributor & sarcastic as hell #NAFO fella
Claire(PainPalsBlog)💙
@clairesaul1
Blogger: EhlersDanlosSyndrome, hypermobility, chronic pain, POTS, migraine; Chair for @KGS_friends, mum, an NHS nurse in a previous life
Janet Atkinson
@janetaky
52, mum of two, married, grandmother to Freya. I have a condition called Ehlers Danlos Syndrome (pretty shitty). Ex squaddie, ex nursing assistant.
EDS Awareness
@edsawareness1
An online resource for the EDS and HSD community. We provide informative resources and education for patients, families and physicians.
Motability Foundation
@motability
We are building a future where all disabled people have the transport options to make the journeys they choose. For customer queries please call 0300 456 4566.
Ehlers-Danlos Support UK
@ehlersdanlosuk
EDS UK is committed to changing the futures of people with Ehlers-Danlos syndrome (EDS) and HSD. With awareness and early diagnosis we can change lives.
Motability Press
@motabilitypress
Follow @Motability for the official Charity account, monitored 8.45am-5.15pm Mon-Fri. If you have a customer query, tweet @MotabilityOps or call 0300 456 4566.
Arianna
@arianna1066
Star Wars, Literature, and Chronic Illness--things I'd go on about if I didn't have aphasia. ME/CFS. hEDS. Craniocervical Instability She/Her
Emma Reinhold
@drereinhold
Former GP/Research/Advisor on #EDS #MCAS #MUS #fatigue #EDI Disabled🌈ally #NHS #gardening #miniatures Often irreverent Never disrespectful Views are mine, obvs
OhTWIST.bsky.social now too
@h2ohtwist
Oh, That's Why I'm So Tired! Ehlers-Danlos Syndrome survivor & writer. She/her. Co-author #EDSToolkit for doctors. EDS / HSD isn't rare, just rarely diagnosed.
Dr Gemma Pearce
@gemmaspearce
Associate Professor | Lead for @hEDStogether research | UK lead for @CoCreatingWell projects | #HealthPsychology #Migraine #EDS #POTS | Views own
I'm
@amanwithfibro
Trying to raise awareness of #Fibromyalgia in the UK media. 1 in 20 have Fibro but only 1 in 7 of that statistic is male. #MenGetFibroToo.
Cait 💙
@caitlin_l0we
Hypermobility, Fibro, Chronic pain, Migraine 💜
Pammy McFly {She-Hawk}
@teampumfy
we ❤️all - 12 ex-lefties flirting w patriotism coz cancel culture addicts tore UK apart -(Defenders of ADHD-ASD kids}- Elect Brave Wise men to win WW3 eg Kal EL
AccessNow
@accessnowapp
Sharing #accessibility info worldwide. 🌎 Find and rate accessible restaurants, stores, hotels, & more #GetAccessNow Register for MapMission Day! 🔗
Steel Zebras 🦓 ♿
@zebrafishspoony
We are real life Zebras! We have Ehlers-Danlos Syndrome hypermobile type, with crossover, plus other delightful stuff. All opinions are our own.
Canary
@thecanaryuk
The Canary. Disrupting power since 2015.
dearMoon
@dearmoonproject
The first all-civilian lunar orbital mission, dearMoon. 民間人初の月周回プロジェクトdearMoon🌕
BendyBrain: Dr Jessica Eccles
@bendybrain
hypermobility + related conditions brain-body neuro research @bsmsmedschool | Chair RCPSYCH NDPSIG | Linktr.ee/bendybrain | @bendybrain.bsky.social
The Potsie Zebra
@thepotsiezebra
I am a Pots and EDS warrior. I bring support, awareness and information for anyone who has, is affected by or is just interested in what being a zebra is like.
Linda
@t7_linda
EhlersDanlosSyndrome/POTS (here for the research, not the *charities*) Melatonin Covid research substack.com/@lindawriting
Joanna No Banana
@joannanobanana
Joanna (she/her) 29 Queen of Allergies 👑 MCAS. POTS. EDS. CCI 💛 Autistic. ADHD. OCD. PMDD. Striving to live my best life 💕 #ForTinu
Sabeeha Malek, PhD
@sabeehamalek
Postdoctoral Researcher @Warwick_CMCB in Koester lab & @wingyingchow lab🔬📚🧬 Studying cell biomechanics & collagen/ECM changes in EDS/HSD #biophysics
🍉Eric Adams’ # 1 hate account🍉
@fibromiteready1
Call me Ash. Black. They/she. Disabled. Activist. pro ship dni. retwts and follows do not ≠ endorsement. 😷 🏳️🌈. Free All.
ChaoticCollagen
@chaoticcollagen
#ActuallyAutistic EDSer w/ MCAS. Novice ukelelist. NYR 🏒. Cornell, U2, LP, INXS, grunge, metal. I ❤️ my service dog🐾 ♿️💕 She/they
Through the Fibro Fog
@throughfibrofog
Claire 🇬🇧 #chronicillness & #lowhistaminerecipes VeDA ambassador, The Mighty contributor 👩🍳📖 #fibromyalgia #dysautonomia #EDS #MCAS #migraine #bladderpain
Kel Coulter 💙
@kelcoulter
NHSE NEY supporting #personalisedcare #socialprescribing #carer, mum, wife, #vegan, #ADHD passionate about #livedexperience #autism #EDS views are my own
NIKOLAI MOROZOV
@nikolaimorozo15
Lernen
Me, Myself and Chronic Illness Blog
@me_illness
#chronicillness #introvert - Chronic illness blogger and writer who talks about personal experience of Fibro, M.E, UCTD, Tourette's, PCOS and mental health.
PAFLAR AFRICA
@paflar
PEDIATRIC SOCIETY OF THE AFRICAN LEAGUE AGAINST RHEUMATISM (PAFLAR)
Pamela Lingard
@pamlingard
Mum. Wife. Zebra. #EDS #TED #ChemistryTutor #Crochet
Yusaku Maezawa (MZ)
@yousuckmz
First civilian to fly around the moon on @SpaceX’s Starship in 2023 @dearMoonProject, and go to the ISS on Soyuz in Dec 8th 2021. Japanese account @yousuck2020
ChronicallyFullySick
@chronicfullsick
A rude & silly chronic illness podcast, with two sick Aussie trashbags. Chloe @chlosarge & Jo @joannajnilson. We also kill Instagram @chronicallyfullysick
Spoon Central 🦓🥄
@spoon_central
I re/post tweets related to #chronicillnesses to spread info, offer support, & build our #neisvoid community. #CRPS #disability #dysautonomia #chronicpain 🦓🥄
EDS Project
@project_eds
Research Project at @UGlosPsych (run by @DrStephensLewis a fellow 🦓 & @elainewalklet )
HEDS WARRIOR
@hedswarrior
HEDS WARRIOR ~ You’re Allowed To Scream, You’re Allowed To Cry, But Do Not Give Up.
~Somehow~
@4_somehow
♿🦓 This account: Searcing for (mostly) health related info of value for our family & others. Checking in here when possible Also @somehowso. ɓ ṣ
The-flying-budgysmuggler
@burnham_simon
Devon & Men’s EDSuk Coordinator. 30+ years diagnosed EDS type 1&3. 737 flight instructor
Wishbone Words
@wishbonewords
SUBS OPEN!! An online magazine publishing creative writing, art, and photography from chronically ill, disabled, and neurodiverse creators 👻💌
@invisiblecafe2.0
@invisiblecafe
We offer creative, physical and mental health classes and workshops in the Hammersmith & Fulham area to people with an Invisible illness/disability | Join us!
-
@spooniepress
A
@couldgiveashit
Stoli_Zebra83
@stolizebra83
Patient Advocate🦓Dog Mom🐶Cat Mom😻
Ben H
@benh_mecfs
ME/CFS patient advocate, @OpenMedF science correspondent. Bedbound. Former biochemist in training, physiology, powerlifter, PT/gym manager. Musician. F1/Boxing.
Cheryl Isanogle♿🦓
@cherylisanogle
Fighting #CM1 #EDS #CCI & ignorance #CPP #palliativecare #medicalfreedom, INFJ, caregiver, advocate, gourmet cook, Disabled Medical Pro
tee 🍉 | they/them
@teonawrites
queer, chronically ill, writer and cozy creator | @ubisoft Partner @minecraft creator @official_throne Partner |
Hypermobility MD: Dr Linda Bluestein
@bluesteinlinda
🦓 Expert on Ehlers-Danlos, HSD, MCAS & Chronic Pain🎙Host Bendy Bodies Podcast 🩺Information, not medical advice.
katy ✿❣︎✪ 🐱 + 🐼
@katylauren_
22 , Autistic (dx at 18)✧ 🏳️🌈 ❀hate the government with a passion❀ #POTS #HSD #CFS #onekidney #OCD +more | I rant here |
Karina Sturm
@karinasturm
Freelance #journalist and #chronicillness advocate living with #EhlersDanlosSyndrome besides others. She/her. Profile Pic: @ohrenflimmern
Zippy & Toddler 𝓣𝔂𝓼𝓸𝓷 ⭐️🍰⚽️ 🔴🤣🎗🌈💙
@zippy_tyson
The most adorable puppy 🐾 life will NEVER be the same, 12-06-21💔 #pwme #fibromyalgia #chronicpain 24/7 #itsoktonotbeok #Frenchie