👀💪 'Awareness of the prevalence of joint hypermobility, hypermobility spectrum disorders and hypermobile Ehlers-Danlos syndrome in healthy young population may contribute prevention of disability.' researchgate.net/publication/33…

Among other things.... White noise is a must!!

Endometriosis is so much more than just a "bad period."

"I decided I was willing to risk having acute reactions for my long term #wellbeing. Luckily, my instructor and agility friends were willing to #support me and learn my #emergency protocol": buff.ly/2U7fd50 Hell's Bells & Mast Cells #MCAS #DogTraining

Specialist EDS #midwife, Rachel Fitz-Desorgher, discusses how having #EhlersDanlosyndrome or #HypermobilitySpectrumDisorder may impact #pregnancy and labour. There are three new videos in our member's area - join for free buff.ly/30h2r72

Did you know that children are affected by bone, joint and muscle problems too and this can impact children both physically and emotionally? Read Emily Earle's guest blog for some insight. See arma.uk.net/nlmar21 #rheum #rheumedu #rheumatology

Are you looking for research study participants? We can help you: buff.ly/3qJrjPM

Strength/Flexibility/Health/EDS Integrative Wellness Newsletter is out! paper.li/SFHEDS/1419645… Stories via Ehlers-Danlos Support UK #westlondon #ehlersdanlossyndrome

Diagnosis can finally allow things to 'make sense'! #EhlersDanlosSyndrome #qualitativeresearch #hEDS

Excited to share my first publication! The Beighton Score as a measure of Generalised Joint Hypermobility. With HUGE thanks to my co-authors Emma Reinhold and Dr Gemma Pearce! Thanks also to hEDStogether and @ActinDomain for support: hedstogether.com/projects/heds-…

Dads are such a vital source of support for someone with VEDS. Whether you're a dad, have a dad or just know a dad, you won't want to miss this webinar: buff.ly/3faU7OE

What are your favorite aids or supports for helping day to day with your EDS or HSD symptoms? #LifeHacksMonth

Children with #hypermobileEDS / #HSD will be more ‘bendy’ than their peers & this #hypermobility can cause problems. Instability of the joints might lead to dislocations or subluxations, they may suffer from pain, their joints may click, they may fidget. buff.ly/2YG8q38

A valuable paper summarising people's experiences of joint hypermobility & Ehlers Danlos syndromes. I just sent it to a newly diagnosed friend so they can see they are not alone! #whywedoresearch Dr Sarah E. Bennett Prof Shea Palmer Free full text here: uwe-repository.worktribe.com/output/848390/…

Sorry we went MIA.... We've been busy, busy behind the scenes, working through the tremendous data from our participants! Just a quick update that our first Alliance meeting will be held online on the 3rd of June, where we'll be sharing some preliminary findings.. 🙌

Please do keep sharing our 🗣️ shout out for participants.... If you've ever had or worked with dogs, we'd like to hear from you on your perceptions of dog behaviour and reactivity.... ⬇️ glos.onlinesurveys.ac.uk/projectdogsurv…

Today we launched our first EDS learning alliance meeting and can't thank those who attended enough! Great to see so many people interested in the area 🙌💚 Can't wait until our next one!

My final PhD paper has been published with Taylor & Francis Research Insights, which thanks to UWE Bristol is #OpenAccess to all!! 🎉😁🦓Many thanks to Prof Shea Palmer Nicola Walsh & Timothy Moss! #selfmanagement #EhlersDanlosSyndrome #hypermobility #HSD #EDS UWE Bristol Library doi.org/10.1080/096382…