This person here is what is represented as inspirational as Jenny Robinson is a go getter who goes above and beyond to keep herself busy and never giving up doing so.she maybe my partner but to others she is what people are known to see her as a icon and a role model. She is not only…

Our Elders support group will be meeting tonight online on Zoom from 7:30pm-9:00pm!

We are so excited to have Lynne from Laughter Yoga joining us for this session! You don't have to join in the yoga part, just come along and enjoy! Join via Zoom at
ehlers-danlos.zoom.us/j/97906169952 #EDS

As May is Ehlers-Danlos awareness month, me and my mam have decided to get tattoos to help raise awareness of this rare disease. Please consider sponsoring us so we can help fund research and support all of us with EDS! All donations to Ehlers-Danlos Support UK
#ehlersdanlos #EDS link⬇️

PLEASE HELP ME RAISE MONEY SO THAT GUY HAS TO JUMP OUT OF A PLANE!! Check out my JustGiving page and please donate if you can. Thank you! #JustGiving justgiving.com/page/nikki-cas… Ehlers-Danlos Support UK #eds #EhlersDanlos #charity

Interesting meeting Ehlers-Danlos Support UK Nottingham branch & Alex Norris MP this evening to talk about the massive barriers to diagnosis let alone any form of treatment 🤞 this leads to some progress in the future

Order your awareness pin for May!

EDS UK enamel pin badges are bright and bold and a great opportunity to raise awareness and get people talking about #EhlersDanlosSyndrome & #hypermobilityspectrumdisorder . Choose from 3 designs here: shop.ehlers-danlos.org/product-catego…