“Takiwatanga” is the Maori word for autism and it means “In their own time and space”.

Do not go gentle into that good night,

My 97 year old granny was crowned Queen of our village today as the oldest resident 🤩😍

Check out MQ researcher Dr Jess Eccles AKA BendyBrain: Dr Jessica Eccles on @e4tweets this evening at 9pm. This documentary follows Sam Thompson as he explores his ADHD diagnosis, how this neurodivergence presents in different people & how medication might help. #WithoutResearchItsJustGuesswork

I'm sure we are the people who keep Hobbycraft open.

Anyone else's elbow sublux when walking? Bloody gravity.

If hEDS follows the pattern of 'hypermobility phase, pain phase and stiffness phase' - is the stiffness phase forever or is there some other state after? Do we just stiffen up and that's that?

Getting some help with the housework today from Russell Crow.

(Not me) This HAS to be EDS, surely? Skin snaps back to normal straight away. Age 35.

I just did pretty much all of this to myself, and it took me a few days to piece it all together. Yet again. I should recognise it by now. One would think 🤷‍♀️ If I'm itchy, acting up and being a shit, this is the culprit.

Has anyone got any recommendations for a rolling pin that doesn't hurt hands or wrists? Many thanks!

So... someone I know ambushed me with a faith healer today. In my house. Nnnngggghhhhh.

Putting on my outfit to visit UK Parliament to brief MPs and Lords on #EDS/#HSD followed by a visit to No10 to hand in the Ehlers-Danlos Support UK petition with 28,700 signatures. We're calling for Health and Social Care Committee to hold an enquiry into our lack of access to care or diagnosis.

My nice is having flare ups on her legs and back. Her face and chest gets red/hot/blotchy too. She feels very run down, mouth ulcers and breaking nails. What does everyone think? I see so much of my MCAS symptoms but I'm only coming from my perspective. She's very stressed.

Head is playing up again, terrible pain when standing or sitting or lifting. Everything too bright, too loud, and phantom smell is back 😬

I think I sprained my nervous system going to Tesco today. So out of sorts, bamboozled, discombobulated, irritable, exhausted, annoyed with my very being! 😩 😫😬🤬🤔😆

Made this cake for my Granny's birthday today. I was NOT in a hyperfocused state, so it was hard, it's not perfect, and I'm exhausted 😆

Granny enjoyed her 99th birthday party, her cake, and her 99 ice cream! Wish I was half as sharp as she is!

Farewell, Muad'dib. Always affectionate, loved eating chicken, was terrified of eggs. She would come when called, except the three times she escaped under the floorboards - despite having the biggest hamster enclosure of all time. 😪

This existence is fucking awful. Fuck it all.