It's time to begin clinical trials of multi-modal #LongCovid therapeutics. Aprepitant is extremely good at binding to viral proteins, and blocks inflammatory cascades at the source. This allows the body to return to homeostasis. The supporting scientific evidence is strong.

#MicroClots were discovered in #LongCovid last year — the most promising biomarker to date — 100% of pts tested have them, controls don’t. NIH denied a grant to further study in spring, so this week the research team came to US & trained teams at Yale & Harvard how to identify.

To anyone living with #MECFS, #LongCovid, or other post-viral/infectious-onset diseases, or anyone who knows someone who is afflicted: please share your story in the comments. h/t to Christoph Ströck/@Tempi_Stiftung for this prompt! 1/

The Ehlers-Danlos syndromes (EDS) are a group of 13 heritable connective tissue disorders. The conditions are caused by genetic changes that affect connective tissue. Each type of #EDS has its own set of features with distinct diagnostic criteria. ehlers-danlos.com/what-is-eds/ #MedEd

We've gotten 37 emails since this article came out Many are from people who also had remission events after antibiotics/probiotics who say, "It's not just me!?! I thought I was the only one who had this wild experience!" I'll never forget when 🕸️Dr.T, PhD & I realized that we

Signs of autistic burnout…

Your brain hurts more and more as the day goes on Focusing gets harder and eyesight gets blurrier Sounds that you tolerated no problem are now crashing your sensory trip wire You are suffering from "glutamate ecotoxicity" - yes its a well known thing. 1/n RemissionBiome MECFS/LongCovid Patient-Led Science

My wife had EDS and did not know it! Why this EDS Awareness site was born... buff.ly/3SIMf8i #EhlersDanlosSyndrome #EDS #Hypermobility #HSD #Fibro #Fibromyalgia #Depression #Pain #NEISvoid #MedEd #MedTwitter #Doctors #Genetics #rheumatology #Nurses

If you or someone you care about, or your patient has #EhlersDanlosSyndrome / #HypermobilitySyndrome and major #gastro problems, here is a very good explanation of what is happening for so many and why. #EDS #HSD #POTS #MCAS #ehlersdanlossyndome youtu.be/qR0vHXdczmM

Antihistamines are the first line "challenge test" that should be tried in #LongCovid #MECFS. Start with H1, add H2. Try different OTC and rx like 'rupatadine' which also has mast cell effects. It it helps symptoms than keep optimizing. Try adding mast cell inhibitors. Try

Someone DM’d me, asking for a code to the sky place, but saying she wasn’t sure she “deserved” it because she’s too sick to participate much. But it’s the sickest folks who are most important! Folks with spoons can cope better if this place falls apart. So hit me up, 🥄 or no 🥄

It's time to get a bit more organized about this process of distributing codes to the Other place, the one the sky. I created this form you can fill out to donate or request codes. It should make the process a bit easier. docs.google.com/forms/d/e/1FAI…

Migraines are underdiagnosed AND undertreated How can something that affects more than 1/10 people be overlooked so easily? Let's talk about what migraine is AND isn't so you won't miss it when taking care of your patients! #MedSocial30 Day 2

– Oppfølginga av pårørande er svært mangelfull. Det kan eg med handa på hjartet seia, både av erfaringar og eigne studium, seier Svendsbø, som også har teke doktorgrad på feltet. nrk.no/vestland/begge…

#Dysautonomia is a group of disorders associated with autonomic nervous system malfunction. The autonomic nervous system plays an important role in regulating GI motility. People with various forms of dysautonomia can have significant GI symptoms. #DysautonomiaAwarenessMonth

– Oppfølginga av pårørande er svært mangelfull. Det kan eg med handa på hjartet seia, både av erfaringar og eigne studium, seier Svendsbø, som også har teke doktorgrad på feltet. nrk.no/vestland/begge… bsky.app/profile/someho…

More than 2400 B l u e S k y codes have gone out to people in the disability and chronic illness communities! Request or donate codes here. Let's keep supporting one another no matter what happens here on Twitter. forms.gle/fPpmPE5Lb9qt1b…

Brain injury and inflammation are linked to mental illness. This is one of the few stories that accurately portrays the daily mental health struggles that many with encephalitis face...🧵 cbc.ca/news/health/hi…