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Nice one, George. George Monbiot #MedTwitter #pwME #MECFS #LongCovid #Scandal theguardian.com/commentisfree/…

Watch this space! #hypermobility #LongCovid

Thank you for the response to this. My hope is that this tweet and the replies have reached more people than the harmful session on #MECFS did. In contrast, I'm among the real experts today for the NHS England National #LongCovid conference and excited by the excellent agenda ✨

*Calling all my English followers* @AndrewSelous MP has arranged a Westminster Hall debate on #EDS/#HSD this Wed 4pm English NHS only The minister Victoria Atkins should be responding *Ask your MP to attend, giving them your story of diagnostic odyssey and lack of care* 🙏

Super important #hypermobility #eds

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#EDS Thank you for sharing BendyBrain: Dr Jessica Eccles & Emma Reinhold. I’ve just emailed my MP asking if she will be in Parliament Wednesday when #EDS is being discussed.

More fascinating stuff from the Norris Lab #EDS #hEDS #multimorbidity

A new term used in defense of this process is "anti-recovery activists" which is the most bizarre interpretation of "people trying to educate so health professionals don't harm their patients". It's about time this exploitative program is called out bbc.co.uk/news/health-69…

Massive thanks to Rachel Schraer and Paul Grant for this, and to everyone who contributed. Very grateful for the care that was taken and to be given the space to properly explain my point of view. Think I should add 'anti-recovery activist' to my bio?! bbc.co.uk/news/health-69…

What an exciting opportunity! Medical University of South Carolina (MUSC)

Six hours to go! Still just enough time to call your MP and ask them to attend. The number of MPs present is important. #EDS #HSD #Parliament Ehlers-Danlos Support UK will be there. Thank you again @AndrewSelous for securing this important debate. We need access to diagnosis and care!

We should be able to watch the debate live at 4pm. I hope Victoria Atkins will hear both our desperation and the stupidity of the current situation! #EDS #HSD #EnoughIsEnough Ehlers-Danlos Support UK parliamentlive.tv/event/index/bb…

Another brilliant article by Diane O'Leary, PhD on the philosophical confusion surrounding #MUS (medically unexplained symptoms). No, they're not all psychosomatic: Some people just haven't been diagnosed yet 🤦‍♀️!!!

I'll just leave this here

Thank you Connie Dimsdale for covering this important issue so comprehensively. #EDS #HSD #hEDS #EnoughIsEnough Ehlers-Danlos Support UK

Would you like to win a copy of "Disjointed: Navigating the Diagnosis and Management of hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders” (US shipping)"? To enter -Follow @HypermobilityMD -Subscribe free at HypermobilityMD.com -Tag a friend here.

Such an incredible opportunity to work in one of the most forward-thinking and supportive labs! Whether or not you're currently into #EDS #hEDS, it's a neglected area of medicine, ripe for exciting discoveries. It's a common illness with often significant impact. #MedTwitter

We are thrilled to share the preprint of our latest research study focusing on the genetic underpinnings of hypermobile Ehlers-Danlos Syndrome (hEDS). researchsquare.com/article/rs-454…

Congratulations to my new MP Danny Chambers MP 🔸🩺! I look forward to discussing #EDS and the #EnoughIsEnough campaign with you. Ehlers-Danlos Support UK