Emma Reinhold
@drereinhold
Former GP/Research/Advisor on #EDS #MCAS #MUS #fatigue #EDI Disabled🌈ally
#NHS #gardening #miniatures
Often irreverent Never disrespectful
Views are mine, obvs
ID: 2160080176
https://gptoolkit.ehlers-danlos.org/ 30-10-2013 10:48:53
20,20K Tweet
7,7K Followers
3,3K Following
Shivani 🦓🧂🥄🦋
@dysautonomiac
Marketing @wearlumia. Tweets my own. Reliably Dysfunctional. #mcas #dysautonomia #longcovid #pots #eds #mcas #zebra #iacc #wearlumia #wearables
Adrian Blake
@adrianpaulblake
Chubby Tortoise Boy
Melanie Brown, M.S.
@cornbread324
Learning to survive Myasthenia Gravis, Sjogren’s, hEDS, Lupus, and Republican policies 🤣
Kristen H McLeod 🤷🏻♀️
@kristenhmcleod
Writes on parenting, culture + growing up in a cult where Satan's clutches were not - unfortunately - designer handbags.
Karen Lubell
@karenlubell
ME/CFS is a connective tissue weakening caused/worsened by a virus. This can lead to Craniocervical Instability, Venous Compressions, CSF leaks and more.
Julie Rehmeyer
@julierehmeyer
Author of Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand. NYT; WashPost; Discover; Slate; Stat News… She/her.
mary carroll
@emo2jam
Hannah Davis
@ahandvanish
Research, algorithmic music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled. DMs rarely checked
Official Keanu Reeves
@kreevesoficial
Hollywood, Hills, California, U.S Nationality occupation 📍Canadian 📍Canadian Actor I am here on X new no fan page please careful and follow me up click on Bio
Ash Taylor
@thisoldcamper
Zach Donohue
@zacharydonohue
Industrial Design Director at Conficio Product Design
Jeannie Di Bon
@jdibon
Hypermobility & EDS | Movement Therapist | Author of "Hypermobility Without Tears" | jeanniedibon.com | Founder of The Zebra Club
Dan Wyke 🦠➡️🧠🔥
@dan_wyke
M.E. inactivist, person-centred counsellor (see link), recovering poet (Rack & Waterloo Press)
Elizabeth
@elizabe81607601
davidtuller
@davidtuller1
Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
Rajan Singh
@rajan___singh
Asst Prof (R) @unrmed 🇺🇸 #DGBIs #Microbiome #SoMe ✍️ @NGMJournal @INMAssociation Creator @GutBrainScience Alumnus #Gastro #SGPGIMS 🇮🇳 Views my own🙏
Monitor of Nothing
@idle_albatross
Benign Twitter lurker. 🏳️🌈 Disabled. Often too befuddled to tweet much. She/her.
Katy B
@katybruce108
Myalgic Encephalomyelitis ME + POTS 38 years Donor to the @mecfsbiobank for 10 years & @DecodeMEstudy Please watch dialogues-mecfs.co.uk/videos/ #pwME
OhTWIST.bsky.social now too
@h2ohtwist
Oh, That's Why I'm So Tired! Ehlers-Danlos Syndrome survivor & writer. She/her. Co-author #EDSToolkit for doctors. EDS / HSD isn't rare, just rarely diagnosed.
Naomi Harvey PhD #WearAMask
@naomi_d_harvey
Zoologist. She/her. 23yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ naomidharvey.bsky.social
Dr Asad Khan FRCP FRACP 🇵🇸🇳🇿🇮🇳🇬🇧#pwLC
@doctorasadkhan
Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Annie5757
@annieh5757
Surviving Sjogren’s (Neuro) patient w Dysautonomia, SFN, POTS, MCAS, Chronic Daily Migraines.
Gary Anderson
@g_a_grandsong
#LongCovid #MECFS - Another Long Covidian pursuing science in service of the ‘heart.’ 🫶🏼🌹
Kris
@canyonmoonlite
Athlete to chronically ill pipeline thanks to covid
Alissa Zingman MD MPH - ZebraMD
@doczing
PRISM Spine and Joint, prismsj.com, Research EDSRF.org, Hypermobility Care, Wife/Mom/CEO/Dancer. Tweets are not medical advice.
ME/CFS News
@mecfsnews
News, interesting information and commentary on ME/CFS. Mostly inactive these days.
Non Griffiths
@non104griffiths
David Matthews
@david_m_writing
No, I don't have a band. Retired architect and habitually grumpy aspiring author. Advocate for a daughter with #EDS #MCAS and #POTS
Granite Brook Farm Inc.
@granite_brook1
Granite Brook Farm Inc. nurtures healing and community through the gentle connection of nature and animals.
BRODDISK ENGINEERING SERVICES
@broddisk
Sales & Repair of Generator, Motorcycle 🏍️, Conversion of fuel tanks to gas
S Blitshteyn MD, FAAN, FANA, Dysautonomia Clinic
@dysclinic
Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med advice
Claire Gill
@clairegwrites
Journo. Fiction Editor. Commercial fiction geek. Podcaster. Mum 1st. Book obsessed. Bibliophile. Talks too much, laughs always. Often found in wellies. VMO
Anthea
@spreegottdenkt
denglisch profi und zu-viel-Denker (they/them)
Tess Falor, Ph.D. | Renegade Research
@tessfalor
Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome
fight.ableism
@fightableism
강문수~진주시~통영시~ follow my tweets at #FightAbleism | eds & co| tubie| disability awareness & advocacy| malpractice survivor| gofund.me/6dc958c3ht
Shaney Wright
@shaneywright
@WestHam Fan ⚒ | Accidental Centrist I Pro-Pragmatism and Real World Outcomes I Anti-Ideologues.
Candace D.
@diaryofasickgrl
Wife. Mother. Dog mom. Chronic illness advocate. 🥄♥️ #hEDS, #MCAS, #POTS, #foodallergies, #cornallergy, etc.
نیکۆڵاس
@nicholas9780
LongCovidPharmD
@organichemusic
Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. PharmD.substack.com ko-fi.com/LCpharmD
Jamie Jones
@77jamiebeth
Mama of Reese and Bradley and currently fighting breast cancer. Ehlers Danlos, Chiari, Hashimotos, Thoracic Outlet, Tethered Chord and Scoliosis warrior!
Hazely M 🇮🇪
@eades_hazely
KatsonRose
@katsonrose
stephanie
@stephanie401720
Stoner chick 420friendly cannabis enthusiast indoor and outdoor grower of all kinds of exotic strains, Vapes, bongs and edibles. Ship interstate🇬🇧 🇨🇦🇺🇲💯
Jessica Thompson
@jessica76255837
Elise
@elisalitie
Här finns jag för long covid. Med hoppet om att briljanta människor ska få mig tillbaka till träning med mina kära, jobbet jag älskar och umgänget med vänner.
AfraBush
@qjqkf2dij0s87
Minghao Gong
@minghaogongd960
Musically-inspired Postdoc @ Jackson laboratory for Genomic Medicine - Pains sharpen the mind and channel the spirit to the utmost heights!
Mary Kohlbeck
@kohlbeckma34622
Jason Statham
@jasonstath5406
American 🇺🇲 Film 🎥 actor movie producer
Holistic Health Visitor
@holistichv
Think KPI (not tick-box). Keeping People Included! ❤️ Holistic, inclusive, trauma-informed Nurse & Health Visitor with ADHD. SEND Warrior Mum! Views my own
Laqueau
@laqueaup04goul
Tammy Robinson Smith
@trs6389
Michael Jason
@michaeljas94653
good friend 😂😂💞🌷🌷🌷🌷🌷💯❤️❣️🎉
MargolisLab
@margolislabnyu
Margolis Lab |🧠💩 Unraveling gut-brain signaling in GI, mood, and neurodevelopmental disorders. Focus: serotonin, DGB and visceral pain. PI: @karagm2009
McToosoo
@mctoosoougcu
The Comorbid Citizen
@comorbidcitizen
Autistic citizen journalist shedding light on Ehlers-Danlos & comorbidities, neurodiversity, disability, & systemic gaps in healthcare & medical education.
Becky
@rebeccajobeck
e3rc7901cib4
@e3rc7901ci91900
Pioneer Wealth: Prof. Matthew’s AI + finance pros boost profits! Free 1st month. AI scans data, experts guide stocks/crypto. Click to join now!
Officially Reeve
@officiallyre202
Founder, CEO, and chief engineer of Space 🚀 CEO and product architect of Tesla, 🚘 Inc. Owner and CTO of X President of the Musk Foundation👇🎖️
Pete gilbert
@pet35784
AretiredRNof35yrs
@rnof35yrs
Love others, enjoy the small things in life!
عمر صافي خليل
@mkhlyl62711
Navigate Chronic Pain
@navigatechronic
Our AI companion draws its knowledge from the world's leading pain specialists & therapists — always private, always judgment-free, always when you need it.
Say Re
@rosyblue129
Graeme Cook
@c11cook
Bea is Chronically Persisting✨
@be_kinderr
Chronic Illness Researcher. Science of #MECFS #LongCovid #POTS #EDS #MCAS CCI SFN Lyme etc & How They Connect🕵🏻♀️Scientist/Advocate [email protected]
Suomen Ehlers-Danlos
@edsfinland
Suomen Ehlers-Danlos -yhdistys ry eli Sedy on valtakunnallinen yhdistys, joka jakaa tietoa sairaudesta sekä tarjoaa jäsenilleen vertaistukea ja edunvalvontaa.
Adam
@abrokenbattery
Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
Hypermobility MD: Dr Linda Bluestein
@bluesteinlinda
🦓 Expert on Ehlers-Danlos, HSD, MCAS & Chronic Pain🎙Host Bendy Bodies Podcast 🩺Information, not medical advice.
Michael Mindrum, MD
@michaelmindrum
Internal Medicine & obesity specialist in Nova Scotia, 🇨🇦. Interests in diabetes, behavioral psychology, consciousness, AI, & a post-polarized world.