Emma Reinhold
@drereinhold
Former GP/Research/Advisor on #EDS #MCAS #MUS #fatigue #EDI Disabled🌈ally
#NHS #gardening #miniatures
Often irreverent Never disrespectful
Views are mine, obvs
ID: 2160080176
https://gptoolkit.ehlers-danlos.org/ 30-10-2013 10:48:53
20,20K Tweet
7,7K Followers
3,3K Following
Tom Kindlon
@tomkindlon
With ME 36 years (30 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 28 yrs
Claire Jones
@claire145
BCUHB Consultant Physiotherapist. Long Covid Physio Disability & Safe Rehab Committee Member. DProf Student at Uni of Chester. Views are my own.
Tessa Chapman
@tessa5news
Chief Correspondent and occasional presenter for @5_News at ITN. Senior fellow @JSchofieldTrust. Working and talking wherever the stories take me.
Danny Chambers MP 🔸🩺
@dannyvet
Member of Parliament for Winchester | Veterinary Surgeon | Liberal Democrat Spokesperson for Mental Health
Richard Bogle
@richardbogle
Interventional Cardiologist & Postgraduate Dean NHS England. Liveryman and DHMSA, Worshipful Society of Apothecaries. All things 🇮🇹
Dysautonomia Intl.
@dysautonomia
Dysautonomia International is a 501(c)(3) non-profit that raises funds for research and promotes awareness of disorders of the autonomic nervous system.
Karen Lubell
@karenlubell
ME/CFS is a connective tissue weakening caused/worsened by a virus. This can lead to Craniocervical Instability, Venous Compressions, CSF leaks and more.
Julie Rehmeyer
@julierehmeyer
Author of Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand. NYT; WashPost; Discover; Slate; Stat News… She/her.
Janet Fyle MBE
@consideredview
UKLondonista via Sierra Leone🇸🇱🇬🇧Midwife/Policy Advisor #activist #campaigner #EndFGM #EndVAWG #LeaveNoGirlBehind #LevelThePlayground4All #DoingMyBlackJob
Bhupesh K Prusty
@bhupeshprusty
A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Onyeka
@onyekaonline
👩🏾💻tweeting & reposting words in the nexus between my passion & purpose
Natalie Hicks
@nataliehixy
Occupational Therapist | Community Health & Wellbeing Lvl3 Tutor #Apprenticeship #SocialPrescribing | #DisabilityActivist & Founder Member of @AbleOTUK
Liz Jackson
@lizjjackson1
Journalist @BBCLondonNews. Formerly @BBCNews Channel/News at One, #BBCJTS & @The_JDF. Invisible illness. Got a story? Email [email protected]
Alexandra Naa Aduwah Lyyli Ankrah🇬🇧🇬🇭🇫🇮
@cheamfields
HumanRights&Responsibilities. Former Barrister, now NHS, Chair NBAA #Black & #Christian- #Awake working to become #Woke. Like Steve Biko 'I Write what I Like'
Greg Brockman
@gdb
President & Co-Founder @OpenAI
Carol Vorderman
@carolvorders
‘NOW WHAT?’ book out now amzn.to/3PMn3xT Award winning broadcaster and campaigner Politically independent. carolvorderman.bsky.social
Hannah Davis
@ahandvanish
Research, algorithmic music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled. DMs rarely checked
Amy Boot
@amybootot
Occupational Therapist, Forensic Mental Health, Sussex Partnership NHS Foundation Trust. Views are my own. @SPFT_NHS #OccupationalTherapy #NHS #Mentalhealth
Resia Pretorius
@resiapretorius
Distinguished Prof: Physiological Sciences, Stellenbosch Univ, South Africa; Honorary prof: Univ of Liverpool Research: coagulation, inflammation
Jeannie Di Bon
@jdibon
Hypermobility & EDS | Movement Therapist | Author of "Hypermobility Without Tears" | jeanniedibon.com | Founder of The Zebra Club
Dan Wyke 🦠➡️🧠🔥
@dan_wyke
M.E. inactivist, person-centred counsellor (see link), recovering poet (Rack & Waterloo Press)
Amy Rochlin
@amyrochlin
Executive Director, @MetrodoraFdtn. Working hard to advance progress for patients living w/ complex chronic conditions. #MedTwitter Opinions are my own.
Lynne Parker
@funnywomenlynne
Founder CEO @funnywomen. Comedy/event producer, speaker, writer, podcaster, coach, host #StandUptoStandOut #HERlarious #funatwork #FWAwards2023 @FSBKent North.
Stephen Metcalfe
@metcalfe_sbet
Former MP for South Basildon & East Thurrock. Science advocate and STEM ambassador. Interest in AI and all things Tech. Former Chair of SciTech committee at HoC
Georg Schomerus
@geschom
Psychiatrist, stigma researcher, w/ special interest in time trends and SUD stigma. Chair of Psychiatry at Leipzig University. Opinions are my own @MHandsociety
Vanessa Gilmartin ( Garrity) RNMH She/Her
@vanessarnmh
Mum •Mental Health Nurse •Deputy Director of Nursing & Quality @SHSCFT • #MHTV #MHNJournal Cat & Dog Staff • Social Justice•
davidtuller
@davidtuller1
Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
evie_may_talks_a_lot
@mayz131
A gobby late-diagnosed AuDHDer 🌈 in her mid-20s 🙋♀️ Vocal about all things mental health, NHS and neurodiversity 🌈 #dumpthescales #autismnotpd
Başar SARIKAYA, MD, DABR
@basarsarikayamd
Associate Professor of Neuroradiology, University of Washington, PGY-24, G93.32 #TeachMETreatME #neuroSjogrens #autoimmuneencephalopathy Opinions are my own!
Agnes Ayton 💙
@agnesayton
Consultant psychiatrist - Chair 2019-23 @RCPsychEDFac, re-elected as vice chair 2023-2027, #EPSIG, Proud IMG. All views are my own. @agnesayton.bsky.social
OhTWIST.bsky.social now too
@h2ohtwist
Oh, That's Why I'm So Tired! Ehlers-Danlos Syndrome survivor & writer. She/her. Co-author #EDSToolkit for doctors. EDS / HSD isn't rare, just rarely diagnosed.
Janet Dafoe
@janetdafoe
Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
Dr Asad Khan FRCP FRACP 🇵🇸🇳🇿🇮🇳🇬🇧#pwLC
@doctorasadkhan
Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Existential Bread
@exist_bread
Mostly stuff about chronic illness, data, and Oxford commas.
Alissa Zingman MD MPH - ZebraMD
@doczing
PRISM Spine and Joint, prismsj.com, Research EDSRF.org, Hypermobility Care, Wife/Mom/CEO/Dancer. Tweets are not medical advice.
Oonagh Cousins
@oonagh_cousins
Communications and Fundraising at @long_covid #ThereForME campaign team. 'Anti-Recovery Activist' oonaghcousins.bsky.social
IJERPH
@ijerph_mdpi
International Journal of #EnvironmentalResearch and #PublicHealth , #IJERPH, is a scholarly peer-reviewed #OpenAccess journal. Published by @MDPIopenaccess.
Yanina Aubrey
@yanina_aubrey
Systemic & Research-led Innovation- R&D - Entrepreneurship- @UniofHerts -FRSA. Trustee @ehlersdanlosuk . Opinions my own, etc
ME/CFS News
@mecfsnews
News, interesting information and commentary on ME/CFS. Mostly inactive these days.
Ben Whybrow
@bwhybrowphysio
Clinical Communication Skills Educator. Specialist Pain Physio for NHS. Creator of “Clinical Communication” Resource.
Non Griffiths
@non104griffiths
David Matthews
@david_m_writing
No, I don't have a band. Retired architect and habitually grumpy aspiring author. Advocate for a daughter with #EDS #MCAS and #POTS
Tomas P Teodoro
@tbpteodoro
Consultant Psychiatrist - Neurodiversity #adultadhd Liaison Psychiatry #psychodermatology Neuropsychiatry #FND | Filmmaking, Theatre, Live Cinema, Animation
S Blitshteyn MD, FAAN, FANA, Dysautonomia Clinic
@dysclinic
Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med advice
Connie Dimsdale
@connie_dimsdale
Education and news reporter at @theipaper
Russell Johnston
@russelljohnston
Inventor, writer, last man standing from a ancient pitching lineage. High rung politics forever!
Dr. Gustavo Aguirre-Chang
@aguirre1gustavo
Treatment of LongCOVID,Post-Vax,ME/CFS,FM Creator of Trial for Viral Persistence,Microclots ko-fi.com/aguirregustavo aguirregustavo.substack.com
Time Princess
@timeprincessen
The Hyper Realistic 3D Story Dress-Up game. Travel around the world through time and space, open up the way. Join us on Discord and chat with fellow Travelers!
Angela Reiersen, MD, MPE
@angelareiersen
Associate Professor of Psychiatry @WUSTL ; Opinions are my own; Tweets are not medical advice. Say my name: name-coach.com/angela-reiersen
Tess Falor, Ph.D. | Renegade Research
@tessfalor
Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome
8Eevert ✨
@8eevert
Neurodivergent citizen researcher dad fighting #LongCovid, #MECFS and systemic neglect. Please consider donating.
Kelly Lockwood
@kellylocky
Ex-GP, founder of DDN and disabled doctor and mummy
Dr. Lhara Mullins
@lharamullins
Lecturer in Health Promotion & busy Mom of 4. Author & professional multitasker. Autism/Neurodiversity CPD Training. Prolific user of exclamation marks!!!
LongCovidPharmD
@organichemusic
Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. PharmD.substack.com ko-fi.com/LCpharmD
Barnacles
@barnacl3s
Hypermobile, achy, clumsy, fatigued, brain-foggy, and more. I was FINALLY diagnosed with hEDS after many painful years. #EDS #Hypermobility #chronicpain
Brad
@autonomicbrad
Bachelor of Biological Science Degree. #LongCovid #TeamAutoantibodies #Bc007. Any tweet is my opinion and not medical advice. Check out my podcast on Spotify
Patient Safety Commissioner
@pscommissioner
This account has been archived. Follow me on Bluesky and LinkedIn. To raise an issue with me please contact: [email protected]
Secret Physician
@secretphysician
Kendra H.
@survivingcfs
31 | Disabled from #mecfs | Disability rights advocate | Formerly homeless now living in a nursing facility | Former English teacher trying to survive |
4mm documentary film
@4mmfilm
A new film by @jenbrea. #mecfs #EDS #pots #longcovid #mcas Website: 4mm.film Social: linktr.ee/4mmfilm Coming 2026 (or 7).
Kathryn Berg
@kathrynberg_
Trial manager and researcher at the Centre for Genomics and Experimental Medicine, University of Edinburgh.
UniteToFight
@u2fight_world
LongCovid & ME/CFS conference project. community-driven. independent. global.
Holistic Health Visitor
@holistichv
Think KPI (not tick-box). Keeping People Included! ❤️ Holistic, inclusive, trauma-informed Nurse & Health Visitor with ADHD. SEND Warrior Mum! Views my own
Bee 🫒🌼✨
@elbecp
Public Health student 🇦🇺 🇫🇮 Plant person. AuDHD. Chronically curious. Alphabet soup connoisseur. ♐⬆️ | ♃ in ♉ @elbecp.bsky.social
Siwalik Banerjee
@siwalikbanerjee
Consultant Rheumatologist, University Hospitals Coventry & Warwickshire. Ex-Ast Professor of medicine, Calcutta Medical college,Music director,singer-songwriter
Erin M
@erinapn1
Audaciously committed to hope. Mum of severe Long Covid Kiddo. From Journo to law. bsky.app/profile/erinmg…
Bea is Chronically Persisting✨
@be_kinderr
Chronic Illness Researcher. Science of #MECFS #LongCovid #POTS #EDS #MCAS CCI SFN Lyme etc & How They Connect🕵🏻♀️Scientist/Advocate [email protected]
ScienceStanley
@sciencestanley
Your friendly neighborhood AI-scientist.
Hypermobility MD: Dr Linda Bluestein
@bluesteinlinda
🦓 Expert on Ehlers-Danlos, HSD, MCAS & Chronic Pain🎙Host Bendy Bodies Podcast 🩺Information, not medical advice.
Rebecca Ryan
@drrebeccaryan
Gastroenterologist & Hepatologist. Disorders of the Gut Brain Axis. Treating Long Covid, POTS, MCAS, hEDS.